Comjuntos


Listed in: Rare diseases  Doctor-patient communication  
Comjuntos

Available on:



(click to download)

Supported languages:

Spanish

Cost:

Free

App to helps families of children with rare diseases to communicate with health professionals.

Approved by


Languages

Spanish

Countries of use

Countries where Spanish is spoken

Cost

Free

Developer

AucaDigital with support from FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups)
(Based in Spain)
http://www.aucadigital.com

Funder

AucaDigital with support from FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups)

Medical Adviser

AucaDigital with support from FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups)

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Information Information

Summary

The Comjuntos app is designed to help families with a child with a rare disease manage their relationships with doctors, nurses and other healthcare professionals.

The app was:

  • developed with the support of FEDER, a group of Spanish rare disease patient organisations
  • based on an academic study to explore the health literacy needs of families with rare diseases.

The app helps people to address 7 common challenges for carers of children with rare diseases, including:

  • diagnosis
  • preparing for medical visits and consultations
  • preparing for clinical tests
  • understanding clinical reports.

Each challenge includes:

  • a video with real testimonies from affected families and health professionals
  • text that explains the situation and addresses any doubts that may arise.

The app also includes:

  • a basic dictionary of medical terms
  • information, tips, resources and links.


Tags: Health, Wellness & Care in the Community (HWCC)

Reviews

Reviewer: FEDER: Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Disease Patient Groups), which advised on the app’s development
Review:

“OMJUNTOS is an app that helps families who have a child with a rare disease to deal the main communication situations with health professionals. 

The common thread is 7 challenges that invite families to overcome some of these situations, such as the day they are notified of the diagnosis, when they have a medical visit, they are given a medical report, or they must perform a medical test. 

Each challenge includes a video with real testimonies from affected families and health professionals. Text explains the situation and anticipates any doubts that may arise, and includes a basic dictionary of medical terms, and information on tips, resources and links…

… The app COMJUNTOS has involved linguists, psychologists and physicians of the Universitat Pompeu Fabra, of the Open University of Catalonia and the Area of ​​Clinical and Molecular Genetics and the Unit of rare diseases of the Hospital Vall d'Hebron, besides having the collaboration of our families.”


Source: http://bit.ly/2PdolRC
Usage: Not specified
Weblink of reviewer: http://bit.ly/2PdomoE

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