App to helps families of children with rare diseases to communicate with health professionals.
“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals.
The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test.
Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…
… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups), which advised on the app’s development | http://bit.ly/2PdolRC
Brings a magazine-style interface to information about research into cures for rarer, more-neglected, diseases.
List containing information about rare diseases.
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