Allows a user to send a telephone message, text message, and GPS location to the emergency services in Iceland.
For adults with attention-deficit hyperactivity disorder (ADHD) (whether diagnosed or undiagnosed).
Interactive app on Facebook, intended to raise awareness of end-of-life issues.
App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Provides information on inflammatory bowel disease (IBD), dieticians and hospitals, and on the activities of France-based patient group, Association Francois Aupetit (AFA).
Diabetes management log.
Alcohol consumption tracker and drinks diary intended to help a user change drinking habits.
The AliveCor® Heart Monitor: Mobile ECG device that,provides individuals with the ability to track heart health anywhere, anytime at an affordable cost.
“The ‘AliveECG’ works in conjunction with the free AliveECG app and is designed for medical professionals, patients and health-conscious individuals to record, display, store and transfer single-channel electrocardiogram (ECG) readings. These recordings could be saved on the mobile device or shared with others (such as your doctor) via email. AliveCor’s Heart Monitor has been used in several clinical trials, and demonstrated accuracy and efficiency to produce a single-channel rate-and-rhythm assessment. Arrhythmia Alliance members have the chance to purchase the app with an exclusive discount of £5, using voucher code ‘hrc2013a’ when bought from Amazon. A percentage of the sale will also be given to Arrhythmia Alliance.”
Arrhythmia Alliance (AA), UK | http://bit.ly/1nlLnCa
Displays letters of the alphabet, words and numbers which children (including those with learning disabilities) can trace over, to help in learning to write.
App providing information on Alzheimer’s Disease, primarily for clinicians, but also including support for patients and carers.
“The free Alzheimer’s Association® Alzheimer's Disease Pocketcard app puts reliable information and assessment tools at your fingertips.
Helps people in the UK who are homeless (and their providers of social care) to locate resources within a given geographical radius of their phone.
Game involving characters modelled on birds and pigs, and which is said to feature physics-based gameplay.
Chromotherapy app intended to reduce mental stress by demonstrating the therapeutic value of 256 shades of colour.
App library of apps and websites which support carers.
“Apps4carers app is a new mobile app dedicated to carers which includes a repository of selected apps and websites in partner countries, information and tutorials on their use
Apps for carers is your handy tool, easy to use, to navigate the selected resources from the following categories:
Contains information on detecting, treating and managing arthritis.
Provides information on how older people, and people with a disability, can find solutions to a wide range of activities in the home that might present them with problems.
Mobile website to help people self-manage their asthma
“Asthma Buddy has helped hundreds of Australians manage their asthma for many years. We hope this new useful tool can help you take control of your asthma and improve the quality of life for you and your family.”
As a leading organisation for asthma care, the National Asthma Council Australia promotes best-practice care to people with asthma and their families.
…“Asthma Buddy is a digital Asthma Action Plan that lives in your pocket,” said Siobhan Brophy, Chief Executive Officer, National Asthma Council Australia.
“You can refer to it to know what daily asthma medication to take. It will also help you recognise if your asthma is getting worse and give you advice on what you should do in response.
…We designed Asthma Buddy with end users in mind,” We know mums always have a million things on the go, so we want to help them stay on top of their children’s asthma management.”
The launch of the Asthma Buddy mobile website is funded by GSK Australia. The National Asthma Council retained editorial control.The National Asthma Council, the Australian charity which developed the app. | http://bit.ly/2zmNKEX
Logs asthma activity, medicines, triggers, and peak-flow readings in diary and graph form.
Allows a user with asthma to record event information (such as environmental conditions, symptoms, treatments, and vital signs) that may be relevant to asthma.
Provides information on recognising signs of a stroke, and techniques of assistance.
First aid app for children and babies
“This free app provides simple, easy-to-learn skills to help a baby or child in a first aid emergency.
It is packed with useful tips, animations, and video clips. You can test your knowledge using the app’s built-in first aid quizzes. There is also a handy device to record your child's medication needs and any allergies.
The information you need is all hosted on the app itself, meaning no internet connection is needed, making it fast and easy to access.”Red Cross UK, developer of the app | http://bit.ly/2KLCgeK
Displays exercises suitable for people with ankylosing spondylitis (AS).
Diabetes management app intended to simplify diabetes management, and to be used by adolescents and younger people with diabetes.
Designed to guide a user through a panic attack, or through an episode of raised anxiety.
App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Allows carers, healthcare professionals, parents, and teachers to track the behaviour patterns of children, and to present them in graph form.
Provides real-time feedback, and visual and audio instructions, on how to learn and practice hands-only cardiopulmonary resuscitation (CPR).
Simplified phone ‘home’ screen for older people, and for people with visual impairment (and even for anyone who dislikes numerous phone icons).
Provides advice helpful to people with anxiety, debt, stress, or work problems.
Assesses whether a user might be at risk of blackouts.
Tool to track bladder health in both men and women.
Allows a user to record diabetes-related personal information, including blood glucose levels, carbohydrate consumption, and medication.
Allows recognition training of fleeting facial expressions known as ‘micro-expressions’.
“BookSmart for home allows parents and caregivers to access a library from their mobile phones so they can support their children’s learning after the school day or when physical schools are not in session. BookSmart starts with a free base collection – 75+ great local and international books suitable for young readers and their parents…
…These books support the learning and socio-emotional development of children ages 3 to 12 years. The collection includes books in Arabic, English, Hindi, and Spanish. Books can be read online or offline to save on data costs.”
App for people at risk of or diagnosed with bowel cancer
“In the era of personalised medicines and oral chemotherapy taken at home, Bowel Cancer Australia is getting Aussies ready for the future of patient care with a new bowel cancer app….
The comprehensive bowel cancer app…provides easy access to accurate information about bowel cancer, its prevention, diagnosis and management.
"Our bowel cancer app is responding to the changing needs of bowel cancer patients and their families or carers…For example, as more oral chemotherapies become available enabling people to receive treatment at home, we expect to see a shift away from written patient treatment diaries to online diaries that can then be emailed to the patient's specialist."
"We've also designed the app to be easily personalised. It has the capability to store screening reminders, treatment and mood diary entries and even record notes from medical appointments."
UPDATE: Bowel Cancer App 2.0
“The updated Bowel Cancer App 2.0 retains the comprehensive bowel cancer content frequently accessed in the first version of the app including the ‘Need to Know’, ‘How to Test’ ‘Living With’ and ‘Need to Ask’ sections, but also offers users additional benefits previously unavailable.
A new ‘Motivate Me’ feature enables people to monitor their diet and lifestyle on a daily basis as one way to help reduce their bowel cancer risk. Users can also connect one-to-one through the App as part of Bowel Cancer Australia’s Peer-to-Peer support and buddy network, Australia’s only national bowel cancer support group for patients and loved ones.
Other valuable features include screening tips and tools, a list of questions to ask throughout the patient journey, a customisable treatment and mood diary, recipes and a meal planner.
Consistently featuring in the top 100 medical apps in both the App Store and Android Store, the Bowel Cancer Australia App provides users with answers to questions about bowel cancer which many people feel uncomfortable asking and continues to make it easier for people to access relevant bowel cancer information.”Bowel Cancer Australia, the patient charity which developed and updated the app. | http://bit.ly/2QgTtDW
Tool for viewing the brain in 3D.
Information on how to check breasts, and on lifestyle choices for decreasing the risk of breast cancer.
App for parents with children under five to help them deal calmly with problems and frustration.
“For some kids, managing everyday feelings can be a big challenge. Apps like ‘Breathe, Think, Do with Sesame’ can model more productive ways to deal with emotions.
The app shows kids a familiar face from Sesame St having trouble with something such as tying their shoes or going to bed. The app helps kids realise that everyone has moments like this in their lives.
And it also shows them how to use calming exercises like breathing deeply along with a monster friend. That can help kids manage their frustration.”
App intended to show the correct length of time when brushing teeth.
An app for medical professionals to purchase, and then to pass on to patients who are living with a mental health problem.
App aimed at teenagers to help resist or manage the urge to self-harm.
“The Calm Harm app powered by Stem4 helps young people resist or manage the urge to self-harm. Developed by Dr Nihara Krause, a Consultant Clinical Psychologist, together with ideas from young people, Calm Harm uses strategies from Dialectical Behaviour Therapy (DBT) to help users learn to identify and manage their ‘emotional mind’, teaching impulse control, emotional regulation and tracking underlying triggers to harmful urges…
…We worked co-collaboratively with young people to develop Calm Harm. The co-collaborative workshops with young people explored desired outputs, user journeys, visual concepts, security/privacy, user experience, and tone of voice…
…Calm Harm is recommended for the ages of 13 years and above. If a younger child would like to use it, it is recommended that this is done under the guidance of a responsible adult.
…Calm Harm educates using strategies from evidence-based Dialectic Behaviour Therapy (DBT). DBT has been shown to be an effective treatment for some groups of patients who self-harm…
…Please note that Calm Harm is not a substitute for assessment and intervention by a mental health professional. It is recommended a GP should be consulted in the first instance.”Stem4, the UK youth mental health charity which developed the app with young people | http://bit.ly/2Z6kU3I
Food and calorie tracker with a database of a million-plus foods.
Weight- and nutrition-management app that allows dietary goals to be set.
Allows a user to find nutritional information about food, and to track meals, exercise and weight.
Provides patients (and their carers and families) with information on up to three cancers (breast, lung and prostate), supported by interactive illustrations, photos and videos. Now only available via website. The app version is no longer supported.
App that helps people with cancer to prepare for consultations, and record answers given.
“Patients diagnosed with cancer are confronted with vast quantities of life-changing information at a time of great stress. They are also under pressure to communicate details of their condition and treatment to many family and friends.
This can be a harrowing experience and the frustration of not recalling or clearly understanding a clinician’s words during a consultation can add to patient stress and anxiety. Similarly, trying to explain the diagnosis, treatment or likely outcomes to family is difficult.
By providing a structured mechanism with which to communicate questions and to record answers, the CANrecall App uses contemporary technology to assist patients at this time of great need. It will also be particularly beneficial to semi-literate or foreign language patients as it will allow them to seek medical attention and then receive later assistance from family or social workers to better understand their diagnosis and any proposed treatment therapies.
Patients today meet with their clinicians in a manner that is virtually unchanged in the past 100 years. This despite all the growth in technology and our understanding of patients’ psychological needs. Using both technology and professionally developed Question Prompt Lists the app will significantly improve the doctor/patient interaction and the resultant patient experience.”Race Cancers Australia, the charity which developed the app. | http://bit.ly/2LFxO47
Carbohydrate-counting app intended to help children with diabetes gain the skills required to count carbohydrates.
Allows the user to count the amount of calories and carbohydrates contained in food and drink by consulting the app's 1,400-plus photographs of food and drink items.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
Allows a carer to track the contents of a person's medical records.
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
Allows a user to pick a charity (from a provided list), and raise money for it by sponsored cycling, running, or walking.
Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.
App aimed at 11-25 year olds who have been bereaved.
The app has been created by a group of bereaved young people working directly with Child Bereavement UK.
It has been developed for 11-25 year olds who have been bereaved of someone important to them. It can also be used by friends, teachers, parents and professionals who would like to know how to support bereaved young people.
The app has information about:
The app aims to help bereaved young people feel less alone and to inspire others on how to support them.Child Bereavement UK, the charity which developed the app. | http://bit.ly/2ONrDeg
“Benefits are: It contains information on 5 common feeding pitfalls, in a WHAT, WHY, WHAT TO DO format. It explains the WHY a behaviour is occurring, which parents have said is really good and fills a gap in their knowledge. Many feeding resources currently do not explain the psychology and physiology around children's feeding behaviour. It explains not only WHAT to do, but with tangible, interactive tools to help. It allows parents to track their child's eating behaviour, but also their own well-being. This can be very useful for anxious parents who can become entrenched in feeding problems and not objectively see improvements. If parents learn healthier, more adaptive ways to feed their children, then the health of children will be improved. This is both in terms of what is eaten (increasing variety and liking fruit & veg) but also HOW it is eaten (less coercion so children are allowed to learn to regulate their own intake, something that is important in the battle against obesity). It represents a useful preventative resource, that can be used before weaning to educate parents on children's developmentally predictable responses to food, BEFORE problems occur. It's easy to use and an app may be a better medium to reach less engaged families/parents, than having them come and visit their health visitor. It's free to download, so available to all. Drawbacks are: the app does not deal with nutritional information e.g., how much carbs, protein etc a child has eaten / should eat per day.”Review from the developer: a community of mothers at Loughborough University Centre for Research into Eating Disorders, UK | PatientView Form, 2014
App which provides a range of ways to help young people manage anxiety.
“Clear Fear is an app developed for the teenage mental health charity Stem4, by Dr Nihara Krause, Consultant Clinical Psychologist, and uses the evidence-based treatment CBT to focus on learning to reduce the physical responses to threat by learning to breathe, relax and be mindful as well as changing thoughts and behaviours and releasing emotions.
You can personalise the app if you so wish and you will be able to track your progress and notice change.
Please note the app is an aid in treatment but does not replace it…
…The fear of threat, or anxiety, is like a strong gust of wind. It drags you in and makes you want to fight it or run away.
Instead, face your fear with the free Clear Fear app and learn to reduce the physical responses to threat as well as changing thoughts and behaviours and releasing emotions.
Anxiety is a natural response to fear, threat and apprehension. However, when anxiety is extreme or goes on for a long time, or the response to a threat is disproportionately large and affects a person negatively, it may become an anxiety disorder.
Anxiety disorders are the most common form of emotional disorder and respond very well to a form of treatment called Cognitive Behavioural Therapy or CBT.”Stem4, the UK youth mental health charity which developed the app with young people | http://bit.ly/2GkVisE
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
Designed for people with inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, and who are scheduled to receive a colonoscopy.
When a user photographs an object, and then taps the on-screen image of the photographed object, the app will read aloud the object's colour.
App designed for people who have had strokes, providing practical support and information.
“With support from the Patient Centered Outcomes Research Institute (PCORI), this customizable mobile app has been developed for stroke survivors specifically based on their feedback and needs.
The app provides the stroke survivor or their caregiver with the ability to:
The app was developed through a collaboration with National Stroke Association, The State University of New York (SUNY) Downstate Medical Center, City University of New York (CUNY), and The Arthur Ashe Institute for Urban Health.”The US National Stroke Association, the not-for-profit organisation that helped to develop the app. | http://bit.ly/2QslTLl
Helps people who have a stuttering problem to speak more fluently.
Allows the user to remain connected with the DAFNE Online support network for people with type-1 diabetes who have attended the ‘Dose Adjustment For Normal Eating’ (DAFNE) course.
Diabetes management app for people with type-1, type-2, gestational, latent-autoimmune diabetes of adulthood (LADA), or secondary diabetes.
App that aims to put a ‘human face’ to worldwide aid and poverty statistics, and to demonstrate progress towards United Nations (UN) Millennium Development Goals (MDGs).
Training and educational app for use with the Dexcom 7 glucose-management sensor.
Diabetes data-management app that allows the user to log and track factors which influence blood-sugar level.
Diabetes diary for recording and tracking blood-glucose readings, carbohydrate intake, and insulin dosing.
Allows a user with diabetes to track A1c, blood-glucose levels, blood pressure, food intake, medication, weight, etc.
Diabetes management app for anyone with diabetes (whether taking insulin, other medications, or just involved with diet and exercise). Dietary advice and good information is provided.
Logs blood glucose, blood-fat and blood-pressure levels, calories, carbohydrates, HbA1c, insulin, ketones, and weight.
Diabetes logbook that allows a user to record and monitor blood pressure, carbohydrate intake, exercise regimes, glucose readings, insulin injections, lab results, medication, pulse, temperature, weight, and other vital statistics.
Carbohydrate-/meal-logging app and medication calculator.
Reminder to take medications on time.
Cookbook listing healthy foods.
Designed to help the user manage medication compliance.
Voice-recognition app that turns spoken words into on-screen text, which can be used as notes or as email.
Speech-recognition app that allows the user to conduct Internet searches on the phone through voice commands.
App to help families with Dravet Syndrome, a rare form of epilepsy that begins in infancy.
The first video game in the history of Dravet syndrome. Together with our friends from CEINPRO, we go a step further in the diffusion of Dravet syndrome.
Now, any user in the world can download Dravet Dream, an interactive game in which the main character is always accompanied by a butterfly overcoming different challenges related to this disease.
The game is in English, Spanish and Basque, it is free and you can download it for both Android and iOS devices.”
Features the activities of Belgium-based multi-stakeholder organisation specialising in cancer, the European CanCer Organisation (ECCO).
Wellness app to help women manage endometriosis symptoms.
“Stage IV Endometriosis warrior Melissa Turner developed Endo Empowered to provide women with the tools she used to improve her endo experience. There are dietary and lifestyle suggestions to help naturally manage endo symptoms, as well as a 21-day wellness challenge. (Going to bed before 10:00 PM or eating something green each day are just a few of the to-do’s.) Another popular feature? Daily self-care reminders, which can be set to any time, in any time zone. “The Endo Empowered platform was inspired by a strong desire to help women around the world by empowering them with tools, support, and hope to manage endometriosis and make life a little easier,” says Turner.”Bethanne Black, Endometriosis Foundation of America | http://bit.ly/2PajIu3
Diabetes-management journal for recording and tracking blood-glucose levels, carbohydrate intake, and insulin dosages - with reminders when to test your blood glucose
Helps people with epilepsy manage and improve their own health via seizure-management tools.
Utilises Tangram, a Chinese game in which several shapes can be assembled to make larger shapes, to teach a user how to make more complex shapes (such as a rabbit) in several levels of difficulty.
Shows citizens of EU Member States how to apply for a European Health Insurance Card (EHIC).
Dictionary of British Sign Language (BSL).
Utilises images to teach social skills that can help a person function independently in the community (including how to prepare a meal, take care of pets, travel around, and behave in shops).
Helps to track and record haemophilia-A factor-VIII infusions.
Aims to help the user overcome fear of flying.
App to develop positive feelings and resilience to deal with stress, depression and anxiety.
“Positive Mental Training is available as the iOS/Android app Feeling Good(now approved by NHS Digital App Library)
The app is free to download, and comes pre-loaded with:
A great feature of the app is a progress monitor in the form of a tree which gradually fills out with leaves and flowers as progress is made through the programme. We really like the growth metaphor.
You can set up listening reminders as well. The app has 2 mental health questionnaires, so you can assess your health status, this also helps us to assess the helpfulness of the programme (anonymously).”The Scottish mental health charity the Foundation for Positive Mental Health which developed the app | http://bit.ly/2w33NDf
Intended to improve the chances of conception.
Diet and weight-loss journal that offers an online ‘account’ to track food consumption and exercise levels.
App enabling women to track their periods and specific symptoms of endometriosis and other reproductive diseases.
“After suffering years of unexplained symptoms and multiple hospital visits, Flutter founder Kirsty Curry was diagnosed with endometriosis at age 28. Soon after, she sought on a mission to help other women more quickly navigate the road to diagnosis. Curry and her husband, both app-designers and developers, created Flutter. The app comes complete with a community to share experiences with as well as a handy symptom tool that can help users better advocate for themselves in the doctor’s office. “I also wanted an easy way to share a journal with your doctor, so we added an export tool, says Curry, who is also a board member for The Endometriosis Foundation of America. “The journal allows detailed symptomatology tracking that’s specific to endometriosis, which may help with screening and symptom management. And sharing the tracker with your doctor can eventually help with diagnosis.”Bethanne Black, Endometriosis Foundation of America | http://bit.ly/2PajIu3
Provides nutritional information on foods, with the aim of helping a user with diabetes to lose weight, and to manage diet.
A tool to help people at risk of osteoporosis to calculate their bone fragility.
Digital tool helping people in crisis to ask for and coordinate practical help.
“It was through this personal experience that I realised how hard it is to actually coordinate specific and practical help when going through a crisis.
Text messages, ring-arounds, spreadsheets and late night phone calls are difficult, time consuming and often just too much for someone to manage when they are already in the turmoil of a serious life crisis.
I wanted to help my friend but didn’t have the free time to coordinate all the assistance she needed with all the wonderful people who had offered to help…
…Gather My Crew is an online rostering tool that has been developed specifically to support people in crisis, to enable them to ask for and coordinate the practical help they need.
Using the expertise of people who had ‘been there, done that’, as well as the clinicians who supported them, Gather My Crew exists to make sure people going through a crisis get the right kind of help from all their well-meaning friends, family, neighbours and colleagues – without all of the stress that usually comes with coordinating help when a loved one becomes ill.
It is a way to ask for help – and then turns that help into a calendar that tracks and records who is doing what, and when. It even sends reminders and updates to keep everyone connected throughout the time the assistance is needed.
Gather My Crew is a registered charity, and the online tool is free and easy to use.”Susan Palmer, the psychologist who founded the Gather My Crew charity, writing for the Cancer Council patient group in Australia | http://bit.ly/2NqLmix
“GDm-Health has the potential to positively affect patient care, because people with gestational diabetes would be better able to interact with their healthcare team. GDm-Health removes bias in patient reporting of blood glucose levels, helping to improve trust.
It can potentially decrease unnecessary hospital visits and provide the midwife with more information for clinical decisions.
GDm-Health could improve patient health outcomes. It is unlikely that using GDm-Health would significantly effect on family, work or home life any more than usual blood glucose monitoring.
The only possible drawback could be anxiety around personal data handling, but this could be mitigated by assuring users of robust security.
The system is more likely to benefit patients who embrace new technology, particularly those who already use smartphones. For many users, especially those very familiar with smartphones, no special training would be needed.”
Expert contribution from the patient organisation to a medtech assessment paper by the UK National Institute for Health and Care ExcellenceDiabetes UK, patient organisation that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. | http://bit.ly/2G0nNxE
Designed to be used during the annual ‘Global Corporate Challenge’ (GCC) walk, a virtual event intended to promote personal fitness and better health. Android app no longer seems available.
Complementary logbook app that, when combined with the developer’s proprietary ‘Sync cable’, and various manufacturers’ compatible blood-glucose meters, saves a user with diabetes from having to manually enter blood-glucose readings.
Guide for people with diabetes (and their carers) in the emergency administration of the Eli Lilly product, Glucagon.
Diabetes management app that allows blood glucose, blood pressure, body-mass index (BMI), carbohydrate intake, exercise, HbA1c, insulin and medication doses, and weight to be tracked.
Data-storage utility for people with diabetes.
Blood-sugar and weight tracker.
Diabetes management app for recording and tracking blood glucose, food intake, insulin and medication.
Non-speaking, simple, picture-exchange system that can allow people with autism to express their needs independently.
App for people living with HIV/AIDS.
“Designed for people who need to limit their fluid intake, especially people with hyponatremia, kidney failure, or heart disease.
Helps the user to learn meditation. Click on browser link to see how Headspace works or go to https://www.youtube.com/watch?v=kEpOF7vUymc
Helps a user prepare for medical consultations and appointments by planning what should be said and asked, and by advising what sort of information should be brought to the consultation.
Offers answers to healthcare-related questions, according to condition, health concern, medication or symptom.
Allows 190,000 recipes to be browsed and searched, and favourites saved.
Quick, simple, self-applied hearing test that does not require an appointment with a medical professional.
App designed to help people with heart diseases to manage their condition.
“The Heart Failure Health Storylines mobile app is created with input from people with heart failure and congestive heart failure (CHF) so that the right health tools are available to you. Now it’s easy to record your symptoms, vital signs, medications, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.
Choose from the following health tools to better manage and monitor heart failure:
Carbohydrate counter with a food database.
Provides a list of phrases and images that can allow people who have trouble vocalising to communicate some of their needs and feelings.
Infusion log for people with haemophilia.
App and online tool to help people with mental health needs to access patient groups, charities and other sources of support across the UK
“Hub of Hope believes that no matter what you're going through, you shouldn't have to do it alone. Find services local to you using geolocation technology.
The stigma associated with mental health can make it difficult to talk about, however there are services out there with people who understand and are ready to help….
…Using the Hub of Hope is completely free and confidential. You are not required to provide any personal information or pay for use. It is simply there to say, if you should ever need help, whether for you or somebody you are looking after, we’ll make it easier to find.
The Hub of Hope has already been described as a vital and lifesaving tool by charities and mental health trusts.
In less than a year since its launch, the Hub of Hope has had
Instructs parents on how to liaise with schools and educational facilities, with the aim of ensuring that a child's needs are met.
Educational app about ankylosing spondylitis (AS).
Helps people with diabetes to track and manage blood-sugar levels.
Blood pressure tracking-and-analysis tool.
Contains a video on how women should properly check their breasts for cancer. Is approved by NHS Choices as being safe.
Allows a user to send anonymous photos of any skin condition to a dermatologist.
Headache diary that allows the number of headaches, their duration and severity, the degree of disability and impact, medication and usage, symptoms, and triggers to all be tracked.
Educational app intended to show the user how the UK-based charity Depaul UK works with homeless young people, and to give the user an idea of a typical young homeless person’s daily activities and requirements.
Turns an iPad into a letterboard, with large, easy-to-read keys, and word suggestions to help a person with autism-spectrum disorder communicate thoughts.
Measures heart rate and pulse.
App to help research early detection of Parkinson’s
“By downloading the iPrognosis app, you will donate data to the "GData" study, towards the development of early Parkinson’s disease detection tests. The iPrognosis app will record data from your everyday use of the smartphone, eg when talking on the phone or sending a text message.
Data recorded will be pseudonymised and uploaded securely on the Cloud when your phone is connected to Wi-Fi. You can choose what is being recorded and withdraw at any time.”
Utilises illustrations to give instructions or to ask questions, allowing a carer to converse more easily with people who have communicational difficulties.
Diabetes-management and personal-health app that allows a user to record and track personal health-related information.
Medication reminder aimed at people living with HIV/AIDS.
Helps the user work out what medical condition they may have.
Allows a carer to list their network of important personal contacts, and to share information with the contacts.
Allows immediate access to articles in four American Diabetes Association (ADA) journals: ‘Diabetes’, ‘Diabetes Care’, ‘Diabetes Spectrum’, and ‘Clinical Diabetes’.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) make better decisions about diet. Although available on Android, the developer's website http://www.kidneydiet.com/ states the app is no longer available or supported.
"Captures and records the user’s pulse (beats per minute), with a visual trace for evidence of atrial fibrillation (AF). Provides relevant information on why knowing the pulse is important (extend to AF). Enables comparison by the user of the recorded trace with examples of normal, tachycardia, bradycardia, and AF. Saves captured traces for future reference, for instance with healthcare professionals. Provides instructions at all stages of use. Enables sharing of traces via email and social media."Arrhythmia Alliance (A-A), UK patient group | PatientView survey, November 2013
Bi-directional conversion calculator for people with diabetes.
Visual consultation programme which aims to improve the chances of conception by bringing together the medical and spiritual factors that influence fertility.
Food and exercise diary aimed at European users.
Allows audio, images, and video relevant to cancer symptoms, and to life with cancer, to be stored in a logbook, and shared with carers, doctors, family, etc.
Interactive app designed to guide adult and child users through evidence-based treatment, called ‘exposure and response prevention’ (ERP), for obsessive-compulsive disorder (OCD).
Provides people with HIV/AIDs with up-to-date information on potential drug interactions between HIV drugs and other drugs that the individual may be prescribed (also covers over-the-counter, recreational, and alternative medications).
App enabling people to assess if they are at risk of hepatitis and manage their liver health.
“Millions of Australians suffer from symptoms associated with liver disease with over 400,000 living with hepatitis B or hepatitis C.
Hepatitis Victoria introduces LiverWELL, a free interactive app that is a practical tool to help people optimise their liver health. There are many health apps around but they tend to be either for specialist clinicians or from those promoting a healthier diet.
LiverWELL has been informed and tested by people living with hepatitis.
“People with hepatitis and liver disease need practical tools that remind them to take their medications, schedule their appointments, record their test results and keep their personal health notes all in one place,” said Dr Nicole Allard, a general practitioner and specialist in hepatitis B. “The beauty of LiverWELL is that everyone with a mobile phone now has this option within their grasp and I will be recommending the app to my patients,” she said.
“Every week up to 6 Victorians die from viral hepatitis-related liver disease…and liver cancer is the fastest growing cancer in the country,” said Melanie Eagle, CEO of Hepatitis Victoria. “We need to tackle this health crisis head on,” she said.
“World Hepatitis Day is one of a handful of world health days mandated by the World Health Organisation precisely because hepatitis is such a serious and deadly disease,” said Jill Hennessy, Minister for Health in the Victorian Government. “The Victorian Government is committed to eradicating viral hepatitis in our community by 2030 and to do this we need clever and creative approaches. I congratulate Hepatitis Victoria on producing such a useful tool for people living with hepatitis,” said Minister Hennessy.
LiverWELL is now available for Android and Apple smartphones in English with the translation of main functions in Arabic, Chinese and Vietnamese.”Hepatitis Victoria, the not-for-profit organisation which developed the app. | http://bit.ly/2LFqwy6 (YouTube channel for Hepatitis Victoria)
Utilises illustrations to teach lessons about personal safety and home safety (such cold weather safety, sport safety, electrical safety, and medicine cabinet safety). Good for people with autism.
Utilises the audio output of the phone to speak words, phrases, and sentences, whether for emergencies, everyday activities, pleasure, or teaching.
Diabetes management app for recording and tracking A1c levels, blood-glucose levels, blood pressure, carbohydrate intake, doctor visits, exercise activities, insulin or oral medication, weight, and other medical records.
Recognises currency, and speaks the denomination, enabling people with a visual impairment or blindness to identify and count banknotes.
Allows a user to set weight-loss goals, establish a daily calorie budget to meet them, and to record food consumption and exercise levels.
App designed to support patients in managing lung cancer from diagnosis through to treatment.
“The LUNGevity Lung Cancer Navigator is a customizable mobile app that puts your entire support network in the palm of your hand.
The app was created for lung cancer patients, family caregivers, and support team members to manage life after a lung cancer diagnosis. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friends and family.”Longevity Foundation, the US-based patient advocacy and research charity for lung cancer which developed the app | http://bit.ly/2PQexRu
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
Web-based app for detecting disease outbreaks earlier than conventional surveillance methods.
App to help people to read who have lost their central vision, for example through Macular Disease.
“The MD_evReader is a free app for the iPad or Android tablets, which has been developed to help people with a central vision loss read. It presents text from eBooks in a scrolling stream across the screen, in a similar way to a news ticker or a display board on a train. The app is designed for those people who use Eccentric Viewing (EV) and/or steady eye strategies for reading. Some people with macular degeneration may find it useful as a reading aid, or as a way of practising the Eccentric Viewing and steady eye techniques.
The line of text scrolls horizontally from left to right and the reader aims to hold their gaze away from the line to view it with their best region of vision. The trackpad is used to control the speed of the text.
In order to read with the MD_evReader you might need to eccentrically fixate so that you have a good piece of vision through which you are able to view the slowly scrolling text. Try holding your vision still (steady eye) and let the text move. Both Eccentric Viewing and the steady eye strategies take practice but can be well worth the effort.”
The MD_evReader is intended for people with macular degeneration who use the Eccentric Viewing and/or steady eye strategies and may not be for everyone. Reading in this way will require some practice and familiarity with Eccentric Viewing. The app works with any ePub document but may not work with eBooks that are under copyright, due to publishers’ restrictions. The app will only upload eBooks that do not have ‘DRM’ encryption, such as out of copyright books and those from small publishers. You can find books from gutenberg.org or torbooks.co.uk or by searching for ‘DRM free eBooks’.”
Collection of over 2,500 medical terms, explained and cross-referenced.
Improves doctor-patient communication by helping the user answer questions that the healthcare provider wishes to put to them.
App to access easy-to-understand information on each prescription medicine in Australia.
“Medsearch is a free app to help you find, view and save documents for registered prescription medicines included on the Australian Register of Therapeutic Goods.
The app means you can keep information about your medicines in one place and it also allows you to share information with family and friends.”Australian charity, Diabetes Australia | http://bit.ly/2Vr8EMA
Helps to manage medications by storing a list of the user's medicines, doctors and pharmacists.
“ ‘MedTracker’. It lists my medications, and gives a very audible reminder, even when in silent mode. It is a USA-based app, though, and it is also not very easy to use. If I want to skip a dose, for instance, it keeps reminding me I need to take the dose, even if I want to skip it.”Person with arthritis, UK | PatientView survey, August 2014
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
App game to raise awareness of cause and impact of mitochondrial disease.
“Who do YOU want to challenge to be the new hero of the mitoverse?
Share the Mito Warrior app with one of your friends to see who can restore power to the mitoverse and to learn more about mitochondrial disease!”
List of 12,500 food-and-beverage products sold in Spain. For people with gluten intolerance.
Teaching tool that utilises slideshows and images to illustrate appropriate behaviour in social settings (such as shops or playgrounds).
Illustrated story that can be used to encourage development of early reading skills in children.
“My IBD Care is an app developed by Ampersand in partnership with Crohn’s & Colitis UK, which allows people to track medication and symptoms, plus patterns of diet, sleep, exercise and pain.
It's a cloud-based dashboard which allows healthcare professionals, friends and families of sufferers of Crohn’s or Colitis to understand how well, between appointments, someone with Crohn's or Colitis is and how effective different care pathways are.”Crohn’s and Colitis UK, the patient group which developed the app | http://bit.ly/2sQG7UC
“This new app is really positive for anyone that is still working. It’s extended my working life really because…previously I was having to work around diary dates to get me to the clinic. Now I can test in the morning at home…I can test myself on the train going up and down from London….It’s given me quite a lot of freedom.”Martin Smith, patient with atrial fibrillation | http://www.inhealthcare.co.uk/resource/inr-self-testing-martin-smith/ Including recording of interview on Radio Yorkshire
“The Epilepsy Foundation My Seizure Diary is a self-management tool for seizures and epilepsy with a focus on self-monitoring and tracking seizures and other symptoms, managing medication and other therapies, recognizing triggers and health events that may affect seizures and wellness, and communicating with your care providers.
Use My Seizure Diary to also organize your health history, develop seizure response plans and help you remember medicines and other important information…
…The MY SEIZURE DIARY platform includes a fully responsive web application on diary.epilepsy.com as well as native iOS and Android companion apps.”
Aims to help people with asthma (aged over 12) to manage their condition.
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
“myEyes is a technology ecosystem through which we create “blind compliant” zones, that is, zones adapted for people with vision problems.
It is a pioneering system through which the mobile phone speaks to the person…narrating what is around while giving guidance on how to get from one point to another.
Aims to provide the user with new perspectives on the task of managing inflammatory bowel disease (IBD).
Portable health record that can be shared with doctors or anyone else involved in a user’s healthcare.
An app for a social network and support group for women living with Polycystic Ovary Syndrome (PCOS).
“myPCOSteam is a free social network that makes it easy for you to:
When you or a loved one are first diagnosed, it's not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.
myPCOSteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.”PCOS Awareness Association, USA, a volunteer-based not for profit organization for the education, awareness and support of people affected by Polycystic Ovarian Syndrome. The Association approached the developer MyHealthTeams to set up the social network | http://www.pcosaa.org/mypcosteam/
Help the user to reach diet, weight-loss and fitness goals (whether losing, maintaining or gaining weight) by tracking daily exercise and daily calorific, fat, carbohydrate, and protein intake.
Allows a user to communicate through audio files, images, pictures, symbols, and video (one adult female voice) by touching an image, which the app then reads out.
Shows the location of 14,000-plus toilets in Australia.
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Directs parents of babies to the nearest public baby-changing facilities in the UK.
App about the subjects of neurology and neurosurgery.
Allows the user to check personal medical symptoms, and, if necessary, receive telephone advice from a call operative within an hour.
Allows runs to be mapped, and progress tracked.
Information and support for patients, carers and clinicians dealing with Neuromyelitis Optica (NMO).
“Get the NMO basics with the latest in NMO information, videos, and answers to frequently asked questions.
Learn more about the latest scientific and medical insights into adult and pediatric disease, imaging, laboratory tests, and potential relationships of NMO/SD to other autoimmune diseases.
The NMO video library includes patient stories, questions about NMO, seminars from our NMO Roundtables, and more.
Stay up-to-date with access to fresh peer-reviewed research that have been made available and open-source.
Learn more about clinical trials, including how to participate.
Keep all of your NMO related notes and thoughts in one place.
Connect with all the NMO support groups that meet in person as well as online or through telecons.
Everything you need to help us with blood samples and/or clinical data donations for our Biorepository. Blood samples and clinical data are vital for NMO research.
Learn more about The Guthy-Jackson Charitable Foundation and connect with us on social media.
Browse this organized database of over 200 doctors with awareness and experience in NMO.
Access our popular patient resource guide.
In addition to native VoiceOver ability, you can modify font size and font thickness with accessibility settings.”The Guthy-Jackson Charitable Foundation, the US-based charity which created the app | http://bit.ly/2RLAOMv
Tracks indoor and outdoor exercise activities, and indicates how many calories were burned.
Lifestyle planner for managing changes in nutrition and exercise regimes—one potential aim of which might be slowing the progression of diabetes, for instance.
Aims to help people on oral anticoagulant therapy (OAT) to monitor and control their medication routine.
Helps people with diabetes manage their condition by tracking blood glucose, blood pressure (BP), exercise, food, medication, pulse, and weight.
Brings a magazine-style interface to information about research into cures for rarer, more-neglected, diseases.
List containing information about rare diseases.
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
Educational games developed for people with learning disorders including autism.
“Otsimo child is a platform designed specifically to educate children with autism and learning disorders. It contains dozens of educational games and free basic AAC [Alternative and Augmentative Communication]. Educational games are developed by applying the Applied Behaviour Analysis (ABA) technique. Otsimo is a bundled platform which contains Otsimo Child and Otsimo Family apps.”Autism Education Trust, founded by the UK charities the National Autistic Society (NAS), Ambitious about Autism (AaA) and Council for Disabled Children (CDC) | http://bit.ly/2BPLFA8
“OurBrainBank is a non-profit dedicated to moving glioblastoma from terminal to treatable, powered by patients.
Our key tool is the OurBrainBank app which helps people manage their disease as well as provide much-needed data for medical researchers…
…As you progress, you may view your data at any time: access reports via the menu icon (bars at the top left of the app screen) and select ‘my reports’. Compare different symptoms and view your progress over time.
You may share your data with other people, including your healthcare team, so they can see how your symptoms may have changed. This may help you understand the relationship between your treatments and your symptoms.
The app allows you to self-track neurological function with games that test balance, ability to compare numbers, and speed of neurological function. They’re quite addictive!
The app can be used to track health data such as your weight, blood pressure, or blood sugar. There’s also a neat journal feature, so you can record how you’re doing.
We plan to publish our findings widely, sharing the insights gleaned from the aggregated data, and driving more research to crack glioblastoma.We encourage you to continue to participate after your first 100 days. Your input is crucial to the success of the mission — to turn GBM from terminal to treatable” OurBrainBank, the not-for-profit US patient group which developed the app | https://bit.ly/3bpP746
“Ovarian cancer has four main symptoms:
…If your symptoms are:
Tool to help patients manage chronic pain or sports injuries.
Provides information about Parkinson's disease, treatments, and living with the condition.
Designed to help medical professionals recognise the symptoms of Parkinson’s disease (PD), and then diagnose and treat the condition.
Contains 900-plus patient-information leaflets about health and specific medical conditions.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
App to help patients manage their electronic health records, including for kidney disease, diabetes and Inflammatory Bowel Disease (IBD).
“PatientView allows you to view, monitor and plot trends of your blood results as well as allowing you to view your clinic letters and upload your own readings such as weight and blood pressure.
This will help you understand more about your condition and how your lifestyle is affecting your condition, for example, you can monitor how well you’re adhering to your dietary restrictions such as salt, potassium and phosphates.
…Please, note that note all renal centres use PatientView and those that do not may not use all of its facilities.”GMKIN (Greater Manchester Information Network), a joint venture between patients with chronic kidney disease, clinicians and the University of Salford. | http://bit.ly/2Wur7Fk
Aims to give people with Parkinson’s disease (and their carers) real-time management of the condition.
You can view your history and trends…The history shows how you did on different tests and the trends show your baseline, performance, PD symptoms, fatigue and medication over time… enabling you to continually monitor your performance with respect to when you took medication for example. There is also a ‘diary only’ option which allows you to simply look at your PD symptoms, fatigue and medication over time.”Leah Mursaleen, Parkinson’s Movement, a patient group aiming to connect patient experience with scientific expertise | http://parkinsonsmovement.com/devices-and-apps/dont-worry-be-appy/
Pedometer tracks steps taken, speed achieved, laps covered, distance traveled, and calories burned.
App to enable people to exercise pelvic floor muscles to maintain or improve bladder control, and exercise safely.
“Pelvic Floor First is a free, safe-exercise app to enable people at risk of or living with pelvic floor dysfunction to continue to exercise without putting additional pressure on their pelvic floor.
The Pelvic Floor First app has customised workouts for people of all fitness levels and pelvic floor strength. The wide range of exercises have been designed by a physiotherapist and fitness leader to ensure people enjoy the benefits of a total-body workout that protects their pelvic floor muscles.
App features include:
The free app is based on the Continence Foundation of Australia's Pelvic Floor First website.”
“The Continence Foundation's free, safe-exercise app is now available to view online at http://app.pelvicfloorfirst.org.au/index.php
The online version has the same three customised workouts for people of all fitness levels and pelvic floor strength. The wide range of exercises have been designed by physiotherapist and fitness leader Lisa Westlake to ensure people enjoy the benefits of a total-body workout that protects their pelvic floor muscles.”