App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Provides information about breast cancer, and about treatment of the condition.
App for people at risk of or diagnosed with bowel cancer
“In the era of personalised medicines and oral chemotherapy taken at home, Bowel Cancer Australia is getting Aussies ready for the future of patient care with a new bowel cancer app….
The comprehensive bowel cancer app…provides easy access to accurate information about bowel cancer, its prevention, diagnosis and management.
"Our bowel cancer app is responding to the changing needs of bowel cancer patients and their families or carers…For example, as more oral chemotherapies become available enabling people to receive treatment at home, we expect to see a shift away from written patient treatment diaries to online diaries that can then be emailed to the patient's specialist."
"We've also designed the app to be easily personalised. It has the capability to store screening reminders, treatment and mood diary entries and even record notes from medical appointments."
UPDATE: Bowel Cancer App 2.0
“The updated Bowel Cancer App 2.0 retains the comprehensive bowel cancer content frequently accessed in the first version of the app including the ‘Need to Know’, ‘How to Test’ ‘Living With’ and ‘Need to Ask’ sections, but also offers users additional benefits previously unavailable.
A new ‘Motivate Me’ feature enables people to monitor their diet and lifestyle on a daily basis as one way to help reduce their bowel cancer risk. Users can also connect one-to-one through the App as part of Bowel Cancer Australia’s Peer-to-Peer support and buddy network, Australia’s only national bowel cancer support group for patients and loved ones.
Other valuable features include screening tips and tools, a list of questions to ask throughout the patient journey, a customisable treatment and mood diary, recipes and a meal planner.
Consistently featuring in the top 100 medical apps in both the App Store and Android Store, the Bowel Cancer Australia App provides users with answers to questions about bowel cancer which many people feel uncomfortable asking and continues to make it easier for people to access relevant bowel cancer information.”Bowel Cancer Australia, the patient charity which developed and updated the app. | http://bit.ly/2QgTtDW
Information on how to check breasts, and on lifestyle choices for decreasing the risk of breast cancer.
Provides patients (and their carers and families) with information on up to three cancers (breast, lung and prostate), supported by interactive illustrations, photos and videos. Now only available via website. The app version is no longer supported.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
Features the activities of Belgium-based multi-stakeholder organisation specialising in cancer, the European CanCer Organisation (ECCO).
“Cervical Cancer is the 2nd most common cancer in Portuguese women under 50.
In Portugal, the HPV vaccine prevents 97% of cases, proving that there are cancers that can be prevented!…The Portuguese League Against Cancer launches the Cervical Cancer and HPV App as a contribution to the prevention and early diagnosis of cancers associated with Human Papillomavirus (HPV) infection. This application meets specific accessibility criteria for the blind and visually impaired.” Patient group Liga Portuguesa contra o Cancro (Portuguese League Against Cancer) | http://bit.ly/2Vxi750
Contains a video on how women should properly check their breasts for cancer. Is approved by NHS Choices as being safe.
“The app was built with advice from Dr Licitra of the Cancer Institute of Milan, with sponsorship from us, the Associazione Italiana Laringectomizzati (AILAR), and the Federazione Italiana delle Associazioni di Laringectomizzati e Pazienti Oncologici (FIALPO), and the Associazione Italiana di Oncologia Cervico-Cefalica (AIOCC). The app is an effective tool for patients with tumours of the head or neck, and also for people who have difficulty speaking. The app allows you to activate a voice synthesiser from a repertoire of phrases that best meet the basic needs of these types of patients. You can also write short sentences to be sent to the speech synthesiser, producing either a male or female voice.”Associazione Italiana Laringectomizzati (AILAR), Italy | Source no longer available
Allows audio, images, and video relevant to cancer symptoms, and to life with cancer, to be stored in a logbook, and shared with carers, doctors, family, etc.
App designed to support patients in managing lung cancer from diagnosis through to treatment.
“The LUNGevity Lung Cancer Navigator is a customizable mobile app that puts your entire support network in the palm of your hand.
The app was created for lung cancer patients, family caregivers, and support team members to manage life after a lung cancer diagnosis. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friends and family.”Longevity Foundation, the US-based patient advocacy and research charity for lung cancer which developed the app | http://bit.ly/2PQexRu
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
“OurBrainBank is a non-profit dedicated to moving glioblastoma from terminal to treatable, powered by patients.
Our key tool is the OurBrainBank app which helps people manage their disease as well as provide much-needed data for medical researchers…
…As you progress, you may view your data at any time: access reports via the menu icon (bars at the top left of the app screen) and select ‘my reports’. Compare different symptoms and view your progress over time.
You may share your data with other people, including your healthcare team, so they can see how your symptoms may have changed. This may help you understand the relationship between your treatments and your symptoms.
The app allows you to self-track neurological function with games that test balance, ability to compare numbers, and speed of neurological function. They’re quite addictive!
The app can be used to track health data such as your weight, blood pressure, or blood sugar. There’s also a neat journal feature, so you can record how you’re doing.
We plan to publish our findings widely, sharing the insights gleaned from the aggregated data, and driving more research to crack glioblastoma.We encourage you to continue to participate after your first 100 days. Your input is crucial to the success of the mission — to turn GBM from terminal to treatable” OurBrainBank, the not-for-profit US patient group which developed the app | https://bit.ly/3bpP746
“Ovarian cancer has four main symptoms:
…If your symptoms are:
Skin-cancer prevention tool that provides an on-the-spot risk assessment.
Allows a user to check for skin cancer by conducting self examination.
Allows the user to follow the progress of World Child Cancer projects around the world, and to find out more about how cancer is faced by children in the developing world.
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