There are 4 apps in Cystic fibrosis


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CF Hero

CF Hero
developed by Klub nemocných cystickou fibrózou


Allows networking with other people like me / Family / FriendsRemindersSupport to deal with symptoms/disabilitiesSelf-monitoringTrackersInformation

Czech

Cost: Free
App aimed at Czech teenagers with Cystic Fibrosis to help them manage their condition.

“Being a CF teenager: 

Young patients with CF often do not have enough information about their illness and how to effectively fight it. Growing up as a teenager is not an easy process by itself. For cystic fibrosis youngsters, there are even more challenges to tackle. This age of defiance takes its toll and usually brings decreasing therapy adherence.

Building good habits and improving adherence: 

Smartphones are more and more used in healthcare and self-management. The idea is to utilize the enormous potential for the target group which uses the smartphone extensively at every occasion. CF Hero focuses on building a long-term habit of daily exercises (inhalation and airway clearance). The mobile application enables good use of the playful design and psychological triggers to persuade teenagers to adhere to therapy willingly and so that they know why they should stick to it. It also helps to sideline the parents a bit as they very often play the role of a “watchdog” (as kids say) and transfer maximum responsibility onto the child.

 …By using gamification, CF Hero improves the commitment of young patients to treatment. Inhalation is a “game” for which virtual coins (little oxygens) are earned if the user sticks to the plan.

…The app collects data about inhalation therapy and physiotherapy (device, medicines and its doses, frequency) that can be further shared with healthcare practitioner who often doesn’t have regular feedback from the patient.

 …With earned virtual oxygen coins and fulfilled inhalation plan, the user can enter interesting and funny comics stories that show real-life or fictional situations linked to CF. The reward-like mechanism of achieving these stories aims to build long-term habits but also educate the user about different aspects of CF life in an entertaining way.”

Klub nemocných cystickou fibrózou, the patient group which developed the app | https://bit.ly/2UaS15Y


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

CF MedCare

CF MedCare
developed by M-Data SA


Allows networking with other people like me / Family / FriendsSupport to deal with symptoms/disabilitiesSelf-monitoringTrackers

English / French / German

Cost: Free
Treatment reminder to help people who have cystic fibrosis (CF) manage their medication regime.
"CF MedCare is a free app designed by Vertex Pharmaceuticals to help people with cystic fibrosis with their therapeutic regime. It sends you an alert when it's time to take your medications and captures compliance data." Cystic Fibrosis Ireland | Spectrum [Cystic Fibrosis Society newsletter], issue 40, July/August 2014, page 14


Tags: Health, Wellness & Care in the Community (HWCC)

Chest PT

Chest PT
developed by Jason Phipps; Steve Spinney of Gelia advertising agency; Certatim Digital Agency


RemindersSupport to deal with symptoms/disabilitiesSelf-monitoring

English

Cost: Free

Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.

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“Chest PT (free): This is a timer app for manual chest physiotherapy (PT) that allows users to set total position, minutes per position, with alerts to let you know when to change positions. When all positions are completed, your child gets a “good-job” screen, which can be customised with your child’s name on it.” Cystic Fibrosis Newsletter 2013 [patient forum at Children’s Hospital of Michigan], USA | http://bit.ly/1uLx1xP


Tags: Health, Wellness & Care in the Community (HWCC)

My CF Story

My CF Story
developed by Cystic Fibrosis Ireland (Irish National Association for Cystic Fibrosis) with Our Lady’s Children’s Hospital, Crumlin


RemindersSupport to deal with symptoms/disabilitiesSelf-monitoringTrackersInformation

English

Cost: Free
App to help children with Cystic Fibrosis to manage their condition and treatment.

“The app provides children and their parents with their own personal healthcare record which contains information about their CF. The app has been designed to allow children and their parents to keep together all the information that they may need to help manage their CF care.  

The app has three different formats depending on the child’s age, namely 0-5, 6-11 and 12-18 years, and adjusts the phrasing and content to suit the child’s age. As the app was developed by the OLCHC CF unit, much of the content directly relates to how children with CF are managed at OLCHC. We envisage that parents and older children with smart phones will open the app while at CF clinic to access any clinical information or questions which have been logged over the past few months. 

We think of the app like a storybook of lots of important information about CF that families can access whenever they need and this is why we called the app “My CF Story”. We hope that families will find this app empowering and that it will become an integral tool in managing their child’s CF.”

Dr Des Cox, Consultant in Paediatric Respiratory Medicine, Our Lady’s Children’s Hospital, Crumlin, which developed the app with the patient organisation, Cystic Fibrosis Ireland | https://bit.ly/2UdzyWu page 11


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

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