VHL app


Listed in: Cancer  
VHL app

Available on:



(click to download)

Supported languages:

English

Cost:

Free

App to help patients, carers and healthcare professionals manage Von Hippel Lindau disease, a genetic cancer.

Approved by


Languages

English

Countries of use

United States and countries where English is spoken.

Cost

Free

Developer

VHL Alliance
(Based in United States)
http://www.vhl.org

Funder

VHL Alliance

Medical Adviser

VHL Alliance

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

The app was developed as a result of a competition run by the US patient organisation, VHL Alliance.

Von Hippel Lindau (VHL) disease is a genetic condition characterised by blood vessel tumours in up to 10 parts of the body.

The app is designed to help people with VHL and their carers to:
. Achieve a diagnosis, and follow Active Surveillance Guidance
. Identify common symptoms and manifestations of the disease
. Manage and coordinate appointments and treatment, often involving multiple doctors
. Track appointments and treatments
. Manage contacts in the care team
. Keep up to date with news and events relevant to VHL patients
. Find out about VHL, its diagnosis, symptoms and treatment.


Tags: Health, Wellness & Care in the Community (HWCC)  ·  Medical

Reviews

Reviewer: VHL Alliance Executive Director, Dr. Ilene Sussman.
Review: “Taking our knowledge and putting it into action by educating patients, caregivers, and physicians is key to meeting our mission. This mobile tool is a spectacular new resource to address those needs, and is readily available as a free download via the iTunes app store. The VHL App is meant to complement our website, conferences, discussion calls, and other resources that seek to make living, managing, and thriving with VHL easier to do.”
Source: http://bit.ly/2p3gn1w
Usage: Not specified
Weblink of reviewer: http://bit.ly/2oZwuNi

Your comments

all comments are moderated. View our comments policy →
comments powered by Disqus

Screenshots

Family
Family
Family




myhealthapps.net
is brought to you
by Patient View