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Carcinoid NETs Health storylines


Listed in: Neuroendocrine tumours  
Carcinoid NETs Health storylines

Available on:



(click to download)

Supported languages:

English

Cost:

Free

Tools to help patients manage carcinoid and related neuroendocrine tumours (NETs)

Approved by


Languages

English

Countries of use

Where English is spoken, with some clinical content specific to US and Canada only.

Cost

Free

Developer

Carcinoid Cancer Foundation, using the Health Storyline platform from Self Care Catalysts
(Based in United States)
http://www.carcinoid.org

Funder

Carcinoid Cancer Foundation, using the Health Storyline platform from Self Care Catalysts

Medical Adviser

Carcinoid Cancer Foundation, using the Health Storyline platform from Self Care Catalysts

Features

Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

App and web tools developed by the not-for-profit organisation Carcinoid Cancer Foundation (CCF), with Self Care Catalysts.

The app aims to make it easier for people with carcinoid and related neuroendocrine tumours (NETS) to manage their condition.


People can choose from a range of health tools to:

  • receive reminders to take medications on time
  • make a record of which foods may trigger symptoms such as flushing or diarrhoea
  • track and understand their emotions and what might be driving them
  • import data from other health and fitness apps they use.

Within privacy guidelines, individuals can choose what they want to share, for example:

  • sharing data with their care team
  • sharing experiences with other patients
  • contributing data anonymously for other stakeholders, including the healthcare industry.


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

Reviews

Reviewer: The Carcinoid Cancer Foundation, the not for profit organisation for patient advocacy and support
Review:

“Living with Neuroendocrine Tumours (NETs) and Carcinoid Syndrome is not easy but two new features on the Carcinoid NETs Health Storylines App aim to make it a little easier…

… Zebra Tales presents real stories about real life experiences by people who may be just like you…You can read their stories online…or in the app

…NET Nutrition is a new nutrition tool made specifically for those living with NETs and/or Carcinoid Syndrome. Determining which nutrients are right for you while living with NETs can sometimes be challenging…

…Check in regularly for new articles that will help you manage typical diet-related symptoms and offer insights on conversations to have with your healthcare team.”


Source: http://bit.ly/2NhvGCx
Usage: Not specified
Weblink of reviewer: http://bit.ly/1gTTw0N

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