Including video interviews with families, the app helps parents and carers to:
. Understand more about the diseases
. Manage symptoms
. Consider equipment needed
. Benefit from the experience and advice of other parents
. Feel less isolated.
In 2014 The Cure & Action for Tay-Sachs (CATS) Foundation was a winner of the Sanofi-Genzyme Patient Advocacy Leadership (PAL) Awards. The charity was awarded a grant of $15,000 to create an app for smartphones and tablets.
Every child is different: using the experience of other families to help making informed decisions about the child’s care is key and this app would be a real help with sharing that experience.”
PatientView provides this website for use as information, or for educational purposes. We do not warrant that the information we provide on the website will meet your health or medical requirements. Contact a health professional if you are concerned about your health. Nor can we guarantee that the information we provide on the website will always be up to date or accurate. PatientView is providing details of apps recommended by patient groups, an act which does not imply PatientView’s endorsement of any app. PatientView is not responsible for third-party content. Read more for copyright considerations