Allows a user to send a telephone message, text message, and GPS location to the emergency services in Iceland.
For adults with attention-deficit hyperactivity disorder (ADHD) (whether diagnosed or undiagnosed).
Interactive app on Facebook, intended to raise awareness of end-of-life issues.
Austrian first responder and first aid app.
“The Free App (for Android and iOS) of Arbeiter Samariter Bund Österreichs helps with first aid. In an emergency, instructions can be found, which guide the first responder step by step with images and text.
From protection at an accident site, to how to resuscitate after a cardiac arrest, the app provides vital tips.
National and international emergency numbers can be dialed with the push of a button. Now you can also display the location of the nearest defibrillator on a map.
The app can be downloaded for free from the iTunes or Google Play store and is optimized for smartphones and tablets.
Of course, the app does not replace a first aid course, but it can provide the security in an emergency to help quickly and without hesitation.”Arbeiter-Samariter-Bund Österreichs, the Austrian first responder and first aid not for profit organisation which developed and launched the app. | http://bit.ly/2AzXZ63
Intended to help people with chronic fatigue syndrome (CFS) track and monitor their daily activity levels.
App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Provides information on inflammatory bowel disease (IBD), dieticians and hospitals, and on the activities of France-based patient group, Association Francois Aupetit (AFA).
List of gluten-free products for people with gluten intolerance.
Alcohol consumption tracker and drinks diary intended to help a user change drinking habits.
The AliveCor® Heart Monitor: Mobile ECG device that,provides individuals with the ability to track heart health anywhere, anytime at an affordable cost.
“The ‘AliveECG’ works in conjunction with the free AliveECG app and is designed for medical professionals, patients and health-conscious individuals to record, display, store and transfer single-channel electrocardiogram (ECG) readings. These recordings could be saved on the mobile device or shared with others (such as your doctor) via email. AliveCor’s Heart Monitor has been used in several clinical trials, and demonstrated accuracy and efficiency to produce a single-channel rate-and-rhythm assessment. Arrhythmia Alliance members have the chance to purchase the app with an exclusive discount of £5, using voucher code ‘hrc2013a’ when bought from Amazon. A percentage of the sale will also be given to Arrhythmia Alliance.”
Arrhythmia Alliance (AA), UK | http://bit.ly/1nlLnCa
Aimed at the caregivers of people living with Alzheimer’s disease.
App providing information on Alzheimer’s Disease, primarily for clinicians, but also including support for patients and carers.
“The free Alzheimer’s Association® Alzheimer's Disease Pocketcard app puts reliable information and assessment tools at your fingertips.
Helps people in the UK who are homeless (and their providers of social care) to locate resources within a given geographical radius of their phone.
Game involving characters modelled on birds and pigs, and which is said to feature physics-based gameplay.
Chromotherapy app intended to reduce mental stress by demonstrating the therapeutic value of 256 shades of colour.
GPS tracking allows the app to show the pharmacies in the user’s local area.
Aims to help the user overcome fear of flying.
App library of apps and websites which support carers.
“Apps4carers app is a new mobile app dedicated to carers which includes a repository of selected apps and websites in partner countries, information and tutorials on their use
Apps for carers is your handy tool, easy to use, to navigate the selected resources from the following categories:
Provides information on how older people, and people with a disability, can find solutions to a wide range of activities in the home that might present them with problems.
Mobile website to help people self-manage their asthma
“Asthma Buddy has helped hundreds of Australians manage their asthma for many years. We hope this new useful tool can help you take control of your asthma and improve the quality of life for you and your family.”
As a leading organisation for asthma care, the National Asthma Council Australia promotes best-practice care to people with asthma and their families.
…“Asthma Buddy is a digital Asthma Action Plan that lives in your pocket,” said Siobhan Brophy, Chief Executive Officer, National Asthma Council Australia.
“You can refer to it to know what daily asthma medication to take. It will also help you recognise if your asthma is getting worse and give you advice on what you should do in response.
…We designed Asthma Buddy with end users in mind,” We know mums always have a million things on the go, so we want to help them stay on top of their children’s asthma management.”
The launch of the Asthma Buddy mobile website is funded by GSK Australia. The National Asthma Council retained editorial control.The National Asthma Council, the Australian charity which developed the app. | http://bit.ly/2zmNKEX
Logs asthma activity, medicines, triggers, and peak-flow readings in diary and graph form.
Allows a user with asthma to record event information (such as environmental conditions, symptoms, treatments, and vital signs) that may be relevant to asthma.
Provides information on recognising signs of a stroke, and techniques of assistance.
First aid app for children and babies
“This free app provides simple, easy-to-learn skills to help a baby or child in a first aid emergency.
It is packed with useful tips, animations, and video clips. You can test your knowledge using the app’s built-in first aid quizzes. There is also a handy device to record your child's medication needs and any allergies.
The information you need is all hosted on the app itself, meaning no internet connection is needed, making it fast and easy to access.”Red Cross UK, developer of the app | http://bit.ly/2KLCgeK
Displays exercises suitable for people with ankylosing spondylitis (AS).
Designed to guide a user through a panic attack, or through an episode of raised anxiety.
App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Provides real-time feedback, and visual and audio instructions, on how to learn and practice hands-only cardiopulmonary resuscitation (CPR).
Provides advice helpful to people with anxiety, debt, stress, or work problems.
App for people at risk of or diagnosed with bowel cancer
“In the era of personalised medicines and oral chemotherapy taken at home, Bowel Cancer Australia is getting Aussies ready for the future of patient care with a new bowel cancer app….
The comprehensive bowel cancer app…provides easy access to accurate information about bowel cancer, its prevention, diagnosis and management.
"Our bowel cancer app is responding to the changing needs of bowel cancer patients and their families or carers…For example, as more oral chemotherapies become available enabling people to receive treatment at home, we expect to see a shift away from written patient treatment diaries to online diaries that can then be emailed to the patient's specialist."
"We've also designed the app to be easily personalised. It has the capability to store screening reminders, treatment and mood diary entries and even record notes from medical appointments."
UPDATE: Bowel Cancer App 2.0
“The updated Bowel Cancer App 2.0 retains the comprehensive bowel cancer content frequently accessed in the first version of the app including the ‘Need to Know’, ‘How to Test’ ‘Living With’ and ‘Need to Ask’ sections, but also offers users additional benefits previously unavailable.
A new ‘Motivate Me’ feature enables people to monitor their diet and lifestyle on a daily basis as one way to help reduce their bowel cancer risk. Users can also connect one-to-one through the App as part of Bowel Cancer Australia’s Peer-to-Peer support and buddy network, Australia’s only national bowel cancer support group for patients and loved ones.
Other valuable features include screening tips and tools, a list of questions to ask throughout the patient journey, a customisable treatment and mood diary, recipes and a meal planner.
Consistently featuring in the top 100 medical apps in both the App Store and Android Store, the Bowel Cancer Australia App provides users with answers to questions about bowel cancer which many people feel uncomfortable asking and continues to make it easier for people to access relevant bowel cancer information.”Bowel Cancer Australia, the patient charity which developed and updated the app. | http://bit.ly/2QgTtDW
Tool for viewing the brain in 3D.
Information on how to check breasts, and on lifestyle choices for decreasing the risk of breast cancer.
App for parents with children under five to help them deal calmly with problems and frustration.
“For some kids, managing everyday feelings can be a big challenge. Apps like ‘Breathe, Think, Do with Sesame’ can model more productive ways to deal with emotions.
The app shows kids a familiar face from Sesame St having trouble with something such as tying their shoes or going to bed. The app helps kids realise that everyone has moments like this in their lives.
And it also shows them how to use calming exercises like breathing deeply along with a monster friend. That can help kids manage their frustration.”
App intended to show the correct length of time when brushing teeth.
Food and calorie tracker with a database of a million-plus foods.
Weight- and nutrition-management app that allows dietary goals to be set.
Allows a user to find nutritional information about food, and to track meals, exercise and weight.
Carbohydrate-counting app intended to help children with diabetes gain the skills required to count carbohydrates.
Allows the user to count the amount of calories and carbohydrates contained in food and drink by consulting the app's 1,400-plus photographs of food and drink items.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
Allows a carer to track the contents of a person's medical records.
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
Allows a user to pick a charity (from a provided list), and raise money for it by sponsored cycling, running, or walking.
Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.
App aimed at 11-25 year olds who have been bereaved.
The app has been created by a group of bereaved young people working directly with Child Bereavement UK.
It has been developed for 11-25 year olds who have been bereaved of someone important to them. It can also be used by friends, teachers, parents and professionals who would like to know how to support bereaved young people.
The app has information about:
The app aims to help bereaved young people feel less alone and to inspire others on how to support them.Child Bereavement UK, the charity which developed the app. | http://bit.ly/2ONrDeg
“Benefits are: It contains information on 5 common feeding pitfalls, in a WHAT, WHY, WHAT TO DO format. It explains the WHY a behaviour is occurring, which parents have said is really good and fills a gap in their knowledge. Many feeding resources currently do not explain the psychology and physiology around children's feeding behaviour. It explains not only WHAT to do, but with tangible, interactive tools to help. It allows parents to track their child's eating behaviour, but also their own well-being. This can be very useful for anxious parents who can become entrenched in feeding problems and not objectively see improvements. If parents learn healthier, more adaptive ways to feed their children, then the health of children will be improved. This is both in terms of what is eaten (increasing variety and liking fruit & veg) but also HOW it is eaten (less coercion so children are allowed to learn to regulate their own intake, something that is important in the battle against obesity). It represents a useful preventative resource, that can be used before weaning to educate parents on children's developmentally predictable responses to food, BEFORE problems occur. It's easy to use and an app may be a better medium to reach less engaged families/parents, than having them come and visit their health visitor. It's free to download, so available to all. Drawbacks are: the app does not deal with nutritional information e.g., how much carbs, protein etc a child has eaten / should eat per day.”Review from the developer: a community of mothers at Loughborough University Centre for Research into Eating Disorders, UK | PatientView Form, 2014
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
App designed for people who have had strokes, providing practical support and information.
“With support from the Patient Centered Outcomes Research Institute (PCORI), this customizable mobile app has been developed for stroke survivors specifically based on their feedback and needs.
The app provides the stroke survivor or their caregiver with the ability to:
The app was developed through a collaboration with National Stroke Association, The State University of New York (SUNY) Downstate Medical Center, City University of New York (CUNY), and The Arthur Ashe Institute for Urban Health.”The US National Stroke Association, the not-for-profit organisation that helped to develop the app. | http://bit.ly/2QslTLl
App to helps families of children with rare diseases to communicate with health professionals.
“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals.
The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test.
Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…
… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups), which advised on the app’s development | http://bit.ly/2PdolRC
App that aims to put a ‘human face’ to worldwide aid and poverty statistics, and to demonstrate progress towards United Nations (UN) Millennium Development Goals (MDGs).
Diabetes data-management app that allows the user to log and track factors which influence blood-sugar level.
Carbohydrate counter, insulin calculator, and food-nutrition-information app.
Diabetes management app for anyone with diabetes (whether taking insulin, other medications, or just involved with diet and exercise). Dietary advice and good information is provided.
App to help young people with special needs to participate more safely and confidently when using social media and the internet.
“DigiSafe is an app and website that contains learning tools for young people with special needs about NemID, Internet commerce, social media and E-box.
The purpose of the development project DigiSafe is to:
Reminder to take medications on time.
Cookbook listing healthy foods.
Designed to help the user manage medication compliance.
App to help families with Dravet Syndrome, a rare form of epilepsy that begins in infancy.
The first video game in the history of Dravet syndrome. Together with our friends from CEINPRO, we go a step further in the diffusion of Dravet syndrome.
Now, any user in the world can download Dravet Dream, an interactive game in which the main character is always accompanied by a butterfly overcoming different challenges related to this disease.
The game is in English, Spanish and Basque, it is free and you can download it for both Android and iOS devices.”
Diabetes-management journal for recording and tracking blood-glucose levels, carbohydrate intake, and insulin dosages - with reminders when to test your blood glucose
Intended to help people with epilepsy manage their condition, together with relevant medical professionals.
Utilises Tangram, a Chinese game in which several shapes can be assembled to make larger shapes, to teach a user how to make more complex shapes (such as a rabbit) in several levels of difficulty.
Shows citizens of EU Member States how to apply for a European Health Insurance Card (EHIC).
Aims to help the user overcome fear of flying.
Intended to improve the chances of conception.
Diet and weight-loss journal that offers an online ‘account’ to track food consumption and exercise levels.
Allows users to report their experiences in hospital.
Provides nutritional information on foods, with the aim of helping a user with diabetes to lose weight, and to manage diet.
Digital tool helping people in crisis to ask for and coordinate practical help.
“It was through this personal experience that I realised how hard it is to actually coordinate specific and practical help when going through a crisis.
Text messages, ring-arounds, spreadsheets and late night phone calls are difficult, time consuming and often just too much for someone to manage when they are already in the turmoil of a serious life crisis.
I wanted to help my friend but didn’t have the free time to coordinate all the assistance she needed with all the wonderful people who had offered to help…
…Gather My Crew is an online rostering tool that has been developed specifically to support people in crisis, to enable them to ask for and coordinate the practical help they need.
Using the expertise of people who had ‘been there, done that’, as well as the clinicians who supported them, Gather My Crew exists to make sure people going through a crisis get the right kind of help from all their well-meaning friends, family, neighbours and colleagues – without all of the stress that usually comes with coordinating help when a loved one becomes ill.
It is a way to ask for help – and then turns that help into a calendar that tracks and records who is doing what, and when. It even sends reminders and updates to keep everyone connected throughout the time the assistance is needed.
Gather My Crew is a registered charity, and the online tool is free and easy to use.”Susan Palmer, the psychologist who founded the Gather My Crew charity, writing for the Cancer Council patient group in Australia | http://bit.ly/2NqLmix
“GDm-Health has the potential to positively affect patient care, because people with gestational diabetes would be better able to interact with their healthcare team. GDm-Health removes bias in patient reporting of blood glucose levels, helping to improve trust.
It can potentially decrease unnecessary hospital visits and provide the midwife with more information for clinical decisions.
GDm-Health could improve patient health outcomes. It is unlikely that using GDm-Health would significantly effect on family, work or home life any more than usual blood glucose monitoring.
The only possible drawback could be anxiety around personal data handling, but this could be mitigated by assuring users of robust security.
The system is more likely to benefit patients who embrace new technology, particularly those who already use smartphones. For many users, especially those very familiar with smartphones, no special training would be needed.”
Expert contribution from the patient organisation to a medtech assessment paper by the UK National Institute for Health and Care ExcellenceDiabetes UK, patient organisation that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. | http://bit.ly/2G0nNxE
Designed to be used during the annual ‘Global Corporate Challenge’ (GCC) walk, a virtual event intended to promote personal fitness and better health. Android app no longer seems available.
Blood-sugar and weight tracker.
Allows the user to search for gluten-free food products in the Netherlands.
App that aims to help a user manage blood-sugar levels through healthy eating.
Helps the user to learn meditation. Click on browser link to see how Headspace works or go to https://www.youtube.com/watch?v=kEpOF7vUymc
Quick, simple, self-applied hearing test that does not require an appointment with a medical professional.
App designed to help people with heart diseases to manage their condition.
“The Heart Failure Health Storylines mobile app is created with input from people with heart failure and congestive heart failure (CHF) so that the right health tools are available to you. Now it’s easy to record your symptoms, vital signs, medications, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.
Choose from the following health tools to better manage and monitor heart failure:
Carbohydrate counter with a food database.
App and online tool to help people with mental health needs to access patient groups, charities and other sources of support across the UK
“Hub of Hope believes that no matter what you're going through, you shouldn't have to do it alone. Find services local to you using geolocation technology.
The stigma associated with mental health can make it difficult to talk about, however there are services out there with people who understand and are ready to help….
…Using the Hub of Hope is completely free and confidential. You are not required to provide any personal information or pay for use. It is simply there to say, if you should ever need help, whether for you or somebody you are looking after, we’ll make it easier to find.
The Hub of Hope has already been described as a vital and lifesaving tool by charities and mental health trusts.
In less than a year since its launch, the Hub of Hope has had
Educational app about ankylosing spondylitis (AS).
Blood pressure tracking-and-analysis tool.
Educational app intended to show the user how the UK-based charity Depaul UK works with homeless young people, and to give the user an idea of a typical young homeless person’s daily activities and requirements.
Measures heart rate and pulse.
Diabetes-management and personal-health app that allows a user to record and track personal health-related information.
Medication reminder aimed at people living with HIV/AIDS.
Allows a carer to list their network of important personal contacts, and to share information with the contacts.
Allows immediate access to articles in four American Diabetes Association (ADA) journals: ‘Diabetes’, ‘Diabetes Care’, ‘Diabetes Spectrum’, and ‘Clinical Diabetes’.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) make better decisions about diet. Although available on Android, the developer's website http://www.kidneydiet.com/ states the app is no longer available or supported.
Food and exercise diary aimed at European users.
Allows audio, images, and video relevant to cancer symptoms, and to life with cancer, to be stored in a logbook, and shared with carers, doctors, family, etc.
Interactive app designed to guide adult and child users through evidence-based treatment, called ‘exposure and response prevention’ (ERP), for obsessive-compulsive disorder (OCD).
Provides people with HIV/AIDs with up-to-date information on potential drug interactions between HIV drugs and other drugs that the individual may be prescribed (also covers over-the-counter, recreational, and alternative medications).
Utilises illustrations to teach lessons about personal safety and home safety (such cold weather safety, sport safety, electrical safety, and medicine cabinet safety). Good for people with autism.
Allows a user to set weight-loss goals, establish a daily calorie budget to meet them, and to record food consumption and exercise levels.
App designed to support patients in managing lung cancer from diagnosis through to treatment.
“The LUNGevity Lung Cancer Navigator is a customizable mobile app that puts your entire support network in the palm of your hand.
The app was created for lung cancer patients, family caregivers, and support team members to manage life after a lung cancer diagnosis. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friends and family.”Longevity Foundation, the US-based patient advocacy and research charity for lung cancer which developed the app | http://bit.ly/2PQexRu
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
Web-based app for detecting disease outbreaks earlier than conventional surveillance methods.
Collection of over 2,500 medical terms, explained and cross-referenced.
Aims to help the user overcome fear of flying.
Helps to manage medications by storing a list of the user's medicines, doctors and pharmacists.
“ ‘MedTracker’. It lists my medications, and gives a very audible reminder, even when in silent mode. It is a USA-based app, though, and it is also not very easy to use. If I want to skip a dose, for instance, it keeps reminding me I need to take the dose, even if I want to skip it.”Person with arthritis, UK | PatientView survey, August 2014
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
App game to raise awareness of cause and impact of mitochondrial disease.
“Who do YOU want to challenge to be the new hero of the mitoverse?
Share the Mito Warrior app with one of your friends to see who can restore power to the mitoverse and to learn more about mitochondrial disease!”
List of 12,500 food-and-beverage products sold in Spain. For people with gluten intolerance.
Medication manager and reminder app for people with a mental health problem.
“This new app is really positive for anyone that is still working. It’s extended my working life really because…previously I was having to work around diary dates to get me to the clinic. Now I can test in the morning at home…I can test myself on the train going up and down from London….It’s given me quite a lot of freedom.”Martin Smith, patient with atrial fibrillation | http://www.inhealthcare.co.uk/resource/inr-self-testing-martin-smith/ Including recording of interview on Radio Yorkshire
Aims to help people with asthma (aged over 12) to manage their condition.
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
Aims to provide the user with new perspectives on the task of managing inflammatory bowel disease (IBD).
Portable health record that can be shared with doctors or anyone else involved in a user’s healthcare.
An app for a social network and support group for women living with Polycystic Ovary Syndrome (PCOS).
“myPCOSteam is a free social network that makes it easy for you to:
When you or a loved one are first diagnosed, it's not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.
myPCOSteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.”PCOS Awareness Association, USA, a volunteer-based not for profit organization for the education, awareness and support of people affected by Polycystic Ovarian Syndrome. The Association approached the developer MyHealthTeams to set up the social network | http://www.pcosaa.org/mypcosteam/
Help the user to reach diet, weight-loss and fitness goals (whether losing, maintaining or gaining weight) by tracking daily exercise and daily calorific, fat, carbohydrate, and protein intake.
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Directs parents of babies to the nearest public baby-changing facilities in the UK.
App about the subjects of neurology and neurosurgery.
Allows the user to check personal medical symptoms, and, if necessary, receive telephone advice from a call operative within an hour.
Allows runs to be mapped, and progress tracked.
Information and support for patients, carers and clinicians dealing with Neuromyelitis Optica (NMO).
“Get the NMO basics with the latest in NMO information, videos, and answers to frequently asked questions.
Learn more about the latest scientific and medical insights into adult and pediatric disease, imaging, laboratory tests, and potential relationships of NMO/SD to other autoimmune diseases.
The NMO video library includes patient stories, questions about NMO, seminars from our NMO Roundtables, and more.
Stay up-to-date with access to fresh peer-reviewed research that have been made available and open-source.
Learn more about clinical trials, including how to participate.
Keep all of your NMO related notes and thoughts in one place.
Connect with all the NMO support groups that meet in person as well as online or through telecons.
Everything you need to help us with blood samples and/or clinical data donations for our Biorepository. Blood samples and clinical data are vital for NMO research.
Learn more about The Guthy-Jackson Charitable Foundation and connect with us on social media.
Browse this organized database of over 200 doctors with awareness and experience in NMO.
Access our popular patient resource guide.
In addition to native VoiceOver ability, you can modify font size and font thickness with accessibility settings.”The Guthy-Jackson Charitable Foundation, the US-based charity which created the app | http://bit.ly/2RLAOMv
Tracks indoor and outdoor exercise activities, and indicates how many calories were burned.
Lifestyle planner for managing changes in nutrition and exercise regimes—one potential aim of which might be slowing the progression of diabetes, for instance.
Aims to help people on oral anticoagulant therapy (OAT) to monitor and control their medication routine.
Brings a magazine-style interface to information about research into cures for rarer, more-neglected, diseases.
List containing information about rare diseases.
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
Educational games developed for people with learning disorders including autism.
“Otsimo child is a platform designed specifically to educate children with autism and learning disorders. It contains dozens of educational games and free basic AAC [Alternative and Augmentative Communication]. Educational games are developed by applying the Applied Behaviour Analysis (ABA) technique. Otsimo is a bundled platform which contains Otsimo Child and Otsimo Family apps.”Autism Education Trust, founded by the UK charities the National Autistic Society (NAS), Ambitious about Autism (AaA) and Council for Disabled Children (CDC) | http://bit.ly/2BPLFA8
Tool to help patients manage chronic pain or sports injuries.
Provides information about Parkinson's disease, treatments, and living with the condition.
Contains 900-plus patient-information leaflets about health and specific medical conditions.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
Demonstrates how to perform a series of exercises intended to ease and prevent pain and discomfort in muscles and joints.
Aims to give people with Parkinson’s disease (and their carers) real-time management of the condition.
You can view your history and trends…The history shows how you did on different tests and the trends show your baseline, performance, PD symptoms, fatigue and medication over time… enabling you to continually monitor your performance with respect to when you took medication for example. There is also a ‘diary only’ option which allows you to simply look at your PD symptoms, fatigue and medication over time.”Leah Mursaleen, Parkinson’s Movement, a patient group aiming to connect patient experience with scientific expertise | http://parkinsonsmovement.com/devices-and-apps/dont-worry-be-appy/
Pedometer tracks steps taken, speed achieved, laps covered, distance traveled, and calories burned.
Reminder to take medications on time.
Reminder to take medications on time.
Daily-updated summary of pollen levels and dispersal in Norway.
PTSD Coach provides service members, veterans, their friends and families with dependable resources they can trust. Many service members who experience PTSD symptoms can benefit from care and support, but some fear that they may be considered weak or that leaders or unit members might lose confidence in their abilities if they seek care. The information available through the PTSD Coach app can help service members and their loved ones overcome those concerns and obtain accurate information about PTSD and find the support they need.”Real Warriers Campaign, organised by the Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE). The organisation collaborates with a civilian agencies and advocacy groups. | http://bit.ly/2lyqGMf
Tool that helps people remember, and manage and organise their lives.
Provides information on how to conduct cardiopulmonary resuscitation (CPR).
Allows carers, family and friends to form a network, keeping in touch to arrange the care of a person or patient who needs help. Already available to 7 million people in the UK.
"Neurosupport, in partnership with the Walton Centre and the 5 Boroughs Partnership are promoting Rally Round to improve the support of carers of people with dementia. "Rally Round is an online support network designed to make it easy for you to organise help so that someone close to you can stay independent longer. It's free, safe and private. Neurosupport's Information Officer, Kathyrn Topping, is able to offer help and advice to individuals and groups who would like to start using Rally Round. She can offer one-to-one help in setting up an account and is also available to give talks and demonstrations of the website to groups. Please get in touch to arrange a visit or for more information. Rally Round can be used to support people in a wide variety of situations, over a short or long-term, including those with, or caring for, people with Alzheimer's Disease, Parkinson's Disease, Multiple Sclerosis, Dementia, Mental Health conditions, Cancer, Stroke rehabilitation, recuperation after illness etc"Neurosupport,UK | http://bit.ly/1gpbSYK
Provides information on how to carry out cardiopulmonary resuscitation (CPR), with a particular emphasis on aiding victims of choking.
Tracks the user’s remaining amounts of medications, displaying a countdown of the quantities left, and indicating how many days, weeks, or months, remain of each medication.
Restaurant guide that allows the user to track restaurant meals eaten, and to view nutritional information on the 60,000-plus food items held in the menus of over 250 restaurants.
"All young people with rheumatoid arthritis are now getting the tool we have longed for - a digital tool that can register the variations in the RA between visits at the rheumatologist. It is very important for young people with RA to have an overview and take control of the symptoms, and in combination with the buddy-feature, the app has a huge potential of becoming enormous beneficial not only for the individual patient but also contributing to a much better program of treatment. We are very proud of this project."James Rickmann | FNUG
Helps people with rheumatism monitor their condition.
Provides information on how to conduct cardiopulmonary resuscitation (CPR) for adults.
Prescription reminder that alerts the user to the need to take a prescription.
App designed for people with visual impairments to describe in sound what the phone camera `sees’.
“Although artificial intelligence (AI) has been around for a while now, the main AI technology to reach the visual impairment market is the talking camera.
Broadly, AI means that computers interpret the information they receive and tailor their responses based on our behaviour. You may already be familiar with apps such as TapTapSee and VocalEyes, but Microsoft’s Seeing AI (currently only available on Apple devices) is a cut above the rest.
Seeing AI combines the functionality of these predecessors with that of optical character recognition (OCR) apps that scan and read text aloud.
The free, easy-to-use app can scan and read formatted text, learn and recognise faces, scan barcodes to identify products, and interpret general scenes.
The range of features and its accuracy are remarkable – but what impresses me most is the simple, intuitive way in which the app is controlled.
With my previous favourite OCR app, you had to hold the phone above a document and then capture it by pressing a shutter button with your other hand: no mean feat, even for the most dextrous of us. If you didn’t capture the whole document, tough. You got what you snapped.
With Seeing AI, however, you receive verbal hints that tell you whether the camera can see the entire document. And there is no need to wrestle with your phone to keep it steady while hitting the shutter button: the app automatically takes the photo for you.
If you think that the scene description mode is good, then wait until you try the facial recognition setting! Not only can Seeing AI learn familiar faces, but it will also interpret moods and predict ages. This last feature could offend the more sensitive subject, but it proved quite accurate when I tried it at home (much to my wife’s chagrin).
The product scanner is a great help in the supermarket too. For me, zapping the barcode will mean the end of buying apple sauce when I want mustard, or spearmint when I want peppermint.
Later versions of the app also include banknote detection, handwriting recognition, and modes to gauge light levels or identify colours.
As ever, the app is not perfect, but it is rapidly becoming the must-have app of the year.”Matt Harrison, Technology Services Manager at The Beacon Centre, writing in a blog from the Macular Society, a UK charity fighting to end sight loss caused by macular disease. |
App that enables people to express distress or support for individuals with mental health needs.
“Join the NAMI Sentimoji Social Media Movement as part of Mental Health Month.
Download the new 2018 NAMI Sentimoji app on your smart phone.
Use these gifs to help you achieve our NAMI mission to #curestigma through awareness, support, education and advocacy for people affected by mental illness.”NAMI (National Alliance on Mental Illness) Kansas | http://bit.ly/2GKSUJ0
56 coeliac-friendly recipes for people with gluten intolerance (many of the recipes in several serving sizes).
Biorhythm alarm clock.
“The Smoke Free app is awesome. I just downloaded it couple of days ago, and it has been so helpful.” “I used this app as well, it was super helpful. The missions stop at 30 (or 31), but you continue to get badges, and it will keep asking you to write in the little diary they give you. It’s a really good way to stay focused on your goal, and all the little gifs they give you when you complete a task are pretty entertaining too.”Both entries on the StopSmoking blog (or ‘subreddit’), Reddit social networking site, USA | http://bit.ly/1syvgqV
App to help people with visual needs to navigate safely while walking
“Microsoft Australia and Vision Australia have announced the availability of Soundscape, a new application that empowers people who are blind or have low vision to explore the world around them through a 3D audio experience.
Soundscape uses 3D audio and location awareness to provide users with information about their surroundings to help build a mental map of what’s around them. By setting an audio beacon on a chosen destination or a familiar landmark, a user will always be able to keep track of where that location is as they make their way there. The app will also call out roads, intersections, and landmarks as a user walks past.
By wearing a stereo headset plus Soundscape, people who are blind or have low vision can explore the outdoor world with greater independence. With the 3D audio technology, the sounds are perceived as coming from the direction of the point of interest, so the user can build an image of what’s around from the sounds in the environment and the information coming from the Soundscape app.
Unlike traditional navigation apps that provide turn by turn directions, Soundscape helps users build an appreciation of the space as they move through it, empowering them to make their own navigational choices while at the same time enhancing their overall experience.
Used in combination with traditional mobility aids, like canes and dogs, a person with low or no vision can get from A to B and gain an appreciation of their surroundings on the journey – particularly if the environment is an unfamiliar one.
“Soundscape gives me confidence in an outside environment, by helping me understand what’s around me – whether it’s a restaurant, café, railway station, walking bike/track, park, business or even a street name. It allows me to build a mental map of my neighbourhood,” said David Woodbridge, Access Technology Advisor, Vision Australia.
“Rather than dictate what I should do, it allows me to make my own decisions based on the information it is providing, meaning I am always in control. For me, it really is about feeling stress free when I’m out and about. The app is easy to use and I have my own personal markers set for different locations. My local coffee shop is always a priority and the ‘coffee shop’ marker on Soundscape gets a lot of use.”
…The intention of Soundscape is not to replace aids such as a dog guide or cane, but to enable a user to more naturally and intuitively connect with their environment without disrupting their ability to attend to other tasks, activities, or interactions with other people.
To this end, the product development group in Microsoft’s Artificial Intelligence and Research (AI&R) team have been working directly with Vision Australia’s Orientation and Mobility team for the last six months to have them test and integrate the use of Soundscape in their work with clients.”Vision Australia, the not for profit organisation providing services to support people who are blind or have low vision. | http://bit.ly/2yLpHMg
Supports early learning for children with Down’s syndrome.
Game that shows images of parts of the human body, and is intended to test knowledge of anatomy.
The application provides an insightful and interesting way to provide useful information on sexual and reproductive health, including prevention, testing and treatment of sexually transmitted diseases, in accordance with valid scientific and professional knowledge.
Whether it's a risk check, a quiz of knowledge, information or recommendations, we believe everyone will find something for themselves. With responsible sexual behaviour and regular medical examinations, this is a good way to improve your information and your own knowledge to preserve and improve your sexual health.”Developers, including patient association Croatian Association for HIV and viral hepatitis | http://bit.ly/2swP8Bj
“Stroke is not only the No. 4 cause of death in the United States, it’s also a leading cause of severe, long-term disability. That's why it’s important to take action immediately. Research conducted by The American Stroke Association shows that patients who take a clot-busting drug, or thrombolytic, within three hours of their first stroke symptom can reduce long-term disability from ischemic stroke – the most common type, accounting for about 87% of all cases. When you know the signs of stroke, the life you save could be your own or someone else's. Learn to spot the signs of stroke, or spot a stroke F.A.S.T. (Face drooping, Arm weakness, Speech difficulty, Time to call 911) with the help of our mobile app for iphone/ipad. Your life is in your hands."‘Go Red for Women’, American Heart Association (AHA), USA | http://bit.ly/1hgCCXW
Spruce is an app developed by the British Liver Trust (@livertrust) to help people drink less frequently
“Unlike many other alcohol-related apps that try to get their user to do the impossible task of logging down every drink on a night out, Spruce is the first which focuses on the frequency of drink throughout the week.”
“Spruce users choose a weekly goal of three consecutive days of no drinking, and choose which days they will be ‘dry’. The user is then given gentle reminders on their progression, allowing them to monitor their intake and given ideas of non-alcohol activities to engage in.
For many people it’s easy to fall into the habit of having a drink most nights. Drinking even small amounts frequently is unhealthy and can lead to liver disease. But taking just three consecutive days off a week can reduce the chances of liver damage.
Three consecutive days is both achievable and beneficial; it helps people plan their week so that they can still socialise and have a drink if they want to, but are also aware that they need to take some time off drinking alcohol.
In our controlled test people who used Spruce were three times more likely (64%) to achieve three days dry than the control (23%).”British Liver Trust, the UK patient organisation which developed the app | http://bit.ly/2HI8VSa
Intended for people whose panic attacks are due to panic disorder (not suitable for other forms of anxiety).
Provides people with more than 40 audio ‘tips’ from fellow anxiety sufferers on how to manage anxiety and stress.
Sun protection tool.
Up-to-date details on pollution levels across the county of Sussex, England.
Allows people with anxiety, brain injury, depression, post-traumatic stress, or stress to monitor their moods and their general well-being.
Users choose a theme they want to explore such as ‘perfectionism’ and 'comparing myself to others' and scroll through a list of associated symptoms and unhelpful beliefs. They can read or listen to short insights that challenge those beliefs.
The app allows users to share an insight with others, set up reminders to read or listen to it at a certain time of the day, and set up trigger alerts where the insight pops up on screen when the user goes to certain locations.”App library funded by the New Zealand Ministry of Health, and curated by the health website `Health Navigator’, which includes representation from patient groups. | http://bit.ly/2AJwd53
App and website for people with rheumatoid arthritis to identify how day-to-day activities affect their condition.
“Track what you do and how you feel on a daily basis – even when you’re on the go! The newly relaunched Track + React app can be used as a web tool on arthritis.org as well as on your smartphone via the app.
Track + React features a completely revamped free mobile app available for download for iPhone and Android devices that allows you to track key daily activities related to your rheumatoid arthritis (RA) wherever you are…
…Tracking certain activities throughout the day can be helpful for identifying health trends that may impact the severity of your rheumatoid arthritis.
This easy-to-use tool will reveal which daily activities are having an impact on you and your RA disease activity. You may discover that when you take a walk, you don’t feel as stiff the next day or when you are less stressed your mood is much happier.
You can track what you do and how you feel on a daily basis within six key categories:
The tool will calculate the information you provide and produce a graph so you can see overtime how your daily activities play into your health and arthritis impact.
There may be a connection between what you do and how you feel. You can also print your Arthritis Impact graph and share the results with your doctor, which may help get more out of your appointments.”Blog from the Arthritis Foundation, the non-profit organisation which develop the app and online tool. | http://bit.ly/2M17UcH
Diabetes logbook for the recording and tracking of factors affecting blood-sugar levels. Nutritional information is also provided.
Aims to help people eat more healthily by demonstrating the effectiveness of the traffic-light rating of food content which appears on food packaging.
App intended to help first-responding members of the public who happen to be on scene when someone requires cardiopulmonary resuscitation (CPR).
App for anyone who wishes to help consumers of opiate drugs (such as codeine, fentanyl, heroin, methadone, or morphine), including their family, friends, social welfare workers, and the drug consumers themselves.
App to help people to identify and avoid triggers for urticaria (hives).
“The severity of Urticaria can vary. The spectrum ranges from a short and mild discomfort up to years of constant torture.
Also, the triggers for Urticaria are different from patient to patient. In some cases the trigger can be identified and easily avoided, in other cases it is never found.
The most important step is to identify the triggers and determine the individual sensitivity threshold. To do that it is essential to run a diary that helps to document the course of the disease.
This app will help those affected with it. Fewer relapses or a decrease in the severity of relapses, is already a success.”Global patient group which developed the app: “Global allergy and asthma patient platform” – (GAAPP) | http://bit.ly/2MQ9rz3
Provides information on vaccines and vaccination.