App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Provides information on inflammatory bowel disease (IBD), dieticians and hospitals, and on the activities of France-based patient group, Association Francois Aupetit (AFA).
Game involving characters modelled on birds and pigs, and which is said to feature physics-based gameplay.
Logs asthma activity, medicines, triggers, and peak-flow readings in diary and graph form.
Allows a user with asthma to record event information (such as environmental conditions, symptoms, treatments, and vital signs) that may be relevant to asthma.
Diabetes management app intended to simplify diabetes management, and to be used by adolescents and younger people with diabetes.
Simplified phone ‘home’ screen for older people, and for people with visual impairment (and even for anyone who dislikes numerous phone icons).
Allows a user to record diabetes-related personal information, including blood glucose levels, carbohydrate consumption, and medication.
“BookSmart for home allows parents and caregivers to access a library from their mobile phones so they can support their children’s learning after the school day or when physical schools are not in session. BookSmart starts with a free base collection – 75+ great local and international books suitable for young readers and their parents…
…These books support the learning and socio-emotional development of children ages 3 to 12 years. The collection includes books in Arabic, English, Hindi, and Spanish. Books can be read online or offline to save on data costs.”
Tool for viewing the brain in 3D.
App for parents with children under five to help them deal calmly with problems and frustration.
“For some kids, managing everyday feelings can be a big challenge. Apps like ‘Breathe, Think, Do with Sesame’ can model more productive ways to deal with emotions.
The app shows kids a familiar face from Sesame St having trouble with something such as tying their shoes or going to bed. The app helps kids realise that everyone has moments like this in their lives.
And it also shows them how to use calming exercises like breathing deeply along with a monster friend. That can help kids manage their frustration.”
Allows a user to find nutritional information about food, and to track meals, exercise and weight.
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
App to helps families of children with rare diseases to communicate with health professionals.
“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals.
The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test.
Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…
… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups), which advised on the app’s development | http://bit.ly/2PdolRC
Provides access to, and allows users to participate in, the social networks of Autismo Espana [Autism Spain].
Customized tools are available to help you cope with stress, stay well, stay safe, stay healthy, stay connected, and navigate parenting, care-giving, and working from home while social distancing, quarantined, or sheltered in place.
You can track your mood, visualize your progress, and find resources to seek additional help and support. No account or password is required, and user data is not collected.”AppleVis is the global volunteer community for blind and low vision users of Apple products | https://bit.ly/3tiWvpV
Diabetes management app for people with type-1, type-2, gestational, latent-autoimmune diabetes of adulthood (LADA), or secondary diabetes.
Diabetes logbook that allows a user to record and monitor blood pressure, carbohydrate intake, exercise regimes, glucose readings, insulin injections, lab results, medication, pulse, temperature, weight, and other vital statistics.
Voice-recognition app that turns spoken words into on-screen text, which can be used as notes or as email.
Speech-recognition app that allows the user to conduct Internet searches on the phone through voice commands.
App to help families with Dravet Syndrome, a rare form of epilepsy that begins in infancy.
The first video game in the history of Dravet syndrome. Together with our friends from CEINPRO, we go a step further in the diffusion of Dravet syndrome.
Now, any user in the world can download Dravet Dream, an interactive game in which the main character is always accompanied by a butterfly overcoming different challenges related to this disease.
The game is in English, Spanish and Basque, it is free and you can download it for both Android and iOS devices.”
Utilises Tangram, a Chinese game in which several shapes can be assembled to make larger shapes, to teach a user how to make more complex shapes (such as a rabbit) in several levels of difficulty.
Shows citizens of EU Member States how to apply for a European Health Insurance Card (EHIC).
Designed to be used during the annual ‘Global Corporate Challenge’ (GCC) walk, a virtual event intended to promote personal fitness and better health. Android app no longer seems available.
Helps a user prepare for medical consultations and appointments by planning what should be said and asked, and by advising what sort of information should be brought to the consultation.
Offers answers to healthcare-related questions, according to condition, health concern, medication or symptom.
Quick, simple, self-applied hearing test that does not require an appointment with a medical professional.
Carbohydrate counter with a food database.
Helps people with diabetes to track and manage blood-sugar levels.
Allows a user to send anonymous photos of any skin condition to a dermatologist.
Medication reminder aimed at people living with HIV/AIDS.
Food and exercise diary aimed at European users.
Recognises currency, and speaks the denomination, enabling people with a visual impairment or blindness to identify and count banknotes.
List of 12,500 food-and-beverage products sold in Spain. For people with gluten intolerance.
Aims to help people with asthma (aged over 12) to manage their condition.
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
“myEyes is a technology ecosystem through which we create “blind compliant” zones, that is, zones adapted for people with vision problems.
It is a pioneering system through which the mobile phone speaks to the person…narrating what is around while giving guidance on how to get from one point to another.
Allows a user to communicate through audio files, images, pictures, symbols, and video (one adult female voice) by touching an image, which the app then reads out.
Allows runs to be mapped, and progress tracked.
List containing information about rare diseases.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
Pedometer tracks steps taken, speed achieved, laps covered, distance traveled, and calories burned.
Reminder to take medications on time.
Scans and recognises text documents, bills, business cards, whiteboards, etc, then allows the text to be shared across computers and with other people through the ‘cloud’.
Contains a trio of facilities for people with psoriasis (and their carers): a calculator to assess the severity of the condition; a questionnaire on the impact of the condition; and a newsfeed on dermatology subjects.
Provides information on how to carry out cardiopulmonary resuscitation (CPR), with a particular emphasis on aiding victims of choking.
Helps people with rheumatism monitor their condition.
Diabetes logbook for recording and tracking blood-glucose levels, blood pressure, carbohydrate intake, and medication.
Vocalises the written content of documents, emails, PDF files, web pages, etc, that the user has copied and pasted into the app, and converts text into speech.
Supports early learning for children with Down’s syndrome.
Interactive app that allows children with Down’s syndrome to learn at their own pace.
“Stroke is not only the No. 4 cause of death in the United States, it’s also a leading cause of severe, long-term disability. That's why it’s important to take action immediately. Research conducted by The American Stroke Association shows that patients who take a clot-busting drug, or thrombolytic, within three hours of their first stroke symptom can reduce long-term disability from ischemic stroke – the most common type, accounting for about 87% of all cases. When you know the signs of stroke, the life you save could be your own or someone else's. Learn to spot the signs of stroke, or spot a stroke F.A.S.T. (Face drooping, Arm weakness, Speech difficulty, Time to call 911) with the help of our mobile app for iphone/ipad. Your life is in your hands."‘Go Red for Women’, American Heart Association (AHA), USA | http://bit.ly/1hgCCXW
App enabling adults and children with communication difficulties to express their views
“The Talking Mats app can be used as an interactive tool to help a person express their opinions, choices, ideas and preferences. The app is specifically designed for people with communication difficulties to express their ideas on a wide range of topics through a structured discussion format.
…Talking Mats incorporate the use of pictures to facilitate discussions. A person can choose the pictures they would like to have available then sort them under a visual scale (e.g. yes/no/maybe).
…The app provides instructions and has a simple display with pictures that can be moved on the screen.
…The app is motivating in itself to use as a person is able to choose between a range of symbols to communicate their preferences to another person. A person can move symbols on the screen to reflect their thoughts and preferences. The app does not produce any sounds and is designed to use interactively during conversations.
…A person can import their own pictures to the Talking Mat, thereby making it more relevant to their day to day living activities.
The app can provide a visual framework to guide conversations and may be used to:
Many people with Autism are visual learners, therefore presenting information in an interactive, visual form may appeal to many people and support a person to express themselves.”Autism apps, a website run by the Autism Association of Western Australia, a not-for-profit service provider, research and patient advocacy organisation | http://bit.ly/2QoIpoB
Is meant to be one of world’s largest directory of public lavatories/restrooms, with over 60,000 listed and mapped by users through crowd-sourcing.
App intended to help first-responding members of the public who happen to be on scene when someone requires cardiopulmonary resuscitation (CPR).
App to help people to identify and avoid triggers for urticaria (hives).
“The severity of Urticaria can vary. The spectrum ranges from a short and mild discomfort up to years of constant torture.
Also, the triggers for Urticaria are different from patient to patient. In some cases the trigger can be identified and easily avoided, in other cases it is never found.
The most important step is to identify the triggers and determine the individual sensitivity threshold. To do that it is essential to run a diary that helps to document the course of the disease.
This app will help those affected with it. Fewer relapses or a decrease in the severity of relapses, is already a success.”Global patient group which developed the app: “Global allergy and asthma patient platform” – (GAAPP) | http://bit.ly/2MQ9rz3
Provides information on vaccines and vaccination.
27-question online questionnaire that assesses a user's risk of anxiety, bipolar disorder, depression, or post-traumatic stress disorder (PTSD).
Exercise instructor and fitness-activity planner.
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