There are 4 apps in General neurological conditions


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Lift Pulse

Lift Pulse
developed by Lift Labs/Lynx Design


Support to deal with symptoms/disabilitiesSelf-monitoringTrackers

English

Cost: Free
Records the extent of a user's tremor via the smartphone's accelerometer.
“ ‘Lift Pulse’ 2.0, a smart phone app created by Lift Labs, has released the results of data gathered from users since updating the app in June 2013. Lift Pulse 2.0 includes a journal feature that measures and records tremors. It also records what medications you’re taking for tremor, and how you’re doing with sleep, exercise, and stress. The app stores your journal entries anonymously in Lift Lab’s private database. You have access to this data through your phone and computer, and Lift Lab analyses it to provide you with information on how different factors affect your tremor. Among the data extracted from users of Lift Pulse 2.0, Lift Labs found: the most commonly-used prescription is Propranolol (Inderal), followed by Primidone (Mysoline); exercise exacerbates amplitude of tremor; and people who reported less stress have less severe tremor symptoms. Lift Pulse 2.0 users have measured their tremor almost 4,000 times so far, and that number continues to grow, according to Lift Labs.” ‘Tremor Talk’, International Essential Tremor Foundation (IETF) blog, USA | http://bit.ly/1opBDHc


Tags: Health, Wellness & Care in the Community (HWCC)

MyDystonia

MyDystonia
developed by Dystonia-Europe (European Dystonia Federation)


Support to deal with symptoms/disabilitiesSelf-monitoringTrackersInformation

Bokmål / Danish / English / Finnish / French / German / Italian / Norwegian / Russian / Spanish / Swedish

Cost: Free
A disease diary for dystonia patients to track and record symptoms and treatment.
“Dystonia Europe developed the MyDystonia app for patients. MyDystonia is an electronic diary created for people with the neurological disease Dystonia. By answering predefined questions (e.g. symptoms like overactive muscles or pain and impact on daily living) the user is able to examine and to visualise his/her well-being according to the treatment schedule.

MyDystonia gives the physician a reliable overview ahead of the consultation, helping to save time. It also helps the patient keep track of their symptoms and how effective their treatment is. This has led to improved communication and treatment outcomes.

The App was initiated, designed and developed by patients for patients. Dystonia Europe has the 100% ownership of the project, the database includes collected data from users of the MyDystonia diary.”

European Patient Forum | European Patient Forum, Position paper on eHealth, Dec 2016, page 12, http://www.eu-patient.eu/whatwedo/Policy/eHealth/


Tags: Disability  ·  Health, Wellness & Care in the Community (HWCC)  ·  Medical

NeuroMind

NeuroMind
developed by Pieter Kubben, MD/DigitalNeurosurgeon.com, Netherlands


Information

English

Cost: Free

App about the subjects of neurology and neurosurgery.

“This app has useful content in the field of neurosurgery for physicians, patients, and students.” International Brain Tumour Alliance (IBTA), UK | PatientView survey, July-August 2012


Tags: Health, Wellness & Care in the Community (HWCC)

The eAcademy for Tay-Sachs and Sandhoff Disease

The eAcademy for Tay-Sachs and Sandhoff Disease
developed by Cure and Action for Tay-Sachs (CATS) Foundation UK


Support to deal with symptoms/disabilitiesInformation

English / French / Portuguese / Spanish

Cost: Free
App sharing parent and carer experience of caring for children with Tay-Sachs or Sandhoff disease.
“We hope that this app changes the way in which families affected by Tay-Sachs and Sandhoff disease are able to access information to help in their role as a carer.”

“These are incredibly rare diseases with fewer than ten children born with Tay-Sachs or Sandhoff in the UK each year. Families can feel extremely isolated and we hope that an app that people can use wherever they are will make a real difference to the community and become a key tool for carers in the UK and abroad.”

The app has been designed to work on various mobile device platforms and contains interviews with families affected by Tay-Sachs and Sandhoff disease about the role of being a carer. There has also been input by the healthcare professionals who support people affected by these rare diseases.”
Daniel Lewi, co-founder CATS Foundation UK, and father of a girl diagnosed with Tay-Sachs. | http://www.cats-foundation.org/blogs/introducing-the-eacademy-for-tay-sachs-sandhoff-disease-app/


Tags: Disability  ·  Health, Wellness & Care in the Community (HWCC)  ·  Medical

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