App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Diabetes management log.
The AliveCor® Heart Monitor: Mobile ECG device that,provides individuals with the ability to track heart health anywhere, anytime at an affordable cost.
“The ‘AliveECG’ works in conjunction with the free AliveECG app and is designed for medical professionals, patients and health-conscious individuals to record, display, store and transfer single-channel electrocardiogram (ECG) readings. These recordings could be saved on the mobile device or shared with others (such as your doctor) via email. AliveCor’s Heart Monitor has been used in several clinical trials, and demonstrated accuracy and efficiency to produce a single-channel rate-and-rhythm assessment. Arrhythmia Alliance members have the chance to purchase the app with an exclusive discount of £5, using voucher code ‘hrc2013a’ when bought from Amazon. A percentage of the sale will also be given to Arrhythmia Alliance.”
Arrhythmia Alliance (AA), UK | http://bit.ly/1nlLnCa
App providing information on Alzheimer’s Disease, primarily for clinicians, but also including support for patients and carers.
“The free Alzheimer’s Association® Alzheimer's Disease Pocketcard app puts reliable information and assessment tools at your fingertips.
Contains information on detecting, treating and managing arthritis.
Mobile website to help people self-manage their asthma
“Asthma Buddy has helped hundreds of Australians manage their asthma for many years. We hope this new useful tool can help you take control of your asthma and improve the quality of life for you and your family.”
As a leading organisation for asthma care, the National Asthma Council Australia promotes best-practice care to people with asthma and their families.
…“Asthma Buddy is a digital Asthma Action Plan that lives in your pocket,” said Siobhan Brophy, Chief Executive Officer, National Asthma Council Australia.
“You can refer to it to know what daily asthma medication to take. It will also help you recognise if your asthma is getting worse and give you advice on what you should do in response.
…We designed Asthma Buddy with end users in mind,” We know mums always have a million things on the go, so we want to help them stay on top of their children’s asthma management.”
The launch of the Asthma Buddy mobile website is funded by GSK Australia. The National Asthma Council retained editorial control.The National Asthma Council, the Australian charity which developed the app. | http://bit.ly/2zmNKEX
First aid app for children and babies
“This free app provides simple, easy-to-learn skills to help a baby or child in a first aid emergency.
It is packed with useful tips, animations, and video clips. You can test your knowledge using the app’s built-in first aid quizzes. There is also a handy device to record your child's medication needs and any allergies.
The information you need is all hosted on the app itself, meaning no internet connection is needed, making it fast and easy to access.”Red Cross UK, developer of the app | http://bit.ly/2KLCgeK
Diabetes management app intended to simplify diabetes management, and to be used by adolescents and younger people with diabetes.
App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Assesses whether a user might be at risk of blackouts.
Tool to track bladder health in both men and women.
Allows a user to record diabetes-related personal information, including blood glucose levels, carbohydrate consumption, and medication.
Provides information about breast cancer, and about treatment of the condition.
An app for medical professionals to purchase, and then to pass on to patients who are living with a mental health problem.
Provides patients (and their carers and families) with information on up to three cancers (breast, lung and prostate), supported by interactive illustrations, photos and videos. Now only available via website. The app version is no longer supported.
Password-protected personal health records app.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
Designed for people with inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, and who are scheduled to receive a colonoscopy.
Allows the user to remain connected with the DAFNE Online support network for people with type-1 diabetes who have attended the ‘Dose Adjustment For Normal Eating’ (DAFNE) course.
Diabetes management app for people with type-1, type-2, gestational, latent-autoimmune diabetes of adulthood (LADA), or secondary diabetes.
Training and educational app for use with the Dexcom 7 glucose-management sensor.
Diabetes data-management app that allows the user to log and track factors which influence blood-sugar level.
Diabetes diary for recording and tracking blood-glucose readings, carbohydrate intake, and insulin dosing.
Allows a user with diabetes to track A1c, blood-glucose levels, blood pressure, food intake, medication, weight, etc.
Logs blood glucose, blood-fat and blood-pressure levels, calories, carbohydrates, HbA1c, insulin, ketones, and weight.
Diabetes logbook that allows a user to record and monitor blood pressure, carbohydrate intake, exercise regimes, glucose readings, insulin injections, lab results, medication, pulse, temperature, weight, and other vital statistics.
Carbohydrate-/meal-logging app and medication calculator.
Reminder to take medications on time.
Designed to help the user manage medication compliance.
Features the activities of Belgium-based multi-stakeholder organisation specialising in cancer, the European CanCer Organisation (ECCO).
Diary that allows the user's epilepsy-relevant medical history to be logged.
Helps people with epilepsy manage and improve their own health via seizure-management tools.
Intended to help people with epilepsy manage their condition, together with relevant medical professionals.
Helps to track and record haemophilia-A factor-VIII infusions.
Catalogue of 80,000 formulations of 18,000 drugs available in Italy (and Europe). Searchable by characters, types of medicine, manufacturer, side effects, interactions, and others.
For people with fibromyalgia. Tracks pain, fatigue, sleep, mood, medications, and flare ups.
A tool to help people at risk of osteoporosis to calculate their bone fragility.
“GDm-Health has the potential to positively affect patient care, because people with gestational diabetes would be better able to interact with their healthcare team. GDm-Health removes bias in patient reporting of blood glucose levels, helping to improve trust.
It can potentially decrease unnecessary hospital visits and provide the midwife with more information for clinical decisions.
GDm-Health could improve patient health outcomes. It is unlikely that using GDm-Health would significantly effect on family, work or home life any more than usual blood glucose monitoring.
The only possible drawback could be anxiety around personal data handling, but this could be mitigated by assuring users of robust security.
The system is more likely to benefit patients who embrace new technology, particularly those who already use smartphones. For many users, especially those very familiar with smartphones, no special training would be needed.”
Expert contribution from the patient organisation to a medtech assessment paper by the UK National Institute for Health and Care ExcellenceDiabetes UK, patient organisation that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. | http://bit.ly/2G0nNxE
Complementary logbook app that, when combined with the developer’s proprietary ‘Sync cable’, and various manufacturers’ compatible blood-glucose meters, saves a user with diabetes from having to manually enter blood-glucose readings.
Guide for people with diabetes (and their carers) in the emergency administration of the Eli Lilly product, Glucagon.
Diabetes management app that allows blood glucose, blood pressure, body-mass index (BMI), carbohydrate intake, exercise, HbA1c, insulin and medication doses, and weight to be tracked.
Data-storage utility for people with diabetes.
Diabetes management app for recording and tracking blood glucose, food intake, insulin and medication.
App for people living with HIV/AIDS.
Helps a user prepare for medical consultations and appointments by planning what should be said and asked, and by advising what sort of information should be brought to the consultation.
Offers answers to healthcare-related questions, according to condition, health concern, medication or symptom.
App designed to help people with heart diseases to manage their condition.
“The Heart Failure Health Storylines mobile app is created with input from people with heart failure and congestive heart failure (CHF) so that the right health tools are available to you. Now it’s easy to record your symptoms, vital signs, medications, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.
Choose from the following health tools to better manage and monitor heart failure:
Infusion log for people with haemophilia.
Helps people with diabetes to track and manage blood-sugar levels.
Contains a video on how women should properly check their breasts for cancer. Is approved by NHS Choices as being safe.
Allows a user to send anonymous photos of any skin condition to a dermatologist.
Headache diary that allows the number of headaches, their duration and severity, the degree of disability and impact, medication and usage, symptoms, and triggers to all be tracked.
Medication reminder aimed at people living with HIV/AIDS.
Helps the user work out what medical condition they may have.
"Captures and records the user’s pulse (beats per minute), with a visual trace for evidence of atrial fibrillation (AF). Provides relevant information on why knowing the pulse is important (extend to AF). Enables comparison by the user of the recorded trace with examples of normal, tachycardia, bradycardia, and AF. Saves captured traces for future reference, for instance with healthcare professionals. Provides instructions at all stages of use. Enables sharing of traces via email and social media."Arrhythmia Alliance (A-A), UK patient group | PatientView survey, November 2013
Bi-directional conversion calculator for people with diabetes.
Visual consultation programme which aims to improve the chances of conception by bringing together the medical and spiritual factors that influence fertility.
Diabetes management app for recording and tracking A1c levels, blood-glucose levels, blood pressure, carbohydrate intake, doctor visits, exercise activities, insulin or oral medication, weight, and other medical records.
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
Improves doctor-patient communication by helping the user answer questions that the healthcare provider wishes to put to them.
Helps to manage medications by storing a list of the user's medicines, doctors and pharmacists.
“ ‘MedTracker’. It lists my medications, and gives a very audible reminder, even when in silent mode. It is a USA-based app, though, and it is also not very easy to use. If I want to skip a dose, for instance, it keeps reminding me I need to take the dose, even if I want to skip it.”Person with arthritis, UK | PatientView survey, August 2014
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
Medication manager and reminder app for people with a mental health problem.
“This new app is really positive for anyone that is still working. It’s extended my working life really because…previously I was having to work around diary dates to get me to the clinic. Now I can test in the morning at home…I can test myself on the train going up and down from London….It’s given me quite a lot of freedom.”Martin Smith, patient with atrial fibrillation | http://www.inhealthcare.co.uk/resource/inr-self-testing-martin-smith/ Including recording of interview on Radio Yorkshire
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
Portable health record that can be shared with doctors or anyone else involved in a user’s healthcare.
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Aims to help people on oral anticoagulant therapy (OAT) to monitor and control their medication routine.
Helps people with diabetes manage their condition by tracking blood glucose, blood pressure (BP), exercise, food, medication, pulse, and weight.
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
Tool to help patients manage chronic pain or sports injuries.
Designed to help medical professionals recognise the symptoms of Parkinson’s disease (PD), and then diagnose and treat the condition.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
You can view your history and trends…The history shows how you did on different tests and the trends show your baseline, performance, PD symptoms, fatigue and medication over time… enabling you to continually monitor your performance with respect to when you took medication for example. There is also a ‘diary only’ option which allows you to simply look at your PD symptoms, fatigue and medication over time.”Leah Mursaleen, Parkinson’s Movement, a patient group aiming to connect patient experience with scientific expertise | http://parkinsonsmovement.com/devices-and-apps/dont-worry-be-appy/
Reminder to take medications on time.
Reminder to take medications on time.
Simple, one-page, slide-bar app that allows a user to convert A1c level to estimated average blood-glucose level, and vice-versa.
Contains a trio of facilities for people with psoriasis (and their carers): a calculator to assess the severity of the condition; a questionnaire on the impact of the condition; and a newsfeed on dermatology subjects.
PTSD Coach provides service members, veterans, their friends and families with dependable resources they can trust. Many service members who experience PTSD symptoms can benefit from care and support, but some fear that they may be considered weak or that leaders or unit members might lose confidence in their abilities if they seek care. The information available through the PTSD Coach app can help service members and their loved ones overcome those concerns and obtain accurate information about PTSD and find the support they need.”Real Warriers Campaign, organised by the Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE). The organisation collaborates with a civilian agencies and advocacy groups. | http://bit.ly/2lyqGMf
Tracks the user’s remaining amounts of medications, displaying a countdown of the quantities left, and indicating how many days, weeks, or months, remain of each medication.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) to record, track, and share their vital renal-health information.
Prescription reminder that alerts the user to the need to take a prescription.
App and VR game designed to crowdsource baseline data of normal ageing navigation skills to aid dementia research.
“People with dementia can face real challenges with navigation, and it’s a problem that can occur early on in the condition. However, we still don’t have reliable data on how navigational abilities can change in the healthy brain across life.
Playing the game for just a few minutes will provide this completely anonymous data to help improve our understanding of navigational cognition. We’ll create a benchmark to help determine what goes wrong in the brain for people with dementia.
Alzheimer’s Research UK is helping support the analysis of the data the game generates, which could pave the way for improved approaches to early disease detection, in turn helping improve people’s chance of benefiting from new or existing treatments earlier.”Alzheimer’s Research UK, the charity involved in developing the app and analysing the resulting data. | http://bit.ly/2Nwel3X
Diabetes logbook for recording and tracking blood-glucose levels, blood pressure, carbohydrate intake, and medication.
Skin-cancer prevention tool that provides an on-the-spot risk assessment.
The application provides an insightful and interesting way to provide useful information on sexual and reproductive health, including prevention, testing and treatment of sexually transmitted diseases, in accordance with valid scientific and professional knowledge.
Whether it's a risk check, a quiz of knowledge, information or recommendations, we believe everyone will find something for themselves. With responsible sexual behaviour and regular medical examinations, this is a good way to improve your information and your own knowledge to preserve and improve your sexual health.”Developers, including patient association Croatian Association for HIV and viral hepatitis | http://bit.ly/2swP8Bj
Spruce is an app developed by the British Liver Trust (@livertrust) to help people drink less frequently
“Unlike many other alcohol-related apps that try to get their user to do the impossible task of logging down every drink on a night out, Spruce is the first which focuses on the frequency of drink throughout the week.”
“Spruce users choose a weekly goal of three consecutive days of no drinking, and choose which days they will be ‘dry’. The user is then given gentle reminders on their progression, allowing them to monitor their intake and given ideas of non-alcohol activities to engage in.
For many people it’s easy to fall into the habit of having a drink most nights. Drinking even small amounts frequently is unhealthy and can lead to liver disease. But taking just three consecutive days off a week can reduce the chances of liver damage.
Three consecutive days is both achievable and beneficial; it helps people plan their week so that they can still socialise and have a drink if they want to, but are also aware that they need to take some time off drinking alcohol.
In our controlled test people who used Spruce were three times more likely (64%) to achieve three days dry than the control (23%).”British Liver Trust, the UK patient organisation which developed the app | http://bit.ly/2HI8VSa
Users choose a theme they want to explore such as ‘perfectionism’ and 'comparing myself to others' and scroll through a list of associated symptoms and unhelpful beliefs. They can read or listen to short insights that challenge those beliefs.
The app allows users to share an insight with others, set up reminders to read or listen to it at a certain time of the day, and set up trigger alerts where the insight pops up on screen when the user goes to certain locations.”App library funded by the New Zealand Ministry of Health, and curated by the health website `Health Navigator’, which includes representation from patient groups. | http://bit.ly/2AJwd53
App and website for people with rheumatoid arthritis to identify how day-to-day activities affect their condition.
“Track what you do and how you feel on a daily basis – even when you’re on the go! The newly relaunched Track + React app can be used as a web tool on arthritis.org as well as on your smartphone via the app.
Track + React features a completely revamped free mobile app available for download for iPhone and Android devices that allows you to track key daily activities related to your rheumatoid arthritis (RA) wherever you are…
…Tracking certain activities throughout the day can be helpful for identifying health trends that may impact the severity of your rheumatoid arthritis.
This easy-to-use tool will reveal which daily activities are having an impact on you and your RA disease activity. You may discover that when you take a walk, you don’t feel as stiff the next day or when you are less stressed your mood is much happier.
You can track what you do and how you feel on a daily basis within six key categories:
The tool will calculate the information you provide and produce a graph so you can see overtime how your daily activities play into your health and arthritis impact.
There may be a connection between what you do and how you feel. You can also print your Arthritis Impact graph and share the results with your doctor, which may help get more out of your appointments.”Blog from the Arthritis Foundation, the non-profit organisation which develop the app and online tool. | http://bit.ly/2M17UcH
Allows a user to check for skin cancer by conducting self examination.
App to help people to identify and avoid triggers for urticaria (hives).
“The severity of Urticaria can vary. The spectrum ranges from a short and mild discomfort up to years of constant torture.
Also, the triggers for Urticaria are different from patient to patient. In some cases the trigger can be identified and easily avoided, in other cases it is never found.
The most important step is to identify the triggers and determine the individual sensitivity threshold. To do that it is essential to run a diary that helps to document the course of the disease.
This app will help those affected with it. Fewer relapses or a decrease in the severity of relapses, is already a success.”Global patient group which developed the app: “Global allergy and asthma patient platform” – (GAAPP) | http://bit.ly/2MQ9rz3
Contains informational tools that can guide a user in making decisions about personal health.
27-question online questionnaire that assesses a user's risk of anxiety, bipolar disorder, depression, or post-traumatic stress disorder (PTSD).
Pill reminder with customisable features
“I use an app called 'Your Medicine 1-2-3 Pro' to track my medication dosage, timing, when I need to fill my prescriptions, and how often I'm using my PRNs (medicines that are taken as needed) ... my doctor asked me to track that. It's simple, hugely customisable, and I don't find it annoying.”
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