My CF Story


Listed in: Cystic fibrosis  
My CF Story

Available on:



(click to download)

Supported languages:

English

Cost:

Free

App to help children with Cystic Fibrosis to manage their condition and treatment.

Approved by


Languages

English

Countries of use

Countries where English is spoken, but with some content focused on the developing hospital Our Lady’s Children’s Hospital, Crumlin.

Cost

Free

Developer

Cystic Fibrosis Ireland (Irish National Association for Cystic Fibrosis) with Our Lady’s Children’s Hospital, Crumlin
(Based in Ireland)
http://www.cfireland.ie

Funder

Cystic Fibrosis Ireland (Irish National Association for Cystic Fibrosis) with Our Lady’s Children’s Hospital, Crumlin

Medical Adviser

Cystic Fibrosis Ireland (Irish National Association for Cystic Fibrosis) with Our Lady’s Children’s Hospital, Crumlin

Features

Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

App designed by the patient group Cystic Fibrosis Ireland to help children and their families manage their care.

 Children and their families can use it to:

  • Manage their healthcare, and keep in one place all information to help with their Cystic Fibrosis care
  • Record treatments taken
  • Record test results
  • Manage appointments
  • Plan for consultations
Log answers to questions asked from healthcare teams.


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

Reviews

Reviewer: Dr Des Cox, Consultant in Paediatric Respiratory Medicine, Our Lady’s Children’s Hospital, Crumlin, which developed the app with the patient organisation, Cystic Fibrosis Ireland
Review:

“The app provides children and their parents with their own personal healthcare record which contains information about their CF. The app has been designed to allow children and their parents to keep together all the information that they may need to help manage their CF care.  

The app has three different formats depending on the child’s age, namely 0-5, 6-11 and 12-18 years, and adjusts the phrasing and content to suit the child’s age. As the app was developed by the OLCHC CF unit, much of the content directly relates to how children with CF are managed at OLCHC. We envisage that parents and older children with smart phones will open the app while at CF clinic to access any clinical information or questions which have been logged over the past few months. 

We think of the app like a storybook of lots of important information about CF that families can access whenever they need and this is why we called the app “My CF Story”. We hope that families will find this app empowering and that it will become an integral tool in managing their child’s CF.”


Source: https://bit.ly/2UdzyWu page 11
Usage: Not specified
Weblink of reviewer: https://bit.ly/1xCZ6gd

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