Patients Know Best


Listed in: Medical records  Doctor-patient communication  
Patients Know Best

Available on:



(click to download)

Supported languages:

English / German

Cost:

Free

Support to manage your treatment and care

Approved by


Languages

English / German

Countries of use

Australia, United Kingdom, United States

Cost

Free

Developer

Dr. Mohammad Al-Ubaydli
(Based in United Kingdom)
http://www.patientsknowbest.com/

Funder

Same as technical developer and the pharmaceutical company Janssen

Medical Adviser

Richard Smith, former editor of the British Medical Journal and expert on evidence-based medicine, is chairman of the Patients Know Best (PKB). The team at PKB has worked with doctors and nurses from hospitals, general physicians and private sector institutions to understand their needs and test the system with their work habits.

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Improving communication Improving communication
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

Patients Know Best (PKB) aims to empower patients by providing them all their personal health information. Effectively allows you to carry your medical record around with you, including test results. You can choose with whom who you want to share your personal medical information. Privacy is attained by working within the country’s healthcare service. Only you and, whoever you choose, can decrypt the data. The app is only available through specific clinical settings in Australia, the United Kingdom, and United States. A list of available settings can be found at http://www.patientsknowbest.com/customers.html. (You need to click on the location to determine whether PKB is available. ) According to the organisation’s website . PKB is currently available at 90 sites worldwide.


Tags: Medical

Reviews

Reviewer: Patient Information Forum, UK
Review: “An example of web-based information which can support patient understanding of their health records is …Patients Know Best, which annotates test results using explanations from the Royal College of Pathologists, as well as allowing individual clinicians to link to local and international information sources.”
Source: http://bit.ly/1QQWYVp
Usage: Not specified
Weblink of reviewer: http://bit.ly/1gpIYpd
Reviewer: Patient comment in (page 63) “PiF Guide to Health Records Access” by Patient Information Forum, UK, July 2012
Review: “I need quite regular contact, day-today, because things change on a daily basis with the feeding; sometimes I need it reviewing quite urgently. So say I’ll see someone from neurology, gastric, nutrition, physios and everyone really on a weekly basis. When I was younger you really had to get into contact with doctors because you would constantly be on the phone and then they wouldn’t be able to get back to you and then you’d have to try and send an e-mail to someone and they necessarily wouldn’t get that e-mail. It was just really hard to keep in touch. It’s just really brought the talking with doctors into the 21st Century really, it just makes living with a medical condition a lot more easier, so it just feels like you have an equal say on your care."
Source: http://bit.ly/1QQWYVp
Usage: Not specified
Weblink of reviewer: http://bit.ly/1gpIYpd
Reviewer: Alkaptonuria Society, UK
Review: “When patients attend the National Alkaptonuria Centre, they are invited to join Patients Know Best. This then allows them access to their records from their time at the National AKU Centre in Liverpool. Patients using the site can discuss their results and records from the National AKU Centre with the doctors and clinicians they deal with at the Centre, as well as our Patient Support Officer Lesley. We have received great feedback from patients about this, who feel empowered by being able to access their own test results and records at ease online. Patients Know Best makes contacting doctors and clinicians easy and quick. Patients using the forum choose who they share their information with, and can change this at anytime.“
Source: http://bit.ly/1QQXa76
Usage: Not specified
Weblink of reviewer: http://bit.ly/1QQXcfj

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