Allows a user to send a telephone message, text message, and GPS location to the emergency services in Iceland.
For adults with attention-deficit hyperactivity disorder (ADHD) (whether diagnosed or undiagnosed).
Interactive app on Facebook, intended to raise awareness of end-of-life issues.
Intended to help people with chronic fatigue syndrome (CFS) track and monitor their daily activity levels.
App to help people with adrenal insufficiency manage their condition and get appropriate treatment in emergencies
“The Adrenal APP helps the patient ensure that crucial medical information is available at any time of the day or night, wherever the patient and his or her smartphone are together.
The app helps to collect and access this crucial information.The app on a smartphone makes it possible to explain instantly that the patient has an adrenal disorder and that he is dependent on hydrocortisone.
This means: “inject first, talk later”, and that is an essential instruction for the ambulance crew and for the staff in the emergency department. Importantly, they can verify this in the (Dutch) ambulance crew’s Protocol for Adrenal Insufficiency.”Johan G Beun, Co-ordinator BijnierNET/AdrenalNET, a virtual network of patients, healthcare practitioners and informal carers, which developed the app | App information submission to myhealthapps.net
Provides information on inflammatory bowel disease (IBD), dieticians and hospitals, and on the activities of France-based patient group, Association Francois Aupetit (AFA).
Diabetes management log.
Alcohol consumption tracker and drinks diary intended to help a user change drinking habits.
The AliveCor® Heart Monitor: Mobile ECG device that,provides individuals with the ability to track heart health anywhere, anytime at an affordable cost.
“The ‘AliveECG’ works in conjunction with the free AliveECG app and is designed for medical professionals, patients and health-conscious individuals to record, display, store and transfer single-channel electrocardiogram (ECG) readings. These recordings could be saved on the mobile device or shared with others (such as your doctor) via email. AliveCor’s Heart Monitor has been used in several clinical trials, and demonstrated accuracy and efficiency to produce a single-channel rate-and-rhythm assessment. Arrhythmia Alliance members have the chance to purchase the app with an exclusive discount of £5, using voucher code ‘hrc2013a’ when bought from Amazon. A percentage of the sale will also be given to Arrhythmia Alliance.”
Arrhythmia Alliance (AA), UK | http://bit.ly/1nlLnCa
Displays letters of the alphabet, words and numbers which children (including those with learning disabilities) can trace over, to help in learning to write.
App providing information on Alzheimer’s Disease, primarily for clinicians, but also including support for patients and carers.
“The free Alzheimer’s Association® Alzheimer's Disease Pocketcard app puts reliable information and assessment tools at your fingertips.
Helps people in the UK who are homeless (and their providers of social care) to locate resources within a given geographical radius of their phone.
Game involving characters modelled on birds and pigs, and which is said to feature physics-based gameplay.
Chromotherapy app intended to reduce mental stress by demonstrating the therapeutic value of 256 shades of colour.
Contains information on detecting, treating and managing arthritis.
Provides information on how older people, and people with a disability, can find solutions to a wide range of activities in the home that might present them with problems.
Mobile website to help people self-manage their asthma
“Asthma Buddy has helped hundreds of Australians manage their asthma for many years. We hope this new useful tool can help you take control of your asthma and improve the quality of life for you and your family.”
As a leading organisation for asthma care, the National Asthma Council Australia promotes best-practice care to people with asthma and their families.
…“Asthma Buddy is a digital Asthma Action Plan that lives in your pocket,” said Siobhan Brophy, Chief Executive Officer, National Asthma Council Australia.
“You can refer to it to know what daily asthma medication to take. It will also help you recognise if your asthma is getting worse and give you advice on what you should do in response.
…We designed Asthma Buddy with end users in mind,” We know mums always have a million things on the go, so we want to help them stay on top of their children’s asthma management.”
The launch of the Asthma Buddy mobile website is funded by GSK Australia. The National Asthma Council retained editorial control.The National Asthma Council, the Australian charity which developed the app. | http://bit.ly/2zmNKEX
Logs asthma activity, medicines, triggers, and peak-flow readings in diary and graph form.
Allows a user with asthma to record event information (such as environmental conditions, symptoms, treatments, and vital signs) that may be relevant to asthma.
Provides information on recognising signs of a stroke, and techniques of assistance.
First aid app for children and babies
“This free app provides simple, easy-to-learn skills to help a baby or child in a first aid emergency.
It is packed with useful tips, animations, and video clips. You can test your knowledge using the app’s built-in first aid quizzes. There is also a handy device to record your child's medication needs and any allergies.
The information you need is all hosted on the app itself, meaning no internet connection is needed, making it fast and easy to access.”Red Cross UK, developer of the app | http://bit.ly/2KLCgeK
Displays exercises suitable for people with ankylosing spondylitis (AS).
Diabetes management app intended to simplify diabetes management, and to be used by adolescents and younger people with diabetes.
Designed to guide a user through a panic attack, or through an episode of raised anxiety.
App designed by a patient group helping people adapt to life after breast cancer treatment.
“I have found the BECCA app to be inspiring and full of helpful advice, packed with lots of useful information and suggestions.
A must-have for anyone to help them move forward after breast cancer treatment.”Betty Hart, cited on the charity’s website as a person who has experienced breast cancer and used the app. | http://bit.ly/2xSxs5D
Allows carers, healthcare professionals, parents, and teachers to track the behaviour patterns of children, and to present them in graph form.
Provides real-time feedback, and visual and audio instructions, on how to learn and practice hands-only cardiopulmonary resuscitation (CPR).
Simplified phone ‘home’ screen for older people, and for people with visual impairment (and even for anyone who dislikes numerous phone icons).
Provides advice helpful to people with anxiety, debt, stress, or work problems.
Assesses whether a user might be at risk of blackouts.
Tool to track bladder health in both men and women.
Allows a user to record diabetes-related personal information, including blood glucose levels, carbohydrate consumption, and medication.
Allows recognition training of fleeting facial expressions known as ‘micro-expressions’.
App for people at risk of or diagnosed with bowel cancer
“In the era of personalised medicines and oral chemotherapy taken at home, Bowel Cancer Australia is getting Aussies ready for the future of patient care with a new bowel cancer app….
The comprehensive bowel cancer app…provides easy access to accurate information about bowel cancer, its prevention, diagnosis and management.
"Our bowel cancer app is responding to the changing needs of bowel cancer patients and their families or carers…For example, as more oral chemotherapies become available enabling people to receive treatment at home, we expect to see a shift away from written patient treatment diaries to online diaries that can then be emailed to the patient's specialist."
"We've also designed the app to be easily personalised. It has the capability to store screening reminders, treatment and mood diary entries and even record notes from medical appointments."
UPDATE: Bowel Cancer App 2.0
“The updated Bowel Cancer App 2.0 retains the comprehensive bowel cancer content frequently accessed in the first version of the app including the ‘Need to Know’, ‘How to Test’ ‘Living With’ and ‘Need to Ask’ sections, but also offers users additional benefits previously unavailable.
A new ‘Motivate Me’ feature enables people to monitor their diet and lifestyle on a daily basis as one way to help reduce their bowel cancer risk. Users can also connect one-to-one through the App as part of Bowel Cancer Australia’s Peer-to-Peer support and buddy network, Australia’s only national bowel cancer support group for patients and loved ones.
Other valuable features include screening tips and tools, a list of questions to ask throughout the patient journey, a customisable treatment and mood diary, recipes and a meal planner.
Consistently featuring in the top 100 medical apps in both the App Store and Android Store, the Bowel Cancer Australia App provides users with answers to questions about bowel cancer which many people feel uncomfortable asking and continues to make it easier for people to access relevant bowel cancer information.”Bowel Cancer Australia, the patient charity which developed and updated the app. | http://bit.ly/2QgTtDW
Tool for viewing the brain in 3D.
Information on how to check breasts, and on lifestyle choices for decreasing the risk of breast cancer.
App intended to show the correct length of time when brushing teeth.
An app for medical professionals to purchase, and then to pass on to patients who are living with a mental health problem.
Food and calorie tracker with a database of a million-plus foods.
Weight- and nutrition-management app that allows dietary goals to be set.
Allows a user to find nutritional information about food, and to track meals, exercise and weight.
Provides patients (and their carers and families) with information on up to three cancers (breast, lung and prostate), supported by interactive illustrations, photos and videos. Now only available via website. The app version is no longer supported.
Carbohydrate-counting app intended to help children with diabetes gain the skills required to count carbohydrates.
Allows the user to count the amount of calories and carbohydrates contained in food and drink by consulting the app's 1,400-plus photographs of food and drink items.
Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)
“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…
… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app
…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…
…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support | http://bit.ly/2NhvGCx
Allows a carer to track the contents of a person's medical records.
…CareZone is a robust tool that will help caregivers organize everything from appointments and tasks to meds, contacts, and miscellaneous notes – all in one place. Customizable sharing of contents is a great advantage, simplifying communication and coordination between family members.
…Support seems to be readily available; I sent a question via email and received an immediate, very courteous and complete response.”Ann Napoletan, US carer and blogger | https://www.caregivers.com/blog/2013/03/app-carezone/
Allows a user to pick a charity (from a provided list), and raise money for it by sponsored cycling, running, or walking.
Timer for parents who perform manual chest physiotherapy (PT) on a child who has cystic fibrosis.
App aimed at 11-25 year olds who have been bereaved.
The app has been created by a group of bereaved young people working directly with Child Bereavement UK.
It has been developed for 11-25 year olds who have been bereaved of someone important to them. It can also be used by friends, teachers, parents and professionals who would like to know how to support bereaved young people.
The app has information about:
The app aims to help bereaved young people feel less alone and to inspire others on how to support them.Child Bereavement UK, the charity which developed the app. | http://bit.ly/2ONrDeg
“Benefits are: It contains information on 5 common feeding pitfalls, in a WHAT, WHY, WHAT TO DO format. It explains the WHY a behaviour is occurring, which parents have said is really good and fills a gap in their knowledge. Many feeding resources currently do not explain the psychology and physiology around children's feeding behaviour. It explains not only WHAT to do, but with tangible, interactive tools to help. It allows parents to track their child's eating behaviour, but also their own well-being. This can be very useful for anxious parents who can become entrenched in feeding problems and not objectively see improvements. If parents learn healthier, more adaptive ways to feed their children, then the health of children will be improved. This is both in terms of what is eaten (increasing variety and liking fruit & veg) but also HOW it is eaten (less coercion so children are allowed to learn to regulate their own intake, something that is important in the battle against obesity). It represents a useful preventative resource, that can be used before weaning to educate parents on children's developmentally predictable responses to food, BEFORE problems occur. It's easy to use and an app may be a better medium to reach less engaged families/parents, than having them come and visit their health visitor. It's free to download, so available to all. Drawbacks are: the app does not deal with nutritional information e.g., how much carbs, protein etc a child has eaten / should eat per day.”Review from the developer: a community of mothers at Loughborough University Centre for Research into Eating Disorders, UK | PatientView Form, 2014
I know the people who have developed it and I trust them, very important with medical data of this nature. This App gets my seal of approval and a big thumbs-up from me. Well done CML Advocates Network.”Kris Griffin, patient advocate with CML | https://accesscmldrugs.wordpress.com/tag/app/
Designed for people with inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, and who are scheduled to receive a colonoscopy.
When a user photographs an object, and then taps the on-screen image of the photographed object, the app will read aloud the object's colour.
Helps people who have a stuttering problem to speak more fluently.
Allows the user to remain connected with the DAFNE Online support network for people with type-1 diabetes who have attended the ‘Dose Adjustment For Normal Eating’ (DAFNE) course.
Diabetes management app for people with type-1, type-2, gestational, latent-autoimmune diabetes of adulthood (LADA), or secondary diabetes.
App that aims to put a ‘human face’ to worldwide aid and poverty statistics, and to demonstrate progress towards United Nations (UN) Millennium Development Goals (MDGs).
Training and educational app for use with the Dexcom 7 glucose-management sensor.
Diabetes data-management app that allows the user to log and track factors which influence blood-sugar level.
Diabetes diary for recording and tracking blood-glucose readings, carbohydrate intake, and insulin dosing.
Allows a user with diabetes to track A1c, blood-glucose levels, blood pressure, food intake, medication, weight, etc.
Diabetes management app for anyone with diabetes (whether taking insulin, other medications, or just involved with diet and exercise). Dietary advice and good information is provided.
Logs blood glucose, blood-fat and blood-pressure levels, calories, carbohydrates, HbA1c, insulin, ketones, and weight.
Diabetes logbook that allows a user to record and monitor blood pressure, carbohydrate intake, exercise regimes, glucose readings, insulin injections, lab results, medication, pulse, temperature, weight, and other vital statistics.
Carbohydrate-/meal-logging app and medication calculator.
Reminder to take medications on time.
Cookbook listing healthy foods.
Designed to help the user manage medication compliance.
Voice-recognition app that turns spoken words into on-screen text, which can be used as notes or as email.
Speech-recognition app that allows the user to conduct Internet searches on the phone through voice commands.
Features the activities of Belgium-based multi-stakeholder organisation specialising in cancer, the European CanCer Organisation (ECCO).
Diabetes-management journal for recording and tracking blood-glucose levels, carbohydrate intake, and insulin dosages - with reminders when to test your blood glucose
Helps people with epilepsy manage and improve their own health via seizure-management tools.
Utilises Tangram, a Chinese game in which several shapes can be assembled to make larger shapes, to teach a user how to make more complex shapes (such as a rabbit) in several levels of difficulty.
Shows citizens of EU Member States how to apply for a European Health Insurance Card (EHIC).
Dictionary of British Sign Language (BSL).
Utilises images to teach social skills that can help a person function independently in the community (including how to prepare a meal, take care of pets, travel around, and behave in shops).
Helps to track and record haemophilia-A factor-VIII infusions.
Aims to help the user overcome fear of flying.
Intended to improve the chances of conception.
Diet and weight-loss journal that offers an online ‘account’ to track food consumption and exercise levels.
For people with fibromyalgia. Tracks pain, fatigue, sleep, mood, medications, and flare ups.
Provides nutritional information on foods, with the aim of helping a user with diabetes to lose weight, and to manage diet.
A tool to help people at risk of osteoporosis to calculate their bone fragility.
Digital tool helping people in crisis to ask for and coordinate practical help.
“It was through this personal experience that I realised how hard it is to actually coordinate specific and practical help when going through a crisis.
Text messages, ring-arounds, spreadsheets and late night phone calls are difficult, time consuming and often just too much for someone to manage when they are already in the turmoil of a serious life crisis.
I wanted to help my friend but didn’t have the free time to coordinate all the assistance she needed with all the wonderful people who had offered to help…
…Gather My Crew is an online rostering tool that has been developed specifically to support people in crisis, to enable them to ask for and coordinate the practical help they need.
Using the expertise of people who had ‘been there, done that’, as well as the clinicians who supported them, Gather My Crew exists to make sure people going through a crisis get the right kind of help from all their well-meaning friends, family, neighbours and colleagues – without all of the stress that usually comes with coordinating help when a loved one becomes ill.
It is a way to ask for help – and then turns that help into a calendar that tracks and records who is doing what, and when. It even sends reminders and updates to keep everyone connected throughout the time the assistance is needed.
Gather My Crew is a registered charity, and the online tool is free and easy to use.”Susan Palmer, the psychologist who founded the Gather My Crew charity, writing for the Cancer Council patient group in Australia | http://bit.ly/2NqLmix
“GDm-Health has the potential to positively affect patient care, because people with gestational diabetes would be better able to interact with their healthcare team. GDm-Health removes bias in patient reporting of blood glucose levels, helping to improve trust.
It can potentially decrease unnecessary hospital visits and provide the midwife with more information for clinical decisions.
GDm-Health could improve patient health outcomes. It is unlikely that using GDm-Health would significantly effect on family, work or home life any more than usual blood glucose monitoring.
The only possible drawback could be anxiety around personal data handling, but this could be mitigated by assuring users of robust security.
The system is more likely to benefit patients who embrace new technology, particularly those who already use smartphones. For many users, especially those very familiar with smartphones, no special training would be needed.”
Expert contribution from the patient organisation to a medtech assessment paper by the UK National Institute for Health and Care ExcellenceDiabetes UK, patient organisation that cares for, connects with and campaigns on behalf of all people affected by and at risk of diabetes. | http://bit.ly/2G0nNxE
Designed to be used during the annual ‘Global Corporate Challenge’ (GCC) walk, a virtual event intended to promote personal fitness and better health. Android app no longer seems available.
Complementary logbook app that, when combined with the developer’s proprietary ‘Sync cable’, and various manufacturers’ compatible blood-glucose meters, saves a user with diabetes from having to manually enter blood-glucose readings.
Guide for people with diabetes (and their carers) in the emergency administration of the Eli Lilly product, Glucagon.
Diabetes management app that allows blood glucose, blood pressure, body-mass index (BMI), carbohydrate intake, exercise, HbA1c, insulin and medication doses, and weight to be tracked.
Data-storage utility for people with diabetes.
Blood-sugar and weight tracker.
Diabetes management app for recording and tracking blood glucose, food intake, insulin and medication.
Non-speaking, simple, picture-exchange system that can allow people with autism to express their needs independently.
App for people living with HIV/AIDS.
Helps the user to learn meditation. Click on browser link to see how Headspace works or go to https://www.youtube.com/watch?v=kEpOF7vUymc
Helps a user prepare for medical consultations and appointments by planning what should be said and asked, and by advising what sort of information should be brought to the consultation.
Offers answers to healthcare-related questions, according to condition, health concern, medication or symptom.
Allows 190,000 recipes to be browsed and searched, and favourites saved.
Quick, simple, self-applied hearing test that does not require an appointment with a medical professional.
App designed to help people with heart diseases to manage their condition.
“The Heart Failure Health Storylines mobile app is created with input from people with heart failure and congestive heart failure (CHF) so that the right health tools are available to you. Now it’s easy to record your symptoms, vital signs, medications, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.
Choose from the following health tools to better manage and monitor heart failure:
Carbohydrate counter with a food database.
Provides a list of phrases and images that can allow people who have trouble vocalising to communicate some of their needs and feelings.
Infusion log for people with haemophilia.
App and online tool to help people with mental health needs to access patient groups, charities and other sources of support across the UK
“Hub of Hope believes that no matter what you're going through, you shouldn't have to do it alone. Find services local to you using geolocation technology.
The stigma associated with mental health can make it difficult to talk about, however there are services out there with people who understand and are ready to help….
…Using the Hub of Hope is completely free and confidential. You are not required to provide any personal information or pay for use. It is simply there to say, if you should ever need help, whether for you or somebody you are looking after, we’ll make it easier to find.
The Hub of Hope has already been described as a vital and lifesaving tool by charities and mental health trusts.
In less than a year since its launch, the Hub of Hope has had
Instructs parents on how to liaise with schools and educational facilities, with the aim of ensuring that a child's needs are met.
Educational app about ankylosing spondylitis (AS).
Helps people with diabetes to track and manage blood-sugar levels.
Blood pressure tracking-and-analysis tool.
Contains a video on how women should properly check their breasts for cancer. Is approved by NHS Choices as being safe.
Allows a user to send anonymous photos of any skin condition to a dermatologist.
Headache diary that allows the number of headaches, their duration and severity, the degree of disability and impact, medication and usage, symptoms, and triggers to all be tracked.
Educational app intended to show the user how the UK-based charity Depaul UK works with homeless young people, and to give the user an idea of a typical young homeless person’s daily activities and requirements.
Turns an iPad into a letterboard, with large, easy-to-read keys, and word suggestions to help a person with autism-spectrum disorder communicate thoughts.
Measures heart rate and pulse.
Utilises illustrations to give instructions or to ask questions, allowing a carer to converse more easily with people who have communicational difficulties.
Diabetes-management and personal-health app that allows a user to record and track personal health-related information.
Medication reminder aimed at people living with HIV/AIDS.
Helps the user work out what medical condition they may have.
Allows a carer to list their network of important personal contacts, and to share information with the contacts.
Allows immediate access to articles in four American Diabetes Association (ADA) journals: ‘Diabetes’, ‘Diabetes Care’, ‘Diabetes Spectrum’, and ‘Clinical Diabetes’.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) make better decisions about diet. Although available on Android, the developer's website http://www.kidneydiet.com/ states the app is no longer available or supported.
"Captures and records the user’s pulse (beats per minute), with a visual trace for evidence of atrial fibrillation (AF). Provides relevant information on why knowing the pulse is important (extend to AF). Enables comparison by the user of the recorded trace with examples of normal, tachycardia, bradycardia, and AF. Saves captured traces for future reference, for instance with healthcare professionals. Provides instructions at all stages of use. Enables sharing of traces via email and social media."Arrhythmia Alliance (A-A), UK patient group | PatientView survey, November 2013
Bi-directional conversion calculator for people with diabetes.
Visual consultation programme which aims to improve the chances of conception by bringing together the medical and spiritual factors that influence fertility.
Food and exercise diary aimed at European users.
Allows audio, images, and video relevant to cancer symptoms, and to life with cancer, to be stored in a logbook, and shared with carers, doctors, family, etc.
Interactive app designed to guide adult and child users through evidence-based treatment, called ‘exposure and response prevention’ (ERP), for obsessive-compulsive disorder (OCD).
Provides people with HIV/AIDs with up-to-date information on potential drug interactions between HIV drugs and other drugs that the individual may be prescribed (also covers over-the-counter, recreational, and alternative medications).
Utilises illustrations to teach lessons about personal safety and home safety (such cold weather safety, sport safety, electrical safety, and medicine cabinet safety). Good for people with autism.
Utilises the audio output of the phone to speak words, phrases, and sentences, whether for emergencies, everyday activities, pleasure, or teaching.
Diabetes management app for recording and tracking A1c levels, blood-glucose levels, blood pressure, carbohydrate intake, doctor visits, exercise activities, insulin or oral medication, weight, and other medical records.
Recognises currency, and speaks the denomination, enabling people with a visual impairment or blindness to identify and count banknotes.
Allows a user to set weight-loss goals, establish a daily calorie budget to meet them, and to record food consumption and exercise levels.
App designed to support patients in managing lung cancer from diagnosis through to treatment.
“The LUNGevity Lung Cancer Navigator is a customizable mobile app that puts your entire support network in the palm of your hand.
The app was created for lung cancer patients, family caregivers, and support team members to manage life after a lung cancer diagnosis. It helps you understand your diagnosis and provides tools and forums for asking questions, detailing symptoms, and managing medications. The app is a great way to communicate with your healthcare providers and to request support from friends and family.”Longevity Foundation, the US-based patient advocacy and research charity for lung cancer which developed the app | http://bit.ly/2PQexRu
One of the unique features of the Lyfe app is the Community section. It allows patients and support-givers to share their stories, ask questions and connect with others who are dealing with similar circumstances—locally, nationally and around the world.
Lyfe has insightful articles providing practical tips designed to help during all stages of the patient experience. It also includes information geared specifically to friends and family members who are providing help and support during this challenging time.”
Web-based app for detecting disease outbreaks earlier than conventional surveillance methods.
Collection of over 2,500 medical terms, explained and cross-referenced.
Improves doctor-patient communication by helping the user answer questions that the healthcare provider wishes to put to them.
Helps to manage medications by storing a list of the user's medicines, doctors and pharmacists.
“ ‘MedTracker’. It lists my medications, and gives a very audible reminder, even when in silent mode. It is a USA-based app, though, and it is also not very easy to use. If I want to skip a dose, for instance, it keeps reminding me I need to take the dose, even if I want to skip it.”Person with arthritis, UK | PatientView survey, August 2014
Patient registry app to record real world evidence from people with melanoma.
“Melanoma UK has been working with healthcare company Vitaccess to develop a digital platform to collect data from people living with melanoma….
…Participants use their own smartphone or tablet to complete questionnaires or surveys at their convenience. Data are immediately submitted to a central data platform; users of the platform can see and analyse the aggregated data in real time.
The platform will collect rich demographic and epidemiology data across all stages of disease, treatment, and beyond.
Initially, the platform with collect data on quality of life in people living with and being treated for melanoma in the real-world setting. To date, such data have been collected only in the somewhat “artificial” setting of clinical trials.
This study will help us to understand how people feel during what has become routine treatment, and afterwards. The pilot stage will collect data in the UK but we plan to extend data collection globally.
Participants benefit from monitoring and recording how they feel, and the platform provides a convenient way for them to share their data with friends, family and healthcare professionals.
Development of this platform has been collaborative: at the recent UK Melanoma Patient Conference, we canvassed future participants on the functionalities that they would have used. Based on this extremely positive feedback, features such as a daily pain diary, knowledge centre, consultation checklists and events timeline have been built into the platform.
Data will be available free of charge to academic researchers, and through a subscription service to industry.”Patient group which developed the app, Melonoma UK | http://bit.ly/2Fceu8s
List of 12,500 food-and-beverage products sold in Spain. For people with gluten intolerance.
Teaching tool that utilises slideshows and images to illustrate appropriate behaviour in social settings (such as shops or playgrounds).
Illustrated story that can be used to encourage development of early reading skills in children.
“This new app is really positive for anyone that is still working. It’s extended my working life really because…previously I was having to work around diary dates to get me to the clinic. Now I can test in the morning at home…I can test myself on the train going up and down from London….It’s given me quite a lot of freedom.”Martin Smith, patient with atrial fibrillation | http://www.inhealthcare.co.uk/resource/inr-self-testing-martin-smith/ Including recording of interview on Radio Yorkshire
Aims to help people with asthma (aged over 12) to manage their condition.
The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/
Aims to provide the user with new perspectives on the task of managing inflammatory bowel disease (IBD).
Portable health record that can be shared with doctors or anyone else involved in a user’s healthcare.
An app for a social network and support group for women living with Polycystic Ovary Syndrome (PCOS).
“myPCOSteam is a free social network that makes it easy for you to:
When you or a loved one are first diagnosed, it's not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.
myPCOSteam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.”PCOS Awareness Association, USA, a volunteer-based not for profit organization for the education, awareness and support of people affected by Polycystic Ovarian Syndrome. The Association approached the developer MyHealthTeams to set up the social network | http://www.pcosaa.org/mypcosteam/
Help the user to reach diet, weight-loss and fitness goals (whether losing, maintaining or gaining weight) by tracking daily exercise and daily calorific, fat, carbohydrate, and protein intake.
Allows a user to communicate through audio files, images, pictures, symbols, and video (one adult female voice) by touching an image, which the app then reads out.
Shows the location of 14,000-plus toilets in Australia.
Information on diagnosis and treatment guidelines for many cancers.
“NCCN Guidelines for Patients®, patient-friendly translations of the NCCN Guidelines®, are meant to help patients with cancer talk with their physicians about the best treatment options for their disease.
The NCCN Guidelines for Patients along with one- to two- page NCCN Quick Guide™ sheets summarising key points in the NCCN Guidelines for Patients are now available through the mobile app.”National Comprehensive Cancer Network, the not for profit organisation that developed the app. | http://bit.ly/2NnVpsX
Directs parents of babies to the nearest public baby-changing facilities in the UK.
App about the subjects of neurology and neurosurgery.
Allows the user to check personal medical symptoms, and, if necessary, receive telephone advice from a call operative within an hour.
Allows runs to be mapped, and progress tracked.
Tracks indoor and outdoor exercise activities, and indicates how many calories were burned.
Lifestyle planner for managing changes in nutrition and exercise regimes—one potential aim of which might be slowing the progression of diabetes, for instance.
Aims to help people on oral anticoagulant therapy (OAT) to monitor and control their medication routine.
Helps people with diabetes manage their condition by tracking blood glucose, blood pressure (BP), exercise, food, medication, pulse, and weight.
Brings a magazine-style interface to information about research into cures for rarer, more-neglected, diseases.
List containing information about rare diseases.
Helps people to manage their stoma supplies.
“OstoBuddy is a super good app that helps you keep track of your stoma equipment. It's simply built up by clicking on a small `plus’ in the corner of the app and adding your products. And afterwards you can keep an eye on how much you have used and when.
When you add a new product, enter the brand name of the manufacturer, what type of product it is (plate, bag, etc.), model number, what amount of product you have when you bought it and when to have a reminder to buy new.
Then you can enter and specify when using a new bag, sheet etc. and even write notes if you have a comment. All the products you added to the app will appear on a list. Then you just cross which product you use, and then the app keeps track of the day you changed and how much you've left.
The app will even remind you when you are running out and stores contact information on the manufacturers so you can easily order new. All in all, OstoBuddy is really easy to use”Stomiforeningen COPA (Danish Stoma patient association) | http://bit.ly/2xYqaO6
Tool to help patients manage chronic pain or sports injuries.
Provides information about Parkinson's disease, treatments, and living with the condition.
Designed to help medical professionals recognise the symptoms of Parkinson’s disease (PD), and then diagnose and treat the condition.
Contains 900-plus patient-information leaflets about health and specific medical conditions.
“With your help we at patientMpower have developed an electronic health diary (an “app”) which can be used by people with lung fibrosis to help them keep track of their symptoms and lung health.
The patientMpower app works on any smartphone or tablet device (like an iPad). The idea is that you use your mobile phone to keep a diary of various symptoms and other factors related to your lung health. For example, you can keep track of the number of steps walked each day or your level of breathlessness. If you have a connected spirometer, the breathing test information will also be recorded and the app can be used as a reminder to take your medicines each day. When attending clinic appointments, it may be useful to have this type of information to hand so you can tell the doctor or nurse about issues that may have been troubling you.
“A group of ILFA volunteers have tested the app with home spirometry in a user experience survey and given us useful feedback on their experience of the app. patientMpower want to thank these volunteers for their help in guiding us on how we can improve the app and its use with measurement devices (like home spirometers).”Article in patient group newsletter of Irish Lung Fibrosis Association | http://bit.ly/2AIf2Rk
Aims to give people with Parkinson’s disease (and their carers) real-time management of the condition.
You can view your history and trends…The history shows how you did on different tests and the trends show your baseline, performance, PD symptoms, fatigue and medication over time… enabling you to continually monitor your performance with respect to when you took medication for example. There is also a ‘diary only’ option which allows you to simply look at your PD symptoms, fatigue and medication over time.”Leah Mursaleen, Parkinson’s Movement, a patient group aiming to connect patient experience with scientific expertise | http://parkinsonsmovement.com/devices-and-apps/dont-worry-be-appy/
Pedometer tracks steps taken, speed achieved, laps covered, distance traveled, and calories burned.
Reminder to take medications on time.
Reminder to take medications on time.
Simple, one-page, slide-bar app that allows a user to convert A1c level to estimated average blood-glucose level, and vice-versa.
Alternative communication solution for people who have difficulty speaking.
Scans and recognises text documents, bills, business cards, whiteboards, etc, then allows the text to be shared across computers and with other people through the ‘cloud’.
Alternative communication solution for people who have difficulty speaking.
Contains a trio of facilities for people with psoriasis (and their carers): a calculator to assess the severity of the condition; a questionnaire on the impact of the condition; and a newsfeed on dermatology subjects.
PTSD Coach provides service members, veterans, their friends and families with dependable resources they can trust. Many service members who experience PTSD symptoms can benefit from care and support, but some fear that they may be considered weak or that leaders or unit members might lose confidence in their abilities if they seek care. The information available through the PTSD Coach app can help service members and their loved ones overcome those concerns and obtain accurate information about PTSD and find the support they need.”Real Warriers Campaign, organised by the Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE). The organisation collaborates with a civilian agencies and advocacy groups. | http://bit.ly/2lyqGMf
Tool that helps people remember, and manage and organise their lives.
Allows carers, family and friends to form a network, keeping in touch to arrange the care of a person or patient who needs help. Already available to 7 million people in the UK.
"Neurosupport, in partnership with the Walton Centre and the 5 Boroughs Partnership are promoting Rally Round to improve the support of carers of people with dementia. "Rally Round is an online support network designed to make it easy for you to organise help so that someone close to you can stay independent longer. It's free, safe and private. Neurosupport's Information Officer, Kathyrn Topping, is able to offer help and advice to individuals and groups who would like to start using Rally Round. She can offer one-to-one help in setting up an account and is also available to give talks and demonstrations of the website to groups. Please get in touch to arrange a visit or for more information. Rally Round can be used to support people in a wide variety of situations, over a short or long-term, including those with, or caring for, people with Alzheimer's Disease, Parkinson's Disease, Multiple Sclerosis, Dementia, Mental Health conditions, Cancer, Stroke rehabilitation, recuperation after illness etc"Neurosupport,UK | http://bit.ly/1gpbSYK
Provides information on how to carry out cardiopulmonary resuscitation (CPR), with a particular emphasis on aiding victims of choking.
Tracks the user’s remaining amounts of medications, displaying a countdown of the quantities left, and indicating how many days, weeks, or months, remain of each medication.
Helps people with chronic kidney disease (CKD) or end-stage renal disease (ESRD) to record, track, and share their vital renal-health information.
Restaurant guide that allows the user to track restaurant meals eaten, and to view nutritional information on the 60,000-plus food items held in the menus of over 250 restaurants.