HAE Attack Tracker


Listed in: Rare diseases  
HAE Attack Tracker

Available on:



(click to download)

Supported languages:

English

Cost:

Free

Symptom and treatment diary for people with hereditary angioedema (HAE).

Approved by


Languages

English

Countries of use

Any in which the user is familiar with English (though the 911 emergency call button is USA-specific).

Cost

Free

Developer

Peter Baum, while at AS&K Mercury Healthcare Communications
(Based in United Kingdom)
Peter Baum: http://uk.linkedin.com/pub/peter-baum/6/986/858 and AS&K Mercury Healthcare Communications: http://asandk.com

Funder

Dyax Corporation, USA

Medical Adviser

Patient-education specialists at Dyax, along with input from HAE patients

Features

Support to deal with symptoms/disabilities Support to deal with symptoms/disabilities
Self-monitoring Self-monitoring
Trackers Trackers
Information Information

Summary

Symptom and treatment diary for people with the rare and potentially life-threatening swelling disorder, hereditary angioedema (HAE). Allows the user to record information about attacks, including warning signs and potential triggers, date, location on the body, length of time experienced, and treatment taken. Personal notes and photographs can be added to entries. The app charts the stored information over time, according to common attack triggers, location of attacks, frequency, and severity. Data can be emailed to the user’s doctor. The 911 emergency call button is USA-specific.


Tags: Health, Wellness & Care in the Community (HWCC)

Reviews

Reviewer: US Hereditary Angioedema Association (HAEA), USA
Review: "This app allows hereditary-angioedema (HAE) patients to keep detailed records of their disease-related information, including emergency and physician contacts, as well as individual attack data. “Recording and tracking triggers and symptoms of HAE attacks can be an important tool in managing this disease,” said Chief Medical Officer Dr Burt Adelman of Dyax. “Understanding the frequency and severity of these attacks can be of real value to both patients and their treating physicians.” ... Developed by a team of patient-education specialists at Dyax, along with input from HAE patients, the ‘HAE Attack Tracker’ is the first iPhone app designed specifically for HAE patients. ... The app provides a reference for patients and physicians, allowing them to monitor HAE attacks, and track a number of metrics that could help in the management of the condition."
Source: http://bit.ly/1dXMr8H
Usage: Not specified
Weblink of reviewer: http://bit.ly/1dXMoK0

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