MyFactor


Listed in: Haemophilia  
MyFactor

Available on:



(click to download)

Supported languages:

English

Cost:

Free

Helps people with haemophilia to record and track bleeds and infusions, and share the information with doctors.

Approved by


Languages

English

Countries of use

Any in which the user is familiar with English (though some of the pharmacy communication facilities are USA specific)

Cost

Free

Developer

BioRX LLC
(Based in United States)
http://www.biorxhemophilia.com ; Support email:

Funder

Same as technical developer

Medical Adviser

Bio Rx is a national pharmacy and home infusion services provider specializing in highly customized treatment of hemophilia, von Willebrand disease, and related bleeding disorders.

Features

Allows networking with other people like me / Family / Friends Allows networking with other people like me / Family / Friends
Reminders Reminders
Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers

Summary

Helps people with haemophilia to record and track their bleeds and infusions, and to share the information with their doctors or caregivers. Bleeds can be recorded according to cause, location, pain, severity, and type. Text about, and photos of, bleeds can be added. Infusions can be recorded by dosage and lot numbers, with text added. Lot numbers of clotting factor are recorded by scanning barcodes. Reminders of, and alerts for, infusions can be set up. Records of bleeds and infusions can be organised by date, event, or keyword, and generated in PDF or plain text, and shared by email with doctors and other healthcare professionals.
Helps people with haemophilia to record and track their bleeds and infusions, and to share the information with their doctors or caregivers. Bleeds can be recorded according to cause, location, pain, severity, and type. Text about, and photos of, bleeds can be added. Infusions can be recorded by dosage and lot numbers, with text added. Lot numbers of clotting factor are recorded by scanning barcodes. Reminders of, and alerts for, infusions can be set up. Records of bleeds and infusions can be organised by date, event, or keyword, and generated in PDF or plain text, and shared by email with doctors and other healthcare professionals. Developed in collaboration with members of the haemophilia patient community.
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Tags: Health, Wellness & Care in the Community (HWCC)

Reviews

Reviewer: CheckOrphan, Switzerland and USA
Review: “BioRx Introduces a smartphone app for tracking haemophilia healthcare information. … “ ‘MyFactor’ is the first haemophilia app from a specialty pharmacy,” said Eric Hill, co-founder of BioRx. “This creates a unique platform for BioRx customers and staff to more efficiently communicate, exchange detailed treatment information, and helps both parties to anticipate and plan for future needs.” Today, the vast majority of people with bleeding disorders receive homecare pharmacy and infusion services to help manage their day-to-day care. In moderate-to-severe cases, patients typically self-infuse and receive monthly shipments of their clotting-factor medication and infusion supplies. Physician visits may not be frequent, but interaction with the pharmacy is routine. Keeping track of haemophilia bleeding episodes and treatments (as often as 3 or 4 times per week) can become a burden to patients and caregivers, especially over time; however, communicating these events is important to monitoring for potential joint damage from repeat bleeds, determining the need for dose adjustments, and diagnosing other issues that may impact health outcomes. Bleeding-disorder patients and caregivers can use a ‘wizard’-style graphical interface on MyFactor to log details of treatments and bleeding episodes–including type, cause, location, levels of pain and severity. A unique feature of the app gives users the option to scan the barcode of almost any brand of clotting factor in order to record its lot number. Maintaining a record of lot numbers is particularly important in the case of product recalls. MyFactor can also generate historical reports in PDF and CSV formats at the touch of a button–customised by date range, keyword or event type. Reports from the app can easily be shared with others by selecting email addresses from the iPhone contact list, while access to the app can be password-protected on the device itself. Additionally, patients can use MyFactor to set up regular infusion reminders and alerts, add detailed notes, switch between multiple user accounts, and attach photos to show active bleeds, range of motion, or other information that may be useful to the healthcare team.”
Source: http://bit.ly/1gghkXy
Usage: Not specified
Weblink of reviewer: http://bit.ly/1gghkXB
Reviewer: Orphan Druganaut Blog, USA
Review: “There are many haemophilia apps currently available with the purpose of helping patients track their haemophilia healthcare information. BioRx, a specialty pharmacy and infusion services provider located in Ohio, announced in October 2013 the launch of a new app, ‘MyFactor’. The purpose of MyFactor is to give both patients and caregivers a place to monitor and manage home treatment for haemophilia and related bleeding disorders. The app provides the ability to record, store, view, and transmit medical information related to a deficiency of clotting factor VII, VIII, IX, XIII, or von Willebrand factor.”
Source: http://bit.ly/1gghIFk
Usage: Not specified
Weblink of reviewer: http://bit.ly/1gghIFq
Reviewer: ‘People with Haemophilia (PWH) Newsletter, Central Region’, Oct/Nov 2013, South African Haemophilia Foundation (SAHF), South Africa
Review: “Technology front of haemophilia: smart apps to assist haemophiliacs track treatment information. There seems to be a revived interest into bleeding disorders worldwide, and it hasn’t escaped the technology front. BioRx, a speciality pharmacy and infusion services provider has launched an industry’s first smartphone app designed for patients with haemophilia and other related bleeding disorders. The app, called ‘MyFactor’, gives patients and caregivers a single platform to monitor their home treatment. The first version is currently available in the Apple Store. … The hope is that many of our local pharmaceutical companies will take similar initiatives. This app is available free to Apple users. Android devices can expect this app in the next few months. In South Africa, affordability of Apple smartphones is currently very pricey, but with Android devices popping up everywhere, and an Android app to be expected in the near future, this sort of initiative could be fruitful.”
Source: http://bit.ly/1noH4Zq
Usage: Not specified
Weblink of reviewer: http://bit.ly/1noH2AB

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