App designed for carers and families of people with ALS (Amyotrophic Lateral Sclerosis)/MND (Motor Neurone Disease).
“Family members of people with ALS become increasingly worried during the disease process and regularly become overloaded.
ALS Center Netherlands developed an app to support relatives of people with ALS. Unique to this app is that it is information from 'peer to peer’; people who have experienced the same will share their knowledge and experience via video messages.
The app 'ALS Naasten, tips & info' can be downloaded for free from the Google Play store and Apple app store.
The app also offers the option of self-monitoring.
In the app, the person caring can keep track of how he or she is doing on a daily basis using a score. If the carer regularly fills in how they feel, they will gain insight into the course of their mood and what influence it has. This gives more sense of control over the situation
A carer of an ALS patient can download the app on their own initiative from the app stores, but healthcare professionals, such as rehabilitation doctors and social workers, can also actively offer the app to loved ones at an early stage.”ALS-Centrum, which helped to develop the app for the patient group Stichting ALS Nederland | https://bit.ly/3bK07cJ
Aimed at the caregivers of people living with Alzheimer’s disease.
App library of apps and websites which support carers.
“Apps4carers app is a new mobile app dedicated to carers which includes a repository of selected apps and websites in partner countries, information and tutorials on their use
Apps for carers is your handy tool, easy to use, to navigate the selected resources from the following categories:
“BookSmart for home allows parents and caregivers to access a library from their mobile phones so they can support their children’s learning after the school day or when physical schools are not in session. BookSmart starts with a free base collection – 75+ great local and international books suitable for young readers and their parents…
…These books support the learning and socio-emotional development of children ages 3 to 12 years. The collection includes books in Arabic, English, Hindi, and Spanish. Books can be read online or offline to save on data costs.”
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
“Benefits are: It contains information on 5 common feeding pitfalls, in a WHAT, WHY, WHAT TO DO format. It explains the WHY a behaviour is occurring, which parents have said is really good and fills a gap in their knowledge. Many feeding resources currently do not explain the psychology and physiology around children's feeding behaviour. It explains not only WHAT to do, but with tangible, interactive tools to help. It allows parents to track their child's eating behaviour, but also their own well-being. This can be very useful for anxious parents who can become entrenched in feeding problems and not objectively see improvements. If parents learn healthier, more adaptive ways to feed their children, then the health of children will be improved. This is both in terms of what is eaten (increasing variety and liking fruit & veg) but also HOW it is eaten (less coercion so children are allowed to learn to regulate their own intake, something that is important in the battle against obesity). It represents a useful preventative resource, that can be used before weaning to educate parents on children's developmentally predictable responses to food, BEFORE problems occur. It's easy to use and an app may be a better medium to reach less engaged families/parents, than having them come and visit their health visitor. It's free to download, so available to all. Drawbacks are: the app does not deal with nutritional information e.g., how much carbs, protein etc a child has eaten / should eat per day.”Review from the developer: a community of mothers at Loughborough University Centre for Research into Eating Disorders, UK | PatientView Form, 2014
Allows users to report their experiences in hospital.
Digital tool helping people in crisis to ask for and coordinate practical help.
“It was through this personal experience that I realised how hard it is to actually coordinate specific and practical help when going through a crisis.
Text messages, ring-arounds, spreadsheets and late night phone calls are difficult, time consuming and often just too much for someone to manage when they are already in the turmoil of a serious life crisis.
I wanted to help my friend but didn’t have the free time to coordinate all the assistance she needed with all the wonderful people who had offered to help…
…Gather My Crew is an online rostering tool that has been developed specifically to support people in crisis, to enable them to ask for and coordinate the practical help they need.
Using the expertise of people who had ‘been there, done that’, as well as the clinicians who supported them, Gather My Crew exists to make sure people going through a crisis get the right kind of help from all their well-meaning friends, family, neighbours and colleagues – without all of the stress that usually comes with coordinating help when a loved one becomes ill.
It is a way to ask for help – and then turns that help into a calendar that tracks and records who is doing what, and when. It even sends reminders and updates to keep everyone connected throughout the time the assistance is needed.
Gather My Crew is a registered charity, and the online tool is free and easy to use.”Susan Palmer, the psychologist who founded the Gather My Crew charity, writing for the Cancer Council patient group in Australia | http://bit.ly/2NqLmix
Allows a carer to list their network of important personal contacts, and to share information with the contacts.
MHA [Mental Health America’]’s 2018 mPower Award goes to Hannah and Charlie Lucas from Cumming, Georgia for the creation of the notOK App™. Hannah, 16, struggled with depression and self-harm last year, her freshman year of high school, after being diagnosed with a chronic illness that led her to be bullied and taunted at school. An idea formed in her head during her lowest moment: an app that would let people know she was not OK. With the assistance of her younger brother, Charlie, 13, the Lucas children got to work on the app idea which would become the notOK App™.
Aims to give people with Parkinson’s disease (and their carers) real-time management of the condition.
Contains a trio of facilities for people with psoriasis (and their carers): a calculator to assess the severity of the condition; a questionnaire on the impact of the condition; and a newsfeed on dermatology subjects.
Allows carers, family and friends to form a network, keeping in touch to arrange the care of a person or patient who needs help. Already available to 7 million people in the UK.
"Neurosupport, in partnership with the Walton Centre and the 5 Boroughs Partnership are promoting Rally Round to improve the support of carers of people with dementia. "Rally Round is an online support network designed to make it easy for you to organise help so that someone close to you can stay independent longer. It's free, safe and private. Neurosupport's Information Officer, Kathyrn Topping, is able to offer help and advice to individuals and groups who would like to start using Rally Round. She can offer one-to-one help in setting up an account and is also available to give talks and demonstrations of the website to groups. Please get in touch to arrange a visit or for more information. Rally Round can be used to support people in a wide variety of situations, over a short or long-term, including those with, or caring for, people with Alzheimer's Disease, Parkinson's Disease, Multiple Sclerosis, Dementia, Mental Health conditions, Cancer, Stroke rehabilitation, recuperation after illness etc"Neurosupport,UK | http://bit.ly/1gpbSYK
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