Allows a user to send a telephone message, text message, and GPS location to the emergency services in Iceland.
For adults with attention-deficit hyperactivity disorder (ADHD) (whether diagnosed or undiagnosed).
Interactive app on Facebook, intended to raise awareness of end-of-life issues.
Austrian first responder and first aid app.
“The Free App (for Android and iOS) of Arbeiter Samariter Bund Österreichs helps with first aid. In an emergency, instructions can be found, which guide the first responder step by step with images and text.
From protection at an accident site, to how to resuscitate after a cardiac arrest, the app provides vital tips.
National and international emergency numbers can be dialed with the push of a button. Now you can also display the location of the nearest defibrillator on a map.
The app can be downloaded for free from the iTunes or Google Play store and is optimized for smartphones and tablets.
Of course, the app does not replace a first aid course, but it can provide the security in an emergency to help quickly and without hesitation.”Arbeiter-Samariter-Bund Österreichs, the Austrian first responder and first aid not for profit organisation which developed and launched the app. | http://bit.ly/2AzXZ63
App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Provides information on inflammatory bowel disease (IBD), dieticians and hospitals, and on the activities of France-based patient group, Association Francois Aupetit (AFA).
“AfIB 2GetherTM a mobile app developed by Pfizer, may help improve shared decision making discussions between patients with AFib, their caregivers, and their provider, on the risk of stroke due to AFib.
The app includes:
List of gluten-free products for people with gluten intolerance.
Alcohol consumption tracker and drinks diary intended to help a user change drinking habits.
The AliveCor® Heart Monitor: Mobile ECG device that,provides individuals with the ability to track heart health anywhere, anytime at an affordable cost.
“The ‘AliveECG’ works in conjunction with the free AliveECG app and is designed for medical professionals, patients and health-conscious individuals to record, display, store and transfer single-channel electrocardiogram (ECG) readings. These recordings could be saved on the mobile device or shared with others (such as your doctor) via email. AliveCor’s Heart Monitor has been used in several clinical trials, and demonstrated accuracy and efficiency to produce a single-channel rate-and-rhythm assessment. Arrhythmia Alliance members have the chance to purchase the app with an exclusive discount of £5, using voucher code ‘hrc2013a’ when bought from Amazon. A percentage of the sale will also be given to Arrhythmia Alliance.”
Arrhythmia Alliance (AA), UK | http://bit.ly/1nlLnCa
App designed for carers and families of people with ALS (Amyotrophic Lateral Sclerosis)/MND (Motor Neurone Disease).
“Family members of people with ALS become increasingly worried during the disease process and regularly become overloaded.
ALS Center Netherlands developed an app to support relatives of people with ALS. Unique to this app is that it is information from 'peer to peer’; people who have experienced the same will share their knowledge and experience via video messages.
The app 'ALS Naasten, tips & info' can be downloaded for free from the Google Play store and Apple app store.
The app also offers the option of self-monitoring.
In the app, the person caring can keep track of how he or she is doing on a daily basis using a score. If the carer regularly fills in how they feel, they will gain insight into the course of their mood and what influence it has. This gives more sense of control over the situation
A carer of an ALS patient can download the app on their own initiative from the app stores, but healthcare professionals, such as rehabilitation doctors and social workers, can also actively offer the app to loved ones at an early stage.”ALS-Centrum, which helped to develop the app for the patient group Stichting ALS Nederland | https://bit.ly/3bK07cJ
Aimed at the caregivers of people living with Alzheimer’s disease.
App providing information on Alzheimer’s Disease, primarily for clinicians, but also including support for patients and carers.
“The free Alzheimer’s Association® Alzheimer's Disease Pocketcard app puts reliable information and assessment tools at your fingertips.
Helps people in the UK who are homeless (and their providers of social care) to locate resources within a given geographical radius of their phone.
Game involving characters modelled on birds and pigs, and which is said to feature physics-based gameplay.
Chromotherapy app intended to reduce mental stress by demonstrating the therapeutic value of 256 shades of colour.
GPS tracking allows the app to show the pharmacies in the user’s local area.
Aims to help the user overcome fear of flying.
App library of apps and websites which support carers.
“Apps4carers app is a new mobile app dedicated to carers which includes a repository of selected apps and websites in partner countries, information and tutorials on their use
Apps for carers is your handy tool, easy to use, to navigate the selected resources from the following categories:
App that helps young people from 13 to 25 to track and manage their arthritis symptoms.
Video quotes from young people using the app:
“The app was co-designed by young people like us with arthritis to track how they are feeling over time.”
“And it helps make your hospital appointments a lot easier.”
“When I go to the doctor it comes in very handy because I can just show them the app. See how many OK days, days with pain, how many bad days, energy levels and mental health as well.”
“The app’s very easy to navigate. You rate the categories by using smiley faces rather than type or choosing a longer answer.”
“If I have any questions I can go to the info and tips section.”Young people using the app in a video by the UK patient group which developed it, Versus Arthritis | https://bit.ly/2ZfPeuT
“It’s a question and answer platform designed to connect you directly with communities full of first hand knowledge of Down Syndrome. The app is full of personal stories and experiences from the community, as well as evidence-based resources about Down Syndrome. You can submit your own questions or answers across topics like health, community, education and employment. Ask about Down Syndrome is helping to break down the myths about Down Syndrome. By engaging with the app, you can get the real story about what it’s like to have Down Syndrome. This can help you support the inclusion and participation of people with Down Syndrome in the community.”
“Questions, Answers and Stories:
The app features people with Down syndrome answering important questions and sharing stories about what supports inclusion, what the barriers are and how these can be addressed.
Community Inclusion resources:
The latest resources from Down Syndrome Australia’s Community Inclusion Toolkit are available through the app. This means these resources are now available to view, share, download or print from a handheld device.
Share your own question, answer or story:People can also share their own experiences through the app by submitting a question, answer or a story.” Down Syndrome Australia, an organisation representing people with Down’s Syndrome and their families | https://bit.ly/2JctOu8
Provides information on how older people, and people with a disability, can find solutions to a wide range of activities in the home that might present them with problems.
Mobile website to help people self-manage their asthma
“Asthma Buddy has helped hundreds of Australians manage their asthma for many years. We hope this new useful tool can help you take control of your asthma and improve the quality of life for you and your family.”
As a leading organisation for asthma care, the National Asthma Council Australia promotes best-practice care to people with asthma and their families.
…“Asthma Buddy is a digital Asthma Action Plan that lives in your pocket,” said Siobhan Brophy, Chief Executive Officer, National Asthma Council Australia.
“You can refer to it to know what daily asthma medication to take. It will also help you recognise if your asthma is getting worse and give you advice on what you should do in response.
…We designed Asthma Buddy with end users in mind,” We know mums always have a million things on the go, so we want to help them stay on top of their children’s asthma management.”
The launch of the Asthma Buddy mobile website is funded by GSK Australia. The National Asthma Council retained editorial control.The National Asthma Council, the Australian charity which developed the app. | http://bit.ly/2zmNKEX
Logs asthma activity, medicines, triggers, and peak-flow readings in diary and graph form.
Allows a user with asthma to record event information (such as environmental conditions, symptoms, treatments, and vital signs) that may be relevant to asthma.
Provides information on recognising signs of a stroke, and techniques of assistance.
“AVC Brasil, a participant in # FórumDCNTs, has the AVC Brasil Application available on the IOS and Android System platform. The free application with the proposal to show relevant information and topics about the Stroke and to inform geographically specialized hospitals for the care of the disease according to the location where the user accesses the app.
And one of the coolest functions is the possibility to call the emergency service, personal contact of the user or contact hospital, with just 3 rings on the cell phone, just for registering your family member's number in an emergency, and the hospital where you want to call in these situations. The application aggregates information such as warning signs, tests and tips to reduce the risk of the problem in the future.”
First aid app for children and babies
“This free app provides simple, easy-to-learn skills to help a baby or child in a first aid emergency.
It is packed with useful tips, animations, and video clips. You can test your knowledge using the app’s built-in first aid quizzes. There is also a handy device to record your child's medication needs and any allergies.
The information you need is all hosted on the app itself, meaning no internet connection is needed, making it fast and easy to access.”Red Cross UK, developer of the app | http://bit.ly/2KLCgeK
Displays exercises suitable for people with ankylosing spondylitis (AS).
Designed to guide a user through a panic attack, or through an episode of raised anxiety.
App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Provides real-time feedback, and visual and audio instructions, on how to learn and practice hands-only cardiopulmonary resuscitation (CPR).
Provides advice helpful to people with anxiety, debt, stress, or work problems.
“BookSmart for home allows parents and caregivers to access a library from their mobile phones so they can support their children’s learning after the school day or when physical schools are not in session. BookSmart starts with a free base collection – 75+ great local and international books suitable for young readers and their parents…
…These books support the learning and socio-emotional development of children ages 3 to 12 years. The collection includes books in Arabic, English, Hindi, and Spanish. Books can be read online or offline to save on data costs.”
App for people at risk of or diagnosed with bowel cancer
“In the era of personalised medicines and oral chemotherapy taken at home, Bowel Cancer Australia is getting Aussies ready for the future of patient care with a new bowel cancer app….
The comprehensive bowel cancer app…provides easy access to accurate information about bowel cancer, its prevention, diagnosis and management.
"Our bowel cancer app is responding to the changing needs of bowel cancer patients and their families or carers…For example, as more oral chemotherapies become available enabling people to receive treatment at home, we expect to see a shift away from written patient treatment diaries to online diaries that can then be emailed to the patient's specialist."
"We've also designed the app to be easily personalised. It has the capability to store screening reminders, treatment and mood diary entries and even record notes from medical appointments."
UPDATE: Bowel Cancer App 2.0
“The updated Bowel Cancer App 2.0 retains the comprehensive bowel cancer content frequently accessed in the first version of the app including the ‘Need to Know’, ‘How to Test’ ‘Living With’ and ‘Need to Ask’ sections, but also offers users additional benefits previously unavailable.
A new ‘Motivate Me’ feature enables people to monitor their diet and lifestyle on a daily basis as one way to help reduce their bowel cancer risk. Users can also connect one-to-one through the App as part of Bowel Cancer Australia’s Peer-to-Peer support and buddy network, Australia’s only national bowel cancer support group for patients and loved ones.
Other valuable features include screening tips and tools, a list of questions to ask throughout the patient journey, a customisable treatment and mood diary, recipes and a meal planner.
Consistently featuring in the top 100 medical apps in both the App Store and Android Store, the Bowel Cancer Australia App provides users with answers to questions about bowel cancer which many people feel uncomfortable asking and continues to make it easier for people to access relevant bowel cancer information.”Bowel Cancer Australia, the patient charity which developed and updated the app. | http://bit.ly/2QgTtDW
Tool for viewing the brain in 3D.
Information on how to check breasts, and on lifestyle choices for decreasing the risk of breast cancer.
App for parents with children under five to help them deal calmly with problems and frustration.
“For some kids, managing everyday feelings can be a big challenge. Apps like ‘Breathe, Think, Do with Sesame’ can model more productive ways to deal with emotions.
The app shows kids a familiar face from Sesame St having trouble with something such as tying their shoes or going to bed. The app helps kids realise that everyone has moments like this in their lives.
And it also shows them how to use calming exercises like breathing deeply along with a monster friend. That can help kids manage their frustration.”
App intended to show the correct length of time when brushing teeth.
“BuikBuddy was developed for people with Crohn's disease or ulcerative colitis.
The app has a medical diary where you can monitor your disease progression. You can also set medication reminders.
Other possibilities of BuikBuddy:
App aimed at teenagers to help resist or manage the urge to self-harm.
“The Calm Harm app powered by Stem4 helps young people resist or manage the urge to self-harm. Developed by Dr Nihara Krause, a Consultant Clinical Psychologist, together with ideas from young people, Calm Harm uses strategies from Dialectical Behaviour Therapy (DBT) to help users learn to identify and manage their ‘emotional mind’, teaching impulse control, emotional regulation and tracking underlying triggers to harmful urges…
…We worked co-collaboratively with young people to develop Calm Harm. The co-collaborative workshops with young people explored desired outputs, user journeys, visual concepts, security/privacy, user experience, and tone of voice…
…Calm Harm is recommended for the ages of 13 years and above. If a younger child would like to use it, it is recommended that this is done under the guidance of a responsible adult.
…Calm Harm educates using strategies from evidence-based Dialectic Behaviour Therapy (DBT). DBT has been shown to be an effective treatment for some groups of patients who self-harm…
…Please note that Calm Harm is not a substitute for assessment and intervention by a mental health professional. It is recommended a GP should be consulted in the first instance.”Stem4, the UK youth mental health charity which developed the app with young people | http://bit.ly/2Z6kU3I
Food and calorie tracker with a database of a million-plus foods.
Weight- and nutrition-management app that allows dietary goals to be set.
Allows a user to find nutritional information about food, and to track meals, exercise and weight.
App that helps people with cancer to prepare for consultations, and record answers given.
“Patients diagnosed with cancer are confronted with vast quantities of life-changing information at a time of great stress. They are also under pressure to communicate details of their condition and treatment to many family and friends.
This can be a harrowing experience and the frustration of not recalling or clearly understanding a clinician’s words during a consultation can add to patient stress and anxiety. Similarly, trying to explain the diagnosis, treatment or likely outcomes to family is difficult.
By providing a structured mechanism with which to communicate questions and to record answers, the CANrecall App uses contemporary technology to assist patients at this time of great need. It will also be particularly beneficial to semi-literate or foreign language patients as it will allow them to seek medical attention and then receive later assistance from family or social workers to better understand their diagnosis and any proposed treatment therapies.
Patients today meet with their clinicians in a manner that is virtually unchanged in the past 100 years. This despite all the growth in technology and our understanding of patients’ psychological needs. Using both technology and professionally developed Question Prompt Lists the app will significantly improve the doctor/patient interaction and the resultant patient experience.”Race Cancers Australia, the charity which developed the app. | http://bit.ly/2LFxO47
Carbohydrate-counting app intended to help children with diabetes gain the skills required to count carbohydrates.
Allows the user to count the amount of calories and carbohydrates contained in food and drink by consulting the app's 1,400-plus photographs of food and drink items.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
Allows a carer to track the contents of a person's medical records.
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
“Being a CF teenager:
Young patients with CF often do not have enough information about their illness and how to effectively fight it. Growing up as a teenager is not an easy process by itself. For cystic fibrosis youngsters, there are even more challenges to tackle. This age of defiance takes its toll and usually brings decreasing therapy adherence.
Building good habits and improving adherence:
Smartphones are more and more used in healthcare and self-management. The idea is to utilize the enormous potential for the target group which uses the smartphone extensively at every occasion. CF Hero focuses on building a long-term habit of daily exercises (inhalation and airway clearance). The mobile application enables good use of the playful design and psychological triggers to persuade teenagers to adhere to therapy willingly and so that they know why they should stick to it. It also helps to sideline the parents a bit as they very often play the role of a “watchdog” (as kids say) and transfer maximum responsibility onto the child.
…By using gamification, CF Hero improves the commitment of young patients to treatment. Inhalation is a “game” for which virtual coins (little oxygens) are earned if the user sticks to the plan.
…The app collects data about inhalation therapy and physiotherapy (device, medicines and its doses, frequency) that can be further shared with healthcare practitioner who often doesn’t have regular feedback from the patient.
…With earned virtual oxygen coins and fulfilled inhalation plan, the user can enter interesting and funny comics stories that show real-life or fictional situations linked to CF. The reward-like mechanism of achieving these stories aims to build long-term habits but also educate the user about different aspects of CF life in an entertaining way.”Klub nemocných cystickou fibrózou, the patient group which developed the app | https://bit.ly/2UaS15Y
Allows a user to pick a charity (from a provided list), and raise money for it by sponsored cycling, running, or walking.
Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.
App aimed at 11-25 year olds who have been bereaved.
The app has been created by a group of bereaved young people working directly with Child Bereavement UK.
It has been developed for 11-25 year olds who have been bereaved of someone important to them. It can also be used by friends, teachers, parents and professionals who would like to know how to support bereaved young people.
The app has information about:
The app aims to help bereaved young people feel less alone and to inspire others on how to support them.Child Bereavement UK, the charity which developed the app. | http://bit.ly/2ONrDeg
“Benefits are: It contains information on 5 common feeding pitfalls, in a WHAT, WHY, WHAT TO DO format. It explains the WHY a behaviour is occurring, which parents have said is really good and fills a gap in their knowledge. Many feeding resources currently do not explain the psychology and physiology around children's feeding behaviour. It explains not only WHAT to do, but with tangible, interactive tools to help. It allows parents to track their child's eating behaviour, but also their own well-being. This can be very useful for anxious parents who can become entrenched in feeding problems and not objectively see improvements. If parents learn healthier, more adaptive ways to feed their children, then the health of children will be improved. This is both in terms of what is eaten (increasing variety and liking fruit & veg) but also HOW it is eaten (less coercion so children are allowed to learn to regulate their own intake, something that is important in the battle against obesity). It represents a useful preventative resource, that can be used before weaning to educate parents on children's developmentally predictable responses to food, BEFORE problems occur. It's easy to use and an app may be a better medium to reach less engaged families/parents, than having them come and visit their health visitor. It's free to download, so available to all. Drawbacks are: the app does not deal with nutritional information e.g., how much carbs, protein etc a child has eaten / should eat per day.”Review from the developer: a community of mothers at Loughborough University Centre for Research into Eating Disorders, UK | PatientView Form, 2014
App which provides a range of ways to help young people manage anxiety.
“Clear Fear is an app developed for the teenage mental health charity Stem4, by Dr Nihara Krause, Consultant Clinical Psychologist, and uses the evidence-based treatment CBT to focus on learning to reduce the physical responses to threat by learning to breathe, relax and be mindful as well as changing thoughts and behaviours and releasing emotions.
You can personalise the app if you so wish and you will be able to track your progress and notice change.
Please note the app is an aid in treatment but does not replace it…
…The fear of threat, or anxiety, is like a strong gust of wind. It drags you in and makes you want to fight it or run away.
Instead, face your fear with the free Clear Fear app and learn to reduce the physical responses to threat as well as changing thoughts and behaviours and releasing emotions.
Anxiety is a natural response to fear, threat and apprehension. However, when anxiety is extreme or goes on for a long time, or the response to a threat is disproportionately large and affects a person negatively, it may become an anxiety disorder.
Anxiety disorders are the most common form of emotional disorder and respond very well to a form of treatment called Cognitive Behavioural Therapy or CBT.”Stem4, the UK youth mental health charity which developed the app with young people | http://bit.ly/2GkVisE
“The Australian Clinical Trials website allows you to search for a clinical trial by disease type and you will receive a brief description of the trial, eligibility criteria for the trial and contact details for further information…
…There is a user friendly app that has been developed by ClinTrial Refer which allows you to search by your subtype of lymphoma for trials anywhere in Australia and it will tell you whether the trial is currently open, where it is open and who to contact for further information.
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
App designed for people who have had strokes, providing practical support and information.
“With support from the Patient Centered Outcomes Research Institute (PCORI), this customizable mobile app has been developed for stroke survivors specifically based on their feedback and needs.
The app provides the stroke survivor or their caregiver with the ability to:
The app was developed through a collaboration with National Stroke Association, The State University of New York (SUNY) Downstate Medical Center, City University of New York (CUNY), and The Arthur Ashe Institute for Urban Health.”The US National Stroke Association, the not-for-profit organisation that helped to develop the app. | http://bit.ly/2QslTLl
App to helps families of children with rare diseases to communicate with health professionals.
“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals.
The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test.
Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…
… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups), which advised on the app’s development | http://bit.ly/2PdolRC
“CoviDIAB is the new online application that will allow you to have clear, verified answers and personalised practical advice during this period of COVID-19 epidemic: to reassure you and support you in managing your daily life with diabetes.
This can be a supplement to all the advice that the French Federation of Diabetics (Fédération Française des diabétiques) sends you daily.…CoviDIAB is a web program which allows people with diabetes to stay informed in a reliable and validated way (daily updates), about their health.
This collaborative program is led by doctors and hospital carers, and supported by the AP-HP (Assistance Publique - Hôpitaux de Paris) and INSERM research teams (National Institute for Medical Research).
All the contents of this program have been validated by doctors and comply with official recommendations concerning the coronavirus.
CoviDIAB is a web application accessible on your smartphone, tablet or computer.No app or software to install: simply create your account online at: https://covidiab.fr/” Fédération Française des diabétiques, the patient group partner contributing to the app | https://bit.ly/3g1Xh4G
App that aims to put a ‘human face’ to worldwide aid and poverty statistics, and to demonstrate progress towards United Nations (UN) Millennium Development Goals (MDGs).
Diabetes data-management app that allows the user to log and track factors which influence blood-sugar level.
Carbohydrate counter, insulin calculator, and food-nutrition-information app.
Diabetes management app for anyone with diabetes (whether taking insulin, other medications, or just involved with diet and exercise). Dietary advice and good information is provided.
App to help young people with special needs to participate more safely and confidently when using social media and the internet.
“DigiSafe is an app and website that contains learning tools for young people with special needs about NemID, Internet commerce, social media and E-box.
The purpose of the development project DigiSafe is to:
“The FREE distrACT app gives people who self-harm and may feel suicidal quick, easy and discreet access to information and advice, so they can manage difficult feelings, cope with a crisis and find help and support.
About 1 in 7 young people in the UK say they’ve harmed themselves at some point, and people who self-harm are 35 times more likely to end their own lives.
The distrACT app allows people to access reliable health information about self-harm on-the-go – 24/7, in the privacy of their mobile phone and in one single place.
How is the app useful?
If you self-harm and perhaps feel suicidal, the distrACT app provides you with all the information you need to understand self-harm better, manage it more safely, and know how to get help and support when you need it:
Reminder to take medications on time.
Cookbook listing healthy foods.
Designed to help the user manage medication compliance.
App to help families with Dravet Syndrome, a rare form of epilepsy that begins in infancy.
The first video game in the history of Dravet syndrome. Together with our friends from CEINPRO, we go a step further in the diffusion of Dravet syndrome.
Now, any user in the world can download Dravet Dream, an interactive game in which the main character is always accompanied by a butterfly overcoming different challenges related to this disease.
The game is in English, Spanish and Basque, it is free and you can download it for both Android and iOS devices.”
“E-kvit offers help to anyone who wants to be smoke-free…In 2017, almost 30,000 signed up for e-kvit.
The target group is adult smokers. E-kvit helps in the process if you want to stop smoking altogether. E-kvit also helps if you first want to examine your smoking habits and maybe cut down on cigarette consumption.
With E-kvit you can:
Wellness app to help women manage endometriosis symptoms.
“Stage IV Endometriosis warrior Melissa Turner developed Endo Empowered to provide women with the tools she used to improve her endo experience. There are dietary and lifestyle suggestions to help naturally manage endo symptoms, as well as a 21-day wellness challenge. (Going to bed before 10:00 PM or eating something green each day are just a few of the to-do’s.) Another popular feature? Daily self-care reminders, which can be set to any time, in any time zone. “The Endo Empowered platform was inspired by a strong desire to help women around the world by empowering them with tools, support, and hope to manage endometriosis and make life a little easier,” says Turner.”Bethanne Black, Endometriosis Foundation of America | http://bit.ly/2PajIu3
Diabetes-management journal for recording and tracking blood-glucose levels, carbohydrate intake, and insulin dosages - with reminders when to test your blood glucose
Intended to help people with epilepsy manage their condition, together with relevant medical professionals.
“Life can get busy. Keeping track of your epilepsy or general well-being may not be easy. National guidelines encourage regular review of your epilepsy with your GP, but this may only be once in a year.
How do you check your risk the rest of the time?
The award-winning app EpSMon can help you self-monitor in between your visits to doctors.
After answering a short assessment, EpSMon will produce an easy to read summary showing you:• which risks are getting better• which have worsened• and which have stayed the same
So you can show this summary to your GP on your next visit. It can also help you decide whether to seek help earlier than your next planned visit.EpSMon is designed so that you can be aware of why and when a medical review of your epilepsy is important.”SUDEP action (Sudden Unexplained Death in Epilepsy), the UK patient group which developed the app. | https://bit.ly/2IhStNe
Utilises Tangram, a Chinese game in which several shapes can be assembled to make larger shapes, to teach a user how to make more complex shapes (such as a rabbit) in several levels of difficulty.
Shows citizens of EU Member States how to apply for a European Health Insurance Card (EHIC).
Aims to help the user overcome fear of flying.
App to develop positive feelings and resilience to deal with stress, depression and anxiety.
“Positive Mental Training is available as the iOS/Android app Feeling Good(now approved by NHS Digital App Library)
The app is free to download, and comes pre-loaded with:
A great feature of the app is a progress monitor in the form of a tree which gradually fills out with leaves and flowers as progress is made through the programme. We really like the growth metaphor.
You can set up listening reminders as well. The app has 2 mental health questionnaires, so you can assess your health status, this also helps us to assess the helpfulness of the programme (anonymously).”The Scottish mental health charity the Foundation for Positive Mental Health which developed the app | http://bit.ly/2w33NDf
Intended to improve the chances of conception.
Diet and weight-loss journal that offers an online ‘account’ to track food consumption and exercise levels.
App enabling women to track their periods and specific symptoms of endometriosis and other reproductive diseases.
“After suffering years of unexplained symptoms and multiple hospital visits, Flutter founder Kirsty Curry was diagnosed with endometriosis at age 28. Soon after, she sought on a mission to help other women more quickly navigate the road to diagnosis. Curry and her husband, both app-designers and developers, created Flutter. The app comes complete with a community to share experiences with as well as a handy symptom tool that can help users better advocate for themselves in the doctor’s office. “I also wanted an easy way to share a journal with your doctor, so we added an export tool, says Curry, who is also a board member for The Endometriosis Foundation of America. “The journal allows detailed symptomatology tracking that’s specific to endometriosis, which may help with screening and symptom management. And sharing the tracker with your doctor can eventually help with diagnosis.”Bethanne Black, Endometriosis Foundation of America | http://bit.ly/2PajIu3
Allows users to report their experiences in hospital.
Provides nutritional information on foods, with the aim of helping a user with diabetes to lose weight, and to manage diet.
Digital tool helping people in crisis to ask for and coordinate practical help.
“It was through this personal experience that I realised how hard it is to actually coordinate specific and practical help when going through a crisis.
Text messages, ring-arounds, spreadsheets and late night phone calls are difficult, time consuming and often just too much for someone to manage when they are already in the turmoil of a serious life crisis.
I wanted to help my friend but didn’t have the free time to coordinate all the assistance she needed with all the wonderful people who had offered to help…
…Gather My Crew is an online rostering tool that has been developed specifically to support people in crisis, to enable them to ask for and coordinate the practical help they need.
Using the expertise of people who had ‘been there, done that’, as well as the clinicians who supported them, Gather My Crew exists to make sure people going through a crisis get the right kind of help from all their well-meaning friends, family, neighbours and colleagues – without all of the stress that usually comes with coordinating help when a loved one becomes ill.
It is a way to ask for help – and then turns that help into a calendar that tracks and records who is doing what, and when. It even sends reminders and updates to keep everyone connected throughout the time the assistance is needed.
Gather My Crew is a registered charity, and the online tool is free and easy to use.”Susan Palmer, the psychologist who founded the Gather My Crew charity, writing for the Cancer Council patient group in Australia | http://bit.ly/2NqLmix
“GDm-Health has the potential to positively affect patient care, because people with gestational diabetes would be better able to interact with their healthcare team. GDm-Health removes bias in patient reporting of blood glucose levels, helping to improve trust.
It can potentially decrease unnecessary hospital visits and provide the midwife with more information for clinical decisions.
GDm-Health could improve patient health outcomes. It is unlikely that using GDm-Health would significantly effect on family, work or home life any more than usual blood glucose monitoring.
The only possible drawback could be anxiety around personal data handling, but this could be mitigated by assuring users of robust security.
The system is more likely to benefit patients who embrace new technology, particularly those who already use smartphones. For many users, especially those very familiar with smartphones, no special training would be needed.”
Expert contribution from the patient organisation to a medtech assessment paper by the UK National Institute for Health and Care ExcellenceDiabetes UK, patient organisation that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. | http://bit.ly/2G0nNxE
Designed to be used during the annual ‘Global Corporate Challenge’ (GCC) walk, a virtual event intended to promote personal fitness and better health. Android app no longer seems available.
Blood-sugar and weight tracker.
Allows the user to search for gluten-free food products in the Netherlands.
“Designed for people who need to limit their fluid intake, especially people with hyponatremia, kidney failure, or heart disease.
Cited in list of recommended apps during COVID-19 pandemic.
Happy not perfect“…Is a toolkit for your mind. Backed by science Happy Not Perfect enables you to play the daily happiness workout to reduce stress and improve sleep, learn breathing techniques, let go of negative thoughts, practice a positive mindset, meditate, set goals and track progress.” Bipolar UK, charity for people with bipolar | https://bit.ly/331wVMN
Helps the user to learn meditation. Click on browser link to see how Headspace works or go to https://www.youtube.com/watch?v=kEpOF7vUymc
Quick, simple, self-applied hearing test that does not require an appointment with a medical professional.
App designed to help people with heart diseases to manage their condition.
“The Heart Failure Health Storylines mobile app is created with input from people with heart failure and congestive heart failure (CHF) so that the right health tools are available to you. Now it’s easy to record your symptoms, vital signs, medications, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.
Choose from the following health tools to better manage and monitor heart failure:
Carbohydrate counter with a food database.
“Cervical Cancer is the 2nd most common cancer in Portuguese women under 50.
In Portugal, the HPV vaccine prevents 97% of cases, proving that there are cancers that can be prevented!…The Portuguese League Against Cancer launches the Cervical Cancer and HPV App as a contribution to the prevention and early diagnosis of cancers associated with Human Papillomavirus (HPV) infection. This application meets specific accessibility criteria for the blind and visually impaired.” Patient group Liga Portuguesa contra o Cancro (Portuguese League Against Cancer) | http://bit.ly/2Vxi750
App and online tool to help people with mental health needs to access patient groups, charities and other sources of support across the UK
“Hub of Hope believes that no matter what you're going through, you shouldn't have to do it alone. Find services local to you using geolocation technology.
The stigma associated with mental health can make it difficult to talk about, however there are services out there with people who understand and are ready to help….
…Using the Hub of Hope is completely free and confidential. You are not required to provide any personal information or pay for use. It is simply there to say, if you should ever need help, whether for you or somebody you are looking after, we’ll make it easier to find.
The Hub of Hope has already been described as a vital and lifesaving tool by charities and mental health trusts.
In less than a year since its launch, the Hub of Hope has had
Educational app about ankylosing spondylitis (AS).
Blood pressure tracking-and-analysis tool.
Educational app intended to show the user how the UK-based charity Depaul UK works with homeless young people, and to give the user an idea of a typical young homeless person’s daily activities and requirements.
Measures heart rate and pulse.
Diabetes-management and personal-health app that allows a user to record and track personal health-related information.
Medication reminder aimed at people living with HIV/AIDS.
Allows a carer to list their network of important personal contacts, and to share information with the contacts.
Allows immediate access to articles in four American Diabetes Association (ADA) journals: ‘Diabetes’, ‘Diabetes Care’, ‘Diabetes Spectrum’, and ‘Clinical Diabetes’.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) make better decisions about diet. Although available on Android, the developer's website http://www.kidneydiet.com/ states the app is no longer available or supported.
Food and exercise diary aimed at European users.
Allows audio, images, and video relevant to cancer symptoms, and to life with cancer, to be stored in a logbook, and shared with carers, doctors, family, etc.
Interactive app designed to guide adult and child users through evidence-based treatment, called ‘exposure and response prevention’ (ERP), for obsessive-compulsive disorder (OCD).
Provides people with HIV/AIDs with up-to-date information on potential drug interactions between HIV drugs and other drugs that the individual may be prescribed (also covers over-the-counter, recreational, and alternative medications).
App enabling people to assess if they are at risk of hepatitis and manage their liver health.
“Millions of Australians suffer from symptoms associated with liver disease with over 400,000 living with hepatitis B or hepatitis C.
Hepatitis Victoria introduces LiverWELL, a free interactive app that is a practical tool to help people optimise their liver health. There are many health apps around but they tend to be either for specialist clinicians or from those promoting a healthier diet.
LiverWELL has been informed and tested by people living with hepatitis.
“People with hepatitis and liver disease need practical tools that remind them to take their medications, schedule their appointments, record their test results and keep their personal health notes all in one place,” said Dr Nicole Allard, a general practitioner and specialist in hepatitis B. “The beauty of LiverWELL is that everyone with a mobile phone now has this option within their grasp and I will be recommending the app to my patients,” she said.
“Every week up to 6 Victorians die from viral hepatitis-related liver disease…and liver cancer is the fastest growing cancer in the country,” said Melanie Eagle, CEO of Hepatitis Victoria. “We need to tackle this health crisis head on,” she said.
“World Hepatitis Day is one of a handful of world health days mandated by the World Health Organisation precisely because hepatitis is such a serious and deadly disease,” said Jill Hennessy, Minister for Health in the Victorian Government. “The Victorian Government is committed to eradicating viral hepatitis in our community by 2030 and to do this we need clever and creative approaches. I congratulate Hepatitis Victoria on producing such a useful tool for people living with hepatitis,” said Minister Hennessy.
LiverWELL is now available for Android and Apple smartphones in English with the translation of main functions in Arabic, Chinese and Vietnamese.”Hepatitis Victoria, the not-for-profit organisation which developed the app. | http://bit.ly/2LFqwy6 (YouTube channel for Hepatitis Victoria)
Utilises illustrations to teach lessons about personal safety and home safety (such cold weather safety, sport safety, electrical safety, and medicine cabinet safety). Good for people with autism.
Allows a user to set weight-loss goals, establish a daily calorie budget to meet them, and to record food consumption and exercise levels.
App designed to support patients in managing lung cancer from diagnosis through to treatment.
“The LUNGevity Lung Cancer Navigator is a customizable mobile app that puts your entire support network in the palm of your hand.
The app was created for lung cancer patients, family caregivers, and support team members to manage life after a lung cancer diagnosis. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friends and family.”Longevity Foundation, the US-based patient advocacy and research charity for lung cancer which developed the app | http://bit.ly/2PQexRu
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
“Do you have an allergy to certain foods and do you lack inspiration for new recipes? Then here is help. Download our new app ‘Food Allergy’.
This app is a recipe database that allows you with food allergies to sort recipes that contain ingredients that you cannot tolerate.
The app also includes features that allow you to share recipes on Facebook, share a list of your allergies by mail, and create a shopping list that can be easily adjusted to how many people are eating.”
All recipes are developed specifically for food allergies. The app allows you to click off your allergies and will then exclude recipes with the ingredients you cannot tolerate.
You will find recipes for breakfast, starters, soups, main courses, salads, desserts, cold cuts and bread.
The app is free and works for both iPhone and iPad.Asthma Allergy Denmark is behind the app, which is supported by the Ministry of Children and Teaching and lotteries.” Astma-Allergi Danmark (Asthma-Allergy Denmark), the patient association which developed the app. | http://bit.ly/2S08fhY
Web-based app for detecting disease outbreaks earlier than conventional surveillance methods.
App to help people to read who have lost their central vision, for example through Macular Disease.
“The MD_evReader is a free app for the iPad or Android tablets, which has been developed to help people with a central vision loss read. It presents text from eBooks in a scrolling stream across the screen, in a similar way to a news ticker or a display board on a train. The app is designed for those people who use Eccentric Viewing (EV) and/or steady eye strategies for reading. Some people with macular degeneration may find it useful as a reading aid, or as a way of practising the Eccentric Viewing and steady eye techniques.
The line of text scrolls horizontally from left to right and the reader aims to hold their gaze away from the line to view it with their best region of vision. The trackpad is used to control the speed of the text.
In order to read with the MD_evReader you might need to eccentrically fixate so that you have a good piece of vision through which you are able to view the slowly scrolling text. Try holding your vision still (steady eye) and let the text move. Both Eccentric Viewing and the steady eye strategies take practice but can be well worth the effort.”
The MD_evReader is intended for people with macular degeneration who use the Eccentric Viewing and/or steady eye strategies and may not be for everyone. Reading in this way will require some practice and familiarity with Eccentric Viewing. The app works with any ePub document but may not work with eBooks that are under copyright, due to publishers’ restrictions. The app will only upload eBooks that do not have ‘DRM’ encryption, such as out of copyright books and those from small publishers. You can find books from gutenberg.org or torbooks.co.uk or by searching for ‘DRM free eBooks’.”
Collection of over 2,500 medical terms, explained and cross-referenced.
Aims to help the user overcome fear of flying.
App to access easy-to-understand information on each prescription medicine in Australia.
“Medsearch is a free app to help you find, view and save documents for registered prescription medicines included on the Australian Register of Therapeutic Goods.
The app means you can keep information about your medicines in one place and it also allows you to share information with family and friends.”Australian charity, Diabetes Australia | http://bit.ly/2Vr8EMA
Helps to manage medications by storing a list of the user's medicines, doctors and pharmacists.
“ ‘MedTracker’. It lists my medications, and gives a very audible reminder, even when in silent mode. It is a USA-based app, though, and it is also not very easy to use. If I want to skip a dose, for instance, it keeps reminding me I need to take the dose, even if I want to skip it.”Person with arthritis, UK | PatientView survey, August 2014
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
App game to raise awareness of cause and impact of mitochondrial disease.
“Who do YOU want to challenge to be the new hero of the mitoverse?
Share the Mito Warrior app with one of your friends to see who can restore power to the mitoverse and to learn more about mitochondrial disease!”
List of 12,500 food-and-beverage products sold in Spain. For people with gluten intolerance.
Medication manager and reminder app for people with a mental health problem.
Molehill Mountain is designed to help autistic people understand more about their anxiety. The app is based on Cognitive Behaviour Therapy (CBT) approaches adapted for autistic people and developed from a paper toolkit focused on psychoeducation…
Molehill Mountain aims to help users build their knowledge, confidence and skills to understand and self-manage the causes and symptoms of their anxiety. It offers a practical way for autistic people to track their worries and the situations that trigger their anxiety that can be used whenever and wherever it’s needed.”Autistica, the UK research charity with helped to develop the app | https://bit.ly/2ZgqEJy
App to help people recover from a heart attack.
“After a heart attack, you're told to focus on recovery. Then you're left to figure it out. What are the next steps? Where do you find reliable information? How do you make good health habits and stick to them? Or keep track of medications and doctor's appointments? And with all that to worry about, how do you keep from getting too overwhelmed to move forward?
Those are just the kinds of questions that inspired the American Heart Association to develop My Cardiac Coach, a free mobile app that can help you find your way to a healthier future after a heart attack.
My Cardiac Coach is a personalized recovery toolkit you carry in your smartphone. It gives you anytime/anywhere access to everything you need, including:
“The app provides children and their parents with their own personal healthcare record which contains information about their CF. The app has been designed to allow children and their parents to keep together all the information that they may need to help manage their CF care.
The app has three different formats depending on the child’s age, namely 0-5, 6-11 and 12-18 years, and adjusts the phrasing and content to suit the child’s age. As the app was developed by the OLCHC CF unit, much of the content directly relates to how children with CF are managed at OLCHC. We envisage that parents and older children with smart phones will open the app while at CF clinic to access any clinical information or questions which have been logged over the past few months.
We think of the app like a storybook of lots of important information about CF that families can access whenever they need and this is why we called the app “My CF Story”. We hope that families will find this app empowering and that it will become an integral tool in managing their child’s CF.”Dr Des Cox, Consultant in Paediatric Respiratory Medicine, Our Lady’s Children’s Hospital, Crumlin, which developed the app with the patient organisation, Cystic Fibrosis Ireland | https://bit.ly/2UdzyWu page 11
“My IBD Care is an app developed by Ampersand in partnership with Crohn’s & Colitis UK, which allows people to track medication and symptoms, plus patterns of diet, sleep, exercise and pain.
It's a cloud-based dashboard which allows healthcare professionals, friends and families of sufferers of Crohn’s or Colitis to understand how well, between appointments, someone with Crohn's or Colitis is and how effective different care pathways are.”Crohn’s and Colitis UK, the patient group which developed the app | http://bit.ly/2sQG7UC
“This new app is really positive for anyone that is still working. It’s extended my working life really because…previously I was having to work around diary dates to get me to the clinic. Now I can test in the morning at home…I can test myself on the train going up and down from London….It’s given me quite a lot of freedom.”Martin Smith, patient with atrial fibrillation | http://www.inhealthcare.co.uk/resource/inr-self-testing-martin-smith/ Including recording of interview on Radio Yorkshire
“The Epilepsy Foundation My Seizure Diary is a self-management tool for seizures and epilepsy with a focus on self-monitoring and tracking seizures and other symptoms, managing medication and other therapies, recognizing triggers and health events that may affect seizures and wellness, and communicating with your care providers.
Use My Seizure Diary to also organize your health history, develop seizure response plans and help you remember medicines and other important information…
…The MY SEIZURE DIARY platform includes a fully responsive web application on diary.epilepsy.com as well as native iOS and Android companion apps.”
Aims to help people with asthma (aged over 12) to manage their condition.
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
“myEyes is a technology ecosystem through which we create “blind compliant” zones, that is, zones adapted for people with vision problems.
It is a pioneering system through which the mobile phone speaks to the person…narrating what is around while giving guidance on how to get from one point to another.
Aims to provide the user with new perspectives on the task of managing inflammatory bowel disease (IBD).
Portable health record that can be shared with doctors or anyone else involved in a user’s healthcare.
An app for a social network and support group for women living with Polycystic Ovary Syndrome (PCOS).
“myPCOSteam is a free social network that makes it easy for you to:
When you or a loved one are first diagnosed, it's not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.
myPCOSteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.”PCOS Awareness Association, USA, a volunteer-based not for profit organization for the education, awareness and support of people affected by Polycystic Ovarian Syndrome. The Association approached the developer MyHealthTeams to set up the social network | http://www.pcosaa.org/mypcosteam/
Help the user to reach diet, weight-loss and fitness goals (whether losing, maintaining or gaining weight) by tracking daily exercise and daily calorific, fat, carbohydrate, and protein intake.
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Directs parents of babies to the nearest public baby-changing facilities in the UK.
App about the subjects of neurology and neurosurgery.
Allows the user to check personal medical symptoms, and, if necessary, receive telephone advice from a call operative within an hour.
Allows runs to be mapped, and progress tracked.
Information and support for patients, carers and clinicians dealing with Neuromyelitis Optica (NMO).
“Get the NMO basics with the latest in NMO information, videos, and answers to frequently asked questions.
Learn more about the latest scientific and medical insights into adult and pediatric disease, imaging, laboratory tests, and potential relationships of NMO/SD to other autoimmune diseases.
The NMO video library includes patient stories, questions about NMO, seminars from our NMO Roundtables, and more.
Stay up-to-date with access to fresh peer-reviewed research that have been made available and open-source.
Learn more about clinical trials, including how to participate.
Keep all of your NMO related notes and thoughts in one place.
Connect with all the NMO support groups that meet in person as well as online or through telecons.
Everything you need to help us with blood samples and/or clinical data donations for our Biorepository. Blood samples and clinical data are vital for NMO research.
Learn more about The Guthy-Jackson Charitable Foundation and connect with us on social media.
Browse this organized database of over 200 doctors with awareness and experience in NMO.
Access our popular patient resource guide.
In addition to native VoiceOver ability, you can modify font size and font thickness with accessibility settings.”The Guthy-Jackson Charitable Foundation, the US-based charity which created the app | http://bit.ly/2RLAOMv
Tracks indoor and outdoor exercise activities, and indicates how many calories were burned.
MHA [Mental Health America’]’s 2018 mPower Award goes to Hannah and Charlie Lucas from Cumming, Georgia for the creation of the notOK App™. Hannah, 16, struggled with depression and self-harm last year, her freshman year of high school, after being diagnosed with a chronic illness that led her to be bullied and taunted at school. An idea formed in her head during her lowest moment: an app that would let people know she was not OK. With the assistance of her younger brother, Charlie, 13, the Lucas children got to work on the app idea which would become the notOK App™.
Lifestyle planner for managing changes in nutrition and exercise regimes—one potential aim of which might be slowing the progression of diabetes, for instance.
Aims to help people on oral anticoagulant therapy (OAT) to monitor and control their medication routine.
Brings a magazine-style interface to information about research into cures for rarer, more-neglected, diseases.
List containing information about rare diseases.
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
Educational games developed for people with learning disorders including autism.
“Otsimo child is a platform designed specifically to educate children with autism and learning disorders. It contains dozens of educational games and free basic AAC [Alternative and Augmentative Communication]. Educational games are developed by applying the Applied Behaviour Analysis (ABA) technique. Otsimo is a bundled platform which contains Otsimo Child and Otsimo Family apps.”Autism Education Trust, founded by the UK charities the National Autistic Society (NAS), Ambitious about Autism (AaA) and Council for Disabled Children (CDC) | http://bit.ly/2BPLFA8
“OurBrainBank is a non-profit dedicated to moving glioblastoma from terminal to treatable, powered by patients.
Our key tool is the OurBrainBank app which helps people manage their disease as well as provide much-needed data for medical researchers…
…As you progress, you may view your data at any time: access reports via the menu icon (bars at the top left of the app screen) and select ‘my reports’. Compare different symptoms and view your progress over time.
You may share your data with other people, including your healthcare team, so they can see how your symptoms may have changed. This may help you understand the relationship between your treatments and your symptoms.
The app allows you to self-track neurological function with games that test balance, ability to compare numbers, and speed of neurological function. They’re quite addictive!
The app can be used to track health data such as your weight, blood pressure, or blood sugar. There’s also a neat journal feature, so you can record how you’re doing.
We plan to publish our findings widely, sharing the insights gleaned from the aggregated data, and driving more research to crack glioblastoma.We encourage you to continue to participate after your first 100 days. Your input is crucial to the success of the mission — to turn GBM from terminal to treatable” OurBrainBank, the not-for-profit US patient group which developed the app | https://bit.ly/3bpP746
“Ovarian cancer has four main symptoms:
…If your symptoms are:
Tool to help patients manage chronic pain or sports injuries.
Provides information about Parkinson's disease, treatments, and living with the condition.
Contains 900-plus patient-information leaflets about health and specific medical conditions.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
App to help patients manage their electronic health records, including for kidney disease, diabetes and Inflammatory Bowel Disease (IBD).
“PatientView allows you to view, monitor and plot trends of your blood results as well as allowing you to view your clinic letters and upload your own readings such as weight and blood pressure.
This will help you understand more about your condition and how your lifestyle is affecting your condition, for example, you can monitor how well you’re adhering to your dietary restrictions such as salt, potassium and phosphates.
…Please, note that note all renal centres use PatientView and those that do not may not use all of its facilities.”GMKIN (Greater Manchester Information Network), a joint venture between patients with chronic kidney disease, clinicians and the University of Salford. | http://bit.ly/2Wur7Fk
Demonstrates how to perform a series of exercises intended to ease and prevent pain and discomfort in muscles and joints.
“We are pleased to announce the release of our new and improved app, which is available free to download on Apple and Android mobile devices.
Here’s a selection of things you can do with the new features:
As part of a patient community, we can drive forward progress in PBC simply by recording data on the unmet needs we face every day. With you becoming part of our international patient registry, we will be able to directly influence medial research and help pharmaceutical companies discover new treatments to help PBC sufferers.
The tools, publications, and information you record can be shared with your clinician to assist with your ongoing appointments. Everything you record will be safely stored, anonymised and protected by our digital partner MTC Media.”PBC Foundation, the UK patient group which developed the app. | https://bit.ly/3n2RGyv
Aims to give people with Parkinson’s disease (and their carers) real-time management of the condition.
You can view your history and trends…The history shows how you did on different tests and the trends show your baseline, performance, PD symptoms, fatigue and medication over time… enabling you to continually monitor your performance with respect to when you took medication for example. There is also a ‘diary only’ option which allows you to simply look at your PD symptoms, fatigue and medication over time.”Leah Mursaleen, Parkinson’s Movement, a patient group aiming to connect patient experience with scientific expertise | http://parkinsonsmovement.com/devices-and-apps/dont-worry-be-appy/
Pedometer tracks steps taken, speed achieved, laps covered, distance traveled, and calories burned.
App to enable people to exercise pelvic floor muscles to maintain or improve bladder control, and exercise safely.
“Pelvic Floor First is a free, safe-exercise app to enable people at risk of or living with pelvic floor dysfunction to continue to exercise without putting additional pressure on their pelvic floor.
The Pelvic Floor First app has customised workouts for people of all fitness levels and pelvic floor strength. The wide range of exercises have been designed by a physiotherapist and fitness leader to ensure people enjoy the benefits of a total-body workout that protects their pelvic floor muscles.
App features include:
The free app is based on the Continence Foundation of Australia's Pelvic Floor First website.”
“The Continence Foundation's free, safe-exercise app is now available to view online at http://app.pelvicfloorfirst.org.au/index.php
The online version has the same three customised workouts for people of all fitness levels and pelvic floor strength. The wide range of exercises have been designed by physiotherapist and fitness leader Lisa Westlake to ensure people enjoy the benefits of a total-body workout that protects their pelvic floor muscles.”
Reminder to take medications on time.
Reminder to take medications on time.
Daily-updated summary of pollen levels and dispersal in Norway.
PTSD Coach provides service members, veterans, their friends and families with dependable resources they can trust. Many service members who experience PTSD symptoms can benefit from care and support, but some fear that they may be considered weak or that leaders or unit members might lose confidence in their abilities if they seek care. The information available through the PTSD Coach app can help service members and their loved ones overcome those concerns and obtain accurate information about PTSD and find the support they need.”Real Warriers Campaign, organised by the Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE). The organisation collaborates with a civilian agencies and advocacy groups. | http://bit.ly/2lyqGMf
Tool that helps people remember, and manage and organise their lives.
Provides information on how to conduct cardiopulmonary resuscitation (CPR).
Allows carers, family and friends to form a network, keeping in touch to arrange the care of a person or patient who needs help. Already available to 7 million people in the UK.
"Neurosupport, in partnership with the Walton Centre and the 5 Boroughs Partnership are promoting Rally Round to improve the support of carers of people with dementia. "Rally Round is an online support network designed to make it easy for you to organise help so that someone close to you can stay independent longer. It's free, safe and private. Neurosupport's Information Officer, Kathyrn Topping, is able to offer help and advice to individuals and groups who would like to start using Rally Round. She can offer one-to-one help in setting up an account and is also available to give talks and demonstrations of the website to groups. Please get in touch to arrange a visit or for more information. Rally Round can be used to support people in a wide variety of situations, over a short or long-term, including those with, or caring for, people with Alzheimer's Disease, Parkinson's Disease, Multiple Sclerosis, Dementia, Mental Health conditions, Cancer, Stroke rehabilitation, recuperation after illness etc"Neurosupport,UK | http://bit.ly/1gpbSYK
Provides information on how to carry out cardiopulmonary resuscitation (CPR), with a particular emphasis on aiding victims of choking.
Tracks the user’s remaining amounts of medications, displaying a countdown of the quantities left, and indicating how many days, weeks, or months, remain of each medication.
Restaurant guide that allows the user to track restaurant meals eaten, and to view nutritional information on the 60,000-plus food items held in the menus of over 250 restaurants.
"All young people with rheumatoid arthritis are now getting the tool we have longed for - a digital tool that can register the variations in the RA between visits at the rheumatologist. It is very important for young people with RA to have an overview and take control of the symptoms, and in combination with the buddy-feature, the app has a huge potential of becoming enormous beneficial not only for the individual patient but also contributing to a much better program of treatment. We are very proud of this project."James Rickmann | FNUG
Helps people with rheumatism monitor their condition.
Provides information on how to conduct cardiopulmonary resuscitation (CPR) for adults.
Prescription reminder that alerts the user to the need to take a prescription.