OurBrainBank


Listed in: Brain cancer  
OurBrainBank

Available on:



(click to download)

Supported languages:

English

Cost:

Free

App for symptom tracking and research for patients with glioblastoma.

Approved by


Languages

English

Countries of use

USA and UK, with aim to expand to other countries.

Cost

Free

Developer

uMotif for OurBrainBank
(Based in United States)
https://ourbrainbank.org/

Funder

Mix of donors, including pharma sponsors Abbvie and Novocure

Medical Adviser

uMotif for OurBrainBank

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers

Summary

First app for symptom tracking developed for and by patients with glioblastoma.

Enables patients with the aggressive form of brain cancer to:

  • Track and compare different symptoms over time, for example to inform evaluation of treatment
  • Choose to share data with other people, including your healthcare team, so that they can see how symptoms have changed
  • Track measures including weight, blood pressure, blood sugar, well-being and pain severity
  • Track neurological function with games that test balance and speed of response
  • Keep a digital health diary
  • Contribute data to help improve treatment and management of the disease
  • Aid recruitment for clinical trials. 


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

Reviews

Reviewer: OurBrainBank, the not-for-profit US patient group which developed the app
Review:

“OurBrainBank is a non-profit dedicated to moving glioblastoma from terminal to treatable, powered by patients. 

Our key tool is the OurBrainBank app which helps people manage their disease as well as provide much-needed data for medical researchers…

…As you progress, you may view your data at any time: access reports via the menu icon (bars at the top left of the app screen) and select ‘my reports’. Compare different symptoms and view your progress over time.

You may share your data with other people, including your healthcare team, so they can see how your symptoms may have changed. This may help you understand the relationship between your treatments and your symptoms.

The app allows you to self-track neurological function with games that test balance, ability to compare numbers, and speed of neurological function. They’re quite addictive! 

The app can be used to track health data such as your weight, blood pressure, or blood sugar. There’s also a neat journal feature, so you can record how you’re doing.

We plan to publish our findings widely, sharing the insights gleaned from the aggregated data, and driving more research to crack glioblastoma.

We encourage you to continue to participate after your first 100 days. Your input is crucial to the success of the mission — to turn GBM from terminal to treatable”
Source: https://bit.ly/3bpP746
Usage: Not specified
Weblink of reviewer: https://bit.ly/3bpP746
Reviewer: Academy of Oncology Nurse & Patient Navigators, US not-for-profit group
Review:

“Jessica Morris, whose two-year experience with brain cancer led her to create OurBrainBank, a non-profit organization in support of people with glioblastoma.”

 “Ms. Morris subsequently launched the OurBrainBank app to help patients with glioblastoma and their caregivers deal with the disease. 

The OurBrainBank smartphone app is free, and it allows patients to track and manage their symptoms digitally and to share these data with cancer researchers. The app also helps to connect patients with prospective clinical trials.”
Source: https://bit.ly/2Voi6zS
Usage: Not specified
Weblink of reviewer: https://bit.ly/2wQeZaa

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