ThaliMe


Listed in: Thalassaemia  Rare diseases  
ThaliMe

Available on:



(click to download)

Supported languages:

Arabic / English / Greek

Cost:

Free

App for support and networking for people with thalassaemia. 

Approved by


Languages

Arabic / English / Greek

Countries of use

Countries where these languages are spoken.

Cost

Free

Developer

Curatio, with the umbrella patient group Thalassaemia International Federation
(Based in Canada)
https://thalime.com/

Funder

Includes funding from Novartis

Medical Adviser

Curatio, with the umbrella patient group Thalassaemia International Federation

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

The ThaliMe app helps people with the rare group of thalassaemic blood disorders to:

  • Connect with a community of patients and caregivers
  • Learn about the condition
  • Keep up with the latest news
  • Manage their condition
  • Track medication use
  • Receive medication reminders
  • Monitor and track key symptoms and results, such as those relating to blood transfusions, iron status, infections, liver, heart and kidneys
  • Join virtual coaching programmes to work towards health goals.

The app was developed with the support of the international not-for-profit, non-governmental umbrella organisation, Thalassaemia International Foundation.


Tags:

Reviews

Reviewer: Thalassaemia International Federation [TIF], the not-for-profit umbrella patient organisation with members in 60 countries which helped to develop the app.
Review:

“ThaliMe is a much needed innovative mobile program, developed and deployed to greatly aid and improve the lives of people living with thalassaemia…TIF views this innovative approach to patient care and the use of mobile technology for patient empowerment and outreach as a critical component of the overall thalassaemia care…
…ThaliMe also helps to connect the worldwide thalassaemia community members to one another and to those who care for them. Through ThaliMe, patients are linked to private, peer to peer and peer to caregiver support networks to reduce isolation and improve the patients’ sense of support.”

- Thalassaemia International Magazine, Issue 66b, page 30


Source: http://bit.ly/2YQvJLt
Usage: Not specified
Weblink of reviewer: http://bit.ly/2YOdzd9
Reviewer: Paul Dilorenzo, writing on the site for the US-based patient group Thalassemia Support Foundation
Review:

“Curatio and the Thalassemia International Federation, created a free private mobile social networking app for Thalassemia patients called ThaliMe. This app connects patients with each other through a specific matchmaking process, allowing them to create their own network of Thalassemia patients of their own choosing. There is also a medtracker feature on it with all the Thalassemia medications! Please check it out and share it with your fellow Thalassemia friends.”


Source: http://bit.ly/2YP5ULB
Usage: Not specified
Weblink of reviewer: http://bit.ly/2YNvAIr

Your comments

all comments are moderated. View our comments policy →
comments powered by Disqus

Screenshots

Family
Family
Family




myhealthapps.net
is brought to you
by Patient View