App to help people cope with a brain tumour.
“BRIAN is an app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour. BRIAN will help you - and those supporting you – to understand how you are doing and to make better-informed decisions.
BRIAN has been designed for all kinds of people, whether you are living with a brain tumour, caring for someone who is, or you work in healthcare or research.
BRIAN allows you to record your entire brain tumour experience in one place - you can add symptoms, treatments, side effects, appointments and much more. You can also share your data with anyone you trust – such as family, carers and your healthcare team – enabling them to better understand your situation.”| Brain Tumour Charity, the patient organisation which developed the app
“OurBrainBank is a non-profit dedicated to moving glioblastoma from terminal to treatable, powered by patients.
Our key tool is the OurBrainBank app which helps people manage their disease as well as provide much-needed data for medical researchers…
…As you progress, you may view your data at any time: access reports via the menu icon (bars at the top left of the app screen) and select ‘my reports’. Compare different symptoms and view your progress over time.
You may share your data with other people, including your healthcare team, so they can see how your symptoms may have changed. This may help you understand the relationship between your treatments and your symptoms.
The app allows you to self-track neurological function with games that test balance, ability to compare numbers, and speed of neurological function. They’re quite addictive!
The app can be used to track health data such as your weight, blood pressure, or blood sugar. There’s also a neat journal feature, so you can record how you’re doing.
We plan to publish our findings widely, sharing the insights gleaned from the aggregated data, and driving more research to crack glioblastoma.We encourage you to continue to participate after your first 100 days. Your input is crucial to the success of the mission — to turn GBM from terminal to treatable” OurBrainBank, the not-for-profit US patient group which developed the app | https://bit.ly/3bpP746
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