“Being a CF teenager:
Young patients with CF often do not have enough information about their illness and how to effectively fight it. Growing up as a teenager is not an easy process by itself. For cystic fibrosis youngsters, there are even more challenges to tackle. This age of defiance takes its toll and usually brings decreasing therapy adherence.
Building good habits and improving adherence:
Smartphones are more and more used in healthcare and self-management. The idea is to utilize the enormous potential for the target group which uses the smartphone extensively at every occasion. CF Hero focuses on building a long-term habit of daily exercises (inhalation and airway clearance). The mobile application enables good use of the playful design and psychological triggers to persuade teenagers to adhere to therapy willingly and so that they know why they should stick to it. It also helps to sideline the parents a bit as they very often play the role of a “watchdog” (as kids say) and transfer maximum responsibility onto the child.
…By using gamification, CF Hero improves the commitment of young patients to treatment. Inhalation is a “game” for which virtual coins (little oxygens) are earned if the user sticks to the plan.
…The app collects data about inhalation therapy and physiotherapy (device, medicines and its doses, frequency) that can be further shared with healthcare practitioner who often doesn’t have regular feedback from the patient.
…With earned virtual oxygen coins and fulfilled inhalation plan, the user can enter interesting and funny comics stories that show real-life or fictional situations linked to CF. The reward-like mechanism of achieving these stories aims to build long-term habits but also educate the user about different aspects of CF life in an entertaining way.”Klub nemocných cystickou fibrózou, the patient group which developed the app | https://bit.ly/2UaS15Y
Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.
“The app provides children and their parents with their own personal healthcare record which contains information about their CF. The app has been designed to allow children and their parents to keep together all the information that they may need to help manage their CF care.
The app has three different formats depending on the child’s age, namely 0-5, 6-11 and 12-18 years, and adjusts the phrasing and content to suit the child’s age. As the app was developed by the OLCHC CF unit, much of the content directly relates to how children with CF are managed at OLCHC. We envisage that parents and older children with smart phones will open the app while at CF clinic to access any clinical information or questions which have been logged over the past few months.
We think of the app like a storybook of lots of important information about CF that families can access whenever they need and this is why we called the app “My CF Story”. We hope that families will find this app empowering and that it will become an integral tool in managing their child’s CF.”Dr Des Cox, Consultant in Paediatric Respiratory Medicine, Our Lady’s Children’s Hospital, Crumlin, which developed the app with the patient organisation, Cystic Fibrosis Ireland | https://bit.ly/2UdzyWu page 11
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