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App to helps families of children with rare diseases to communicate with health professionals.
Countries where Spanish is spoken
Allows networking with other people like me / Family / Friends
Reminders
Support to deal with symptoms/disabilities
Self-monitoring
InformationThe Comjuntos app is designed to help families with a child with a rare disease manage their relationships with doctors, nurses and other healthcare professionals.
The app was:
The app helps people to address 7 common challenges for carers of children with rare diseases, including:
Each challenge includes:
The app also includes:
“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals.
The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test.
Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…
… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”
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