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The eAcademy for Tay-Sachs and Sandhoff Disease

The eAcademy for Tay-Sachs and Sandhoff Disease
Cost
Free
Category
Nervous system and brain
Sub Category
General neurological conditions 
Available on
Functions
Support to deal with symptoms/disabilitiesInformation
“We hope that this app changes the way in which families affected by Tay-Sachs and Sandhoff disease are able to access information to help in their role as a carer.”

“These are incredibly rare diseases with fewer than ten children born with Tay-Sachs or Sandhoff in the UK each year. Families can feel extremely isolated and we hope that an app that people can use wherever they are will make a real difference to the community and become a key tool for carers in the UK and abroad.”

The app has been designed to work on various mobile device platforms and contains interviews with families affected by Tay-Sachs and Sandhoff disease about the role of being a carer. There has also been input by the healthcare professionals who support people affected by these rare diseases.”
Daniel Lewi, co-founder CATS Foundation UK, and father of a girl diagnosed with Tay-Sachs.
Source: http://www.cats-foundation.org/blogs/introducing-the-eacademy-for-tay-sachs-sandhoff-disease-app/
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