“Family members of people with ALS become increasingly worried during the disease process and regularly become overloaded.
ALS Center Netherlands developed an app to support relatives of people with ALS. Unique to this app is that it is information from 'peer to peer’; people who have experienced the same will share their knowledge and experience via video messages.
The app 'ALS Naasten, tips & info' can be downloaded for free from the Google Play store and Apple app store.
The app also offers the option of self-monitoring.
In the app, the person caring can keep track of how he or she is doing on a daily basis using a score. If the carer regularly fills in how they feel, they will gain insight into the course of their mood and what influence it has. This gives more sense of control over the situation
A carer of an ALS patient can download the app on their own initiative from the app stores, but healthcare professionals, such as rehabilitation doctors and social workers, can also actively offer the app to loved ones at an early stage.”ALS-Centrum, which helped to develop the app for the patient group Stichting ALS Nederland
myhealthapps.net is made possible by patients, carers and patient groups who recommend and review apps.
We would like to thank them, and some of the many organisations who make this site possible:
“Mobile health in Europe is one small, but important, part in our expanding efforts to help Europeans being healthier. I commend this effort to help guide the citizens looking for a good choice in health and wellbeing apps.”
Robert Madelin - Director General, DG CONNECT, European Commission
The reviews on this site are independent, and volunteered by patient groups, patients and carers.
We would like to thank and acknowledge the support of the following organisations.
PatientView provides this website for use as information, or for educational purposes. We do not warrant that the information we provide on the website will meet your health or medical requirements. Contact a health professional if you are concerned about your health. Nor can we guarantee that the information we provide on the website will always be up to date or accurate. PatientView is providing details of apps recommended by patient groups, an act which does not imply PatientView’s endorsement of any app. PatientView is not responsible for third-party content. Read more for copyright considerations