Von Hippel Lindau (VHL) disease is a genetic condition characterised by blood vessel tumours in up to 10 parts of the body.
The app is designed to help people with VHL and their carers to:
. Achieve a diagnosis, and follow Active Surveillance Guidance
. Identify common symptoms and manifestations of the disease
. Manage and coordinate appointments and treatment, often involving multiple doctors
. Track appointments and treatments
. Manage contacts in the care team
. Keep up to date with news and events relevant to VHL patients
. Find out about VHL, its diagnosis, symptoms and treatment.
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